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165 pages, Kindle Edition
Published May 18, 2017
“Autism refers to a neurotype that leads to a cognition that is qualitatively different from that of the PNT (predominant neurotype) in the way that information specific to communication, social interpretation and interaction is processed and understood; and to a perceptual reality of the sensory environment that differs considerably from one individual to the next. One of the major problems when it comes to trying to define or categorize autism is that very often it is described in behavioural terms – in other words, ‘people with autism do this’, or ‘autistic children do that’. This is simply not applicable across the whole population. If there were such a thing as ‘autistic behaviour’ then we would be able to identify autism simply by identifying that behaviour. There is no ‘set of behaviours’ that is purely autistic either – the same principle applies. There is no behaviour that an autistic person displays that isn’t displayed by the non-autistic population. There is no behaviour displayed by the PNT that isn’t found in the autistic population.
“The medical model identifies autism as a deficit – something to be fixed, cured, or changed for the better. The social model, on the other hand, implies that any problem that a ‘disabled’ person might have is rooted in the environment – i.e. within society … changes and adaptations within society will reduce or eliminate the negative issues faced.”
… “the calm, ‘appropriate’ exterior ‘face’ often belies the extreme chaos and frantic brain activity that is unseen.”
“The mental energy that is required to constantly wear a mask cannot be underestimated, nor can the impact the effort will subsequently have on the individual, both from day to day and in the longer term.”
“The most important message, I believe, in relation to masking is to listen to and believe autistic adults when they are able to articulate their realities. When someone tells us how exhausting life can be, let’s not force them to somehow prove it, but instead let’s accept that this is the case.”