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Private Parts; How To Really Live With Endometriosis
What the internet can tell you about endometriosis:
Endometriosis is a chronic and incurable condition that affects 1 in 10 women with approximately 1.6 million sufferers in the UK alone, but only 20% of the general public have heard of it. It takes an average of seven and a half years to get a diagnosis in the UK and affects sufferers' capacity to work, their fertility and their ability to enjoy sex.
What Eleanor Thom can tell you about endometriosis:
You are so much more than the sum of your private parts.
Part memoir, part guide book and part survival guide, Private Parts retraces Eleanor's own journey with endometriosis, offering readers practical, down-to-earth and friendly advice covering everything from what actually happens in an internal exam, to finding the right specialist for you, the perfect post-op wardrobe and to why you should look to Frida Kahlo for inspiration in your darkest moments.
Written for those looking to live well with their endometriosis and for those who are looking for help to understand the disease and how it affects those with it, Private Parts is a call to action for people to speak up about an illness which is still so misunderstood.
Will feature exclusive interviews with Hilary Mantel and Lena Dunham.
Endometriosis is a chronic and incurable condition that affects 1 in 10 women with approximately 1.6 million sufferers in the UK alone, but only 20% of the general public have heard of it. It takes an average of seven and a half years to get a diagnosis in the UK and affects sufferers' capacity to work, their fertility and their ability to enjoy sex.
What Eleanor Thom can tell you about endometriosis:
You are so much more than the sum of your private parts.
Part memoir, part guide book and part survival guide, Private Parts retraces Eleanor's own journey with endometriosis, offering readers practical, down-to-earth and friendly advice covering everything from what actually happens in an internal exam, to finding the right specialist for you, the perfect post-op wardrobe and to why you should look to Frida Kahlo for inspiration in your darkest moments.
Written for those looking to live well with their endometriosis and for those who are looking for help to understand the disease and how it affects those with it, Private Parts is a call to action for people to speak up about an illness which is still so misunderstood.
Will feature exclusive interviews with Hilary Mantel and Lena Dunham.
272 pages, Hardcover
First published July 25, 2019
22 people are currently reading
481 people want to read
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Displaying 1 - 30 of 30 reviews
July 30, 2019
5 stars
Utterly fantastic. This book was like reading all my thoughts and problems with endometriosis, from finding doctors that believe you down to the smallest moments you spend alone at 2am fighting the pain (which I am ironically doing now).
I have had endometriosis for 15 years and I really wish this book had been around when I was 16. It has everything that I wish I knew then and still has many aspects that comfort and educate me now.
Eleanor Thom is a fantastic writer and not only does she deliver all the information seamlessly, she makes you laugh too. Her humour is what made this book for me, along with her ability to somehow ease many of your worries and make you feel less alone.
This isn't a deeply scientific book, it is a book that will give you ideas to try to help make your life with endo that bit easier. The book is split up into chapters such as surgical treatment, hormone treatment, managing pain, fertility etc. What I especially loved were the lists (I'm a big list person) of things to do or things that may help. I smiled when reading Eleanor's list of what to have with you for after a laparoscopy. A pillow to put between you and the seatbelt in the car is something women that have multiple surgeries know but that a newly diagnosed endowarrior probably wouldn't think of, yet it is VITAL.
The information about endo was spot on, which is lucky because if I read another incorrect definition of endometriosis I will not be held accountable for my actions!
If you think you have endometriosis - buy this book.
If you have just been diagnosed with endometriosis - buy this book.
If like me, you are 15 years and 5 surgeries down the line and still grappling with daily pain - buy this book.
If you want someone else to understand what your day to day life is like with this awful incurable disease - force this book on them!
Please note that this book was gifted in exchange for an honest review.
Utterly fantastic. This book was like reading all my thoughts and problems with endometriosis, from finding doctors that believe you down to the smallest moments you spend alone at 2am fighting the pain (which I am ironically doing now).
I have had endometriosis for 15 years and I really wish this book had been around when I was 16. It has everything that I wish I knew then and still has many aspects that comfort and educate me now.
Eleanor Thom is a fantastic writer and not only does she deliver all the information seamlessly, she makes you laugh too. Her humour is what made this book for me, along with her ability to somehow ease many of your worries and make you feel less alone.
This isn't a deeply scientific book, it is a book that will give you ideas to try to help make your life with endo that bit easier. The book is split up into chapters such as surgical treatment, hormone treatment, managing pain, fertility etc. What I especially loved were the lists (I'm a big list person) of things to do or things that may help. I smiled when reading Eleanor's list of what to have with you for after a laparoscopy. A pillow to put between you and the seatbelt in the car is something women that have multiple surgeries know but that a newly diagnosed endowarrior probably wouldn't think of, yet it is VITAL.
The information about endo was spot on, which is lucky because if I read another incorrect definition of endometriosis I will not be held accountable for my actions!
If you think you have endometriosis - buy this book.
If you have just been diagnosed with endometriosis - buy this book.
If like me, you are 15 years and 5 surgeries down the line and still grappling with daily pain - buy this book.
If you want someone else to understand what your day to day life is like with this awful incurable disease - force this book on them!
Please note that this book was gifted in exchange for an honest review.
August 11, 2019
What a great read! As a non-sufferer, it was hugely helpful to learn about the lived experience of many of my friends. This book will help me be better friend and a better advocate for my patients.
September 10, 2019
So, this isn’t my usual read but as part of an local endometriosis Facebook support group and seeing this book, I decided to buy it and review. I don’t normally share personal information within my reviews but feel it’s important on this occasion.
From a young age I’ve struggled with issues and for a variety of issues, both physical and mental, guess I downplayed them. But after the longest time, started fighting for myself at the end of 2018. After seeing one of the most helpful (women’s health) GP the term endometriosis was out there and things were set in motion...anyways! Back to the review!
The newly released book “Private Parts” - How to really live with endometriosis, seemed like a non-brainier. One clicked quickly. Also Eleanor Thom is a new author for me, so quickly stalked her (obviously!) 😆
So, I’ve got to say that Eleanor Thom’s book was an insightful and informative read but also held a lot of giggles too. But as a women fighting for a diagnosis of Endo, so much of it resonated with me.
Excerpt:
“If your illness was a person I’d take it outside and kick it in the d!ck”
***susan cackles furiously***
What I found helpful (which might be entirely different woman-to-woman), was sometimes duplicated over the course of the book in varying chapters but, I also appreciate that some/many readers may only read relevant chapters to them, so having read the book in its entirety, understand why the information might have been relevant to others, but not to readers like myself.
Nonetheless, the personal input from a fellow Endo warrior and her journey from a young age to present, both saddened me but also provided an element of insight into how things have changed, or not! (albeit slowly) in the medical community.
Excerpt:
I was mindful that ‘women’s problems’ could be used against us, to explain our behaviour or dismiss perfectly normal reactions as ‘hormonal’. The idea that people might think l was ‘hysterical’ or exaggerating, and that assumptions would be made about my capabilities, haunted me for a long time and were major reasons why I didn’t talk about having endometriosis.
But the positivity and comedic element (and yes this author is a comedian and it shines through!) definitely provides a laugh out loud element through what else could be considered a darn and depressing factual read about misdiagnosis or mistreatments.
I think the frustration that came across, and from what I’ve learned through local support groups as well as this book is that endometriosis is such a prominent and life altering disease, and can affect 1 in 10 women, was the lack of knowledge from not just fellow women...but sadly, medical professionals also.
Excerpt:
.....what is surprising, and perhaps one of the saddest things I’ve experienced, is that almost all of the female gynaecologists I have met have been the least compassionate of all...so when they doubt the pain is real or assume we’re exaggerating.....it can be even more upsetting. The feeling when this happens is not just disappointment, it’s a gut drop. You thought there was a sisterhood, that they, more than anyone, would understand or, at the very least, believe you, and then you feel hopeless because if they don’t get this then who will?
I loved the positive attitude the author portrayed, and the idea of getting strength from others also with Endo, and I for one am fortunate enough to be a part of a local Endo warrior group who are simply amazing and inspiring. But also felt that the complimentary therapies and ideals of “going private” might not be within all women’s reach too.
But I applaud Eleanor Thom for highlighting/writing about such an unknown and debilitating disease amongst women and loved the interviews she carried out in the last stage of the book to gain other women’s perspectives and would recommend this read to anyone either with endometriosis or simply someone at the beginning of their journey seeking a diagnosis, because the insights and suggestions on standing up/fighting for yourself is all in there, right alongside what to expect from surgery and beyond. I’ve got to commend this authors strength and bravery for not only writing this story and being brave enough to share her innermost thoughts, but also in her bid to give strength and a sense of “togetherness” for other women also suffering through positivity despite a sometimes debilitating and difficult diagnosis.
Excerpt:
Endometriosis is persistent but so are we.
From a young age I’ve struggled with issues and for a variety of issues, both physical and mental, guess I downplayed them. But after the longest time, started fighting for myself at the end of 2018. After seeing one of the most helpful (women’s health) GP the term endometriosis was out there and things were set in motion...anyways! Back to the review!
The newly released book “Private Parts” - How to really live with endometriosis, seemed like a non-brainier. One clicked quickly. Also Eleanor Thom is a new author for me, so quickly stalked her (obviously!) 😆
So, I’ve got to say that Eleanor Thom’s book was an insightful and informative read but also held a lot of giggles too. But as a women fighting for a diagnosis of Endo, so much of it resonated with me.
Excerpt:
“If your illness was a person I’d take it outside and kick it in the d!ck”
***susan cackles furiously***
What I found helpful (which might be entirely different woman-to-woman), was sometimes duplicated over the course of the book in varying chapters but, I also appreciate that some/many readers may only read relevant chapters to them, so having read the book in its entirety, understand why the information might have been relevant to others, but not to readers like myself.
Nonetheless, the personal input from a fellow Endo warrior and her journey from a young age to present, both saddened me but also provided an element of insight into how things have changed, or not! (albeit slowly) in the medical community.
Excerpt:
I was mindful that ‘women’s problems’ could be used against us, to explain our behaviour or dismiss perfectly normal reactions as ‘hormonal’. The idea that people might think l was ‘hysterical’ or exaggerating, and that assumptions would be made about my capabilities, haunted me for a long time and were major reasons why I didn’t talk about having endometriosis.
But the positivity and comedic element (and yes this author is a comedian and it shines through!) definitely provides a laugh out loud element through what else could be considered a darn and depressing factual read about misdiagnosis or mistreatments.
I think the frustration that came across, and from what I’ve learned through local support groups as well as this book is that endometriosis is such a prominent and life altering disease, and can affect 1 in 10 women, was the lack of knowledge from not just fellow women...but sadly, medical professionals also.
Excerpt:
.....what is surprising, and perhaps one of the saddest things I’ve experienced, is that almost all of the female gynaecologists I have met have been the least compassionate of all...so when they doubt the pain is real or assume we’re exaggerating.....it can be even more upsetting. The feeling when this happens is not just disappointment, it’s a gut drop. You thought there was a sisterhood, that they, more than anyone, would understand or, at the very least, believe you, and then you feel hopeless because if they don’t get this then who will?
I loved the positive attitude the author portrayed, and the idea of getting strength from others also with Endo, and I for one am fortunate enough to be a part of a local Endo warrior group who are simply amazing and inspiring. But also felt that the complimentary therapies and ideals of “going private” might not be within all women’s reach too.
But I applaud Eleanor Thom for highlighting/writing about such an unknown and debilitating disease amongst women and loved the interviews she carried out in the last stage of the book to gain other women’s perspectives and would recommend this read to anyone either with endometriosis or simply someone at the beginning of their journey seeking a diagnosis, because the insights and suggestions on standing up/fighting for yourself is all in there, right alongside what to expect from surgery and beyond. I’ve got to commend this authors strength and bravery for not only writing this story and being brave enough to share her innermost thoughts, but also in her bid to give strength and a sense of “togetherness” for other women also suffering through positivity despite a sometimes debilitating and difficult diagnosis.
Excerpt:
Endometriosis is persistent but so are we.
January 18, 2024
Felt like someone scooped out all the pain and worries from my heart and bound them in this book - it made me feel so much less alone.
January 21, 2020
If you've ever been curious about what endometriosis is like, if someone you love has just gotten (or revealed) that diagnosis, or if you've just gotten a diagnosis of it yourself, this book will be fantastically helpful - a mix of honest memoir, humor, and a whole bunch of carefully organized information about the diagnosis, treatment, and lifelong coping process.
Because I got my own diagnosis a year and a half ago, I ended up just skim-reading the information in the first 2/3 of the book - it was all stuff I knew from my own research across multiple sources, but I would have LOVED to find it all put together in such an accessible format back when I first got the diagnosis. And even with the knowledge and experience I already have, the last third of the book, on coping strategies (for this chronic disease that can't be cured) was still a lovely, resonant and helpful (and hopeful) read for me. Also, it would have been worth picking up this whole book just for the lovely, long, in-depth, and generous interview with Hilary Mantel at the end of it.
Because I got my own diagnosis a year and a half ago, I ended up just skim-reading the information in the first 2/3 of the book - it was all stuff I knew from my own research across multiple sources, but I would have LOVED to find it all put together in such an accessible format back when I first got the diagnosis. And even with the knowledge and experience I already have, the last third of the book, on coping strategies (for this chronic disease that can't be cured) was still a lovely, resonant and helpful (and hopeful) read for me. Also, it would have been worth picking up this whole book just for the lovely, long, in-depth, and generous interview with Hilary Mantel at the end of it.
September 16, 2020
An interesting insight into endometriosis and how it affects the body, this book dives into the subject material with a mixture of autobiography, interview, medical data, and anecdotes. It provides a sweeping view of the disease- but there’s still bits missing from it. I found it a little repetitive in parts as well, and just kind of wished it went a little more into other bits and bobs.
However, it’s also very daunting for someone newly diagnosed to read this book. There’s so much here that doesn’t readily present itself, and it will inevitably raise questions. Also, while I’m so glad the author found an amazing doctor, let’s face it- when it comes to AFAB health, most are appalling. This is not the standard, and it should be.
However, it’s also very daunting for someone newly diagnosed to read this book. There’s so much here that doesn’t readily present itself, and it will inevitably raise questions. Also, while I’m so glad the author found an amazing doctor, let’s face it- when it comes to AFAB health, most are appalling. This is not the standard, and it should be.
October 22, 2023
This is a book I wish I read 7 years ago when endo was first mentioned to me as an issue I’d been battling. It’s practical, funny, and it makes you feel a lot less crazy about your experiences with the disease. The book is written a bit sporadic and random at times. But it is super helpful and I have some notes and reminders written down from what ir taught me. This feels like a good gift to other endo sufferers should I cross paths with them.
November 17, 2024
Highly recommend as an uplifting read for those suffering with endometriosis. Lots of practical tips and anecdotes that made me feel a lot less alone. This book reminded me there is hope. I believe the following is needed.. 1) talking about it really breaks taboo, which in turns leads to 2) increased serious medical convos and research which hopefully leads to 3) a fucking cure 👏
March 8, 2020
Didn't love or hate it. I think it's important to remember that just as endo is individual to everyone, so is everyone's way of dealing with it. I like a lot that she talked about in terms of managing endo on a personal level. For example, she talked about how to dress for endo, which is something that is absolutely affected but not always talked about. And I loved all the tidbits focusing on self care. But I was surprised by a lot of her more medical advice. I am kind of skeptical of her "specialist," who put her on a very extreme hormonal treatment that is advised against in everything I've researched. But all in all it was a decent read, and I applaud the author for writing the book.
I do have two major complaints though:
1. DID ANYONE EDIT THIS BOOK?!?!? The amount of comma splices killed me. And for the love of god people, use the oxford comma!!!!
2. It wasn't very trans-inclusive. Let's not forget: not everyone with a uterus is a woman!!!
I do have two major complaints though:
1. DID ANYONE EDIT THIS BOOK?!?!? The amount of comma splices killed me. And for the love of god people, use the oxford comma!!!!
2. It wasn't very trans-inclusive. Let's not forget: not everyone with a uterus is a woman!!!
October 1, 2019
So, this isn’t my usual read but as part of a local endometriosis Facebook support group and seeing this book, I decided to buy it and review. I don’t normally share personal information within my reviews but feel it’s important on this occasion.
From a young age I’ve struggled with issues and for a variety of issues, both physical and mental, guess I downplayed them. But after the longest time, I started fighting for myself at the end of 2018. After seeing one of the most helpful (women’s health) GP, the term “endometriosis” was out there and things were set in motion...anyways! A term I was nonethewiser to (despite it affecting 1 in 10
Women!!!) - Back to the review!
The newly released book “Private Parts” - How to really live with endometriosis, seemed like a non-brainier. One clicked quickly. Also Eleanor Thom is a new author for me, so quickly stalked her (obviously!) 😆
So, I’ve got to say that Eleanor Thom’s book was an insightful and informative read but also held a lot of giggles too. But as a women fighting for a diagnosis of Endo, so much of it resonated with me.
Excerpt:
“If your illness was a person I’d take it outside and kick it in the d!ck”
***susan cackles furiously***
What I found helpful, was sometimes duplicated over the course of the book in varying chapters but, I also appreciate that some/many readers may only read relevant chapters to them, so having read the book in its entirety, understand why the information might have been relevant to others, but not to readers like myself.
Nonetheless, the personal input from a fellow Endo warrior and her journey from a young age to present, both saddened me but also provided an element of insight into how things have changed, or not! (albeit slowly) in the medical community.
Excerpt:
I was mindful that ‘women’s problems’ could be used against us, to explain our behaviour or dismiss perfectly normal reactions as ‘hormonal’. The idea that people might think l was ‘hysterical’ or exaggerating, and that assumptions would be made about my capabilities, haunted me for a long time and were major reasons why I didn’t talk about having endometriosis.
But the positivity and comedic element (and yes this author is a comedian and it shines through!) definitely provides a laugh out loud element through what else could be considered a darn and depressing factual read about misdiagnosis or mistreatments.
I think the frustration that came across, and from what I’ve learned through local support groups as well as this book is that endometriosis is such a prominent and life altering disease, and can affect 1 in 10 women, was the lack of knowledge from not just fellow women...but sadly, medical professionals also.
Excerpt:
.....what is surprising, and perhaps one of the saddest things I’ve experienced, is that almost all of the female gynaecologists I have met have been the least compassionate of all...so when they doubt the pain is real or assume we’re exaggerating.....it can be even more upsetting. The feeling when this happens is not just disappointment, it’s a gut drop. You thought there was a sisterhood, that they, more than anyone, would understand or, at the very least, believe you, and then you feel hopeless because if they don’t get this then who will?
I loved the positive attitude the author portrayed, and the idea of getting strength from others also with Endo, and I for one am fortunate enough to be a part of a local Endo warrior group who are simply amazing and inspiring. But also felt that the complimentary therapies and ideals of “going private” might not be within all women’s reach too.
But I applaud Eleanor Thom for highlighting/writing about such an unknown and debilitating disease amongst women and loved the interviews she carried out in the last stage of the book to gain other women’s perspectives and would recommend this read to anyone either with endometriosis or simply someone at the beginning of their journey seeking a diagnosis, because the insights and suggestions on standing up/fighting for yourself is all in there, right alongside what to expect from surgery and beyond. I’ve got to commend this authors strength and bravery for not only writing this story and being brave enough to share her innermost thoughts, but also in her bid to give strength and a sense of “togetherness” for other women also suffering through positivity despite a sometimes debilitating and difficult diagnosis.
Excerpt:
Endometriosis is persistent but so are we.
So true Eleanor Thom! Us women are warriors and due for surgery later this month (October 2019) and thank you for your informative book!!
3.5/4* rating from little old me! :)
From a young age I’ve struggled with issues and for a variety of issues, both physical and mental, guess I downplayed them. But after the longest time, I started fighting for myself at the end of 2018. After seeing one of the most helpful (women’s health) GP, the term “endometriosis” was out there and things were set in motion...anyways! A term I was nonethewiser to (despite it affecting 1 in 10
Women!!!) - Back to the review!
The newly released book “Private Parts” - How to really live with endometriosis, seemed like a non-brainier. One clicked quickly. Also Eleanor Thom is a new author for me, so quickly stalked her (obviously!) 😆
So, I’ve got to say that Eleanor Thom’s book was an insightful and informative read but also held a lot of giggles too. But as a women fighting for a diagnosis of Endo, so much of it resonated with me.
Excerpt:
“If your illness was a person I’d take it outside and kick it in the d!ck”
***susan cackles furiously***
What I found helpful, was sometimes duplicated over the course of the book in varying chapters but, I also appreciate that some/many readers may only read relevant chapters to them, so having read the book in its entirety, understand why the information might have been relevant to others, but not to readers like myself.
Nonetheless, the personal input from a fellow Endo warrior and her journey from a young age to present, both saddened me but also provided an element of insight into how things have changed, or not! (albeit slowly) in the medical community.
Excerpt:
I was mindful that ‘women’s problems’ could be used against us, to explain our behaviour or dismiss perfectly normal reactions as ‘hormonal’. The idea that people might think l was ‘hysterical’ or exaggerating, and that assumptions would be made about my capabilities, haunted me for a long time and were major reasons why I didn’t talk about having endometriosis.
But the positivity and comedic element (and yes this author is a comedian and it shines through!) definitely provides a laugh out loud element through what else could be considered a darn and depressing factual read about misdiagnosis or mistreatments.
I think the frustration that came across, and from what I’ve learned through local support groups as well as this book is that endometriosis is such a prominent and life altering disease, and can affect 1 in 10 women, was the lack of knowledge from not just fellow women...but sadly, medical professionals also.
Excerpt:
.....what is surprising, and perhaps one of the saddest things I’ve experienced, is that almost all of the female gynaecologists I have met have been the least compassionate of all...so when they doubt the pain is real or assume we’re exaggerating.....it can be even more upsetting. The feeling when this happens is not just disappointment, it’s a gut drop. You thought there was a sisterhood, that they, more than anyone, would understand or, at the very least, believe you, and then you feel hopeless because if they don’t get this then who will?
I loved the positive attitude the author portrayed, and the idea of getting strength from others also with Endo, and I for one am fortunate enough to be a part of a local Endo warrior group who are simply amazing and inspiring. But also felt that the complimentary therapies and ideals of “going private” might not be within all women’s reach too.
But I applaud Eleanor Thom for highlighting/writing about such an unknown and debilitating disease amongst women and loved the interviews she carried out in the last stage of the book to gain other women’s perspectives and would recommend this read to anyone either with endometriosis or simply someone at the beginning of their journey seeking a diagnosis, because the insights and suggestions on standing up/fighting for yourself is all in there, right alongside what to expect from surgery and beyond. I’ve got to commend this authors strength and bravery for not only writing this story and being brave enough to share her innermost thoughts, but also in her bid to give strength and a sense of “togetherness” for other women also suffering through positivity despite a sometimes debilitating and difficult diagnosis.
Excerpt:
Endometriosis is persistent but so are we.
So true Eleanor Thom! Us women are warriors and due for surgery later this month (October 2019) and thank you for your informative book!!
3.5/4* rating from little old me! :)
September 25, 2020
This book is a must-read for endometriosis sufferers. Written by a woman with endometriosis rather than a male academic or medico, it provides a lot of relatable 'OMG yes!' moments and doesn't hold back with the unpretty stuff. It is part memoir, part self-help - and admittedly, I preferred the memoir sections as I feel attacked by most endo self-help. However, as far as 'self-help' goes, it is one of the better, and more honest, ones. Thom fearlessly lambastes the androcentric medical establishment and all its foot soldiers, who routinely dismiss and belittle 'women's problems'. She's not afraid to politicise endo as an overlooked disease because it is a women's disease. Thom recognises what endo sufferers are up against - a painful chronic illness with no cure and a medical system that refuses to fund or understand it.
I especially appreciated the brutally honest accounts of how humiliating and debilitating endometriosis is. Thom doesn't hold back and it is of immense comfort. I've experienced years of specialists telling me "endometriosis shouldn't make you nauseous/black out on the toilet/have bladder issues - let me refer you to my super expensive friend..." Yeah, no.
The book reads like a conversation with a funny friend and I appreciate the emphasis on endometriosis being a WOMAN'S struggle and that is why it is routinely belittled, ignored and minimised. For me, it lost a star for spending a chapter on fertility - I hate it when people conflate endo with the baby stuff, like having babies is a woman's only function in life. There are already entire books out there that do that and I have spent my entire life being harassed by OB-GYNs e.g. "sure you don't want to pay $30000 to try this fertility treatment? I don't believe that you don't want kids - every woman does!" - and also, total strangers - so I'd prefer it didn't come from a fellow sufferer.
I also felt a bit put upon by the all the suggested therapies. The "but have you tried this" is another doctor and stranger favourite and I'm sick of hearing what worked for someone else. I expected a bit of it, sure, but I think I was bothered by the sheer expense of what Thom describes as good management. Thom admits her parents help her financially and also accounts for the devastating financial effect endo has on women's lives - but it did make me feel guilty that perhaps I just wasn't trying hard enough (i.e. spending enough) to manage the condition. The interviews at the end of the book were a bit of an odd addition too - they were fairly good, but felt like an after-thought that just got bunged in. My cynical side wondered whether it was to show off that the author knew Lena Dunham. Who knows, but for me, it was a weak ending to an enjoyable book.
Despite these small flaws, a great book which I'd highly recommend to anyone, whether they have endo or love someone with the condition. It truly reflects what an endo life entails and bursts with a refreshing candor and honesty seldom found in discussions around broken lady parts.
I especially appreciated the brutally honest accounts of how humiliating and debilitating endometriosis is. Thom doesn't hold back and it is of immense comfort. I've experienced years of specialists telling me "endometriosis shouldn't make you nauseous/black out on the toilet/have bladder issues - let me refer you to my super expensive friend..." Yeah, no.
The book reads like a conversation with a funny friend and I appreciate the emphasis on endometriosis being a WOMAN'S struggle and that is why it is routinely belittled, ignored and minimised. For me, it lost a star for spending a chapter on fertility - I hate it when people conflate endo with the baby stuff, like having babies is a woman's only function in life. There are already entire books out there that do that and I have spent my entire life being harassed by OB-GYNs e.g. "sure you don't want to pay $30000 to try this fertility treatment? I don't believe that you don't want kids - every woman does!" - and also, total strangers - so I'd prefer it didn't come from a fellow sufferer.
I also felt a bit put upon by the all the suggested therapies. The "but have you tried this" is another doctor and stranger favourite and I'm sick of hearing what worked for someone else. I expected a bit of it, sure, but I think I was bothered by the sheer expense of what Thom describes as good management. Thom admits her parents help her financially and also accounts for the devastating financial effect endo has on women's lives - but it did make me feel guilty that perhaps I just wasn't trying hard enough (i.e. spending enough) to manage the condition. The interviews at the end of the book were a bit of an odd addition too - they were fairly good, but felt like an after-thought that just got bunged in. My cynical side wondered whether it was to show off that the author knew Lena Dunham. Who knows, but for me, it was a weak ending to an enjoyable book.
Despite these small flaws, a great book which I'd highly recommend to anyone, whether they have endo or love someone with the condition. It truly reflects what an endo life entails and bursts with a refreshing candor and honesty seldom found in discussions around broken lady parts.
August 9, 2022
I finished this book last night, which I have been reading in the days coming up to my first laparoscopy (that I've been fighting 6 years to get), while waiting at the hospital to go into the surgery and now back at home, recovering after my official diagnosis of #endometriosis.
Thank you Eleanor for this book, indeed the "pamphlet" that every (young) person with a uterus suffering from period & pelvic pain needs!
Learning that the endometriosis growths create their own hormone supply and that's why the pain/symptoms are not cyclical... 🤯🤯🤯 ...blew my mind and explained so much!
This book has helped me understand so much about my relationship with chronic pain, not just in terms of my endometriosis (the chronic pain beast I've been uncomfortably living with for over 2 decades), but also my degenerative osteoarthritis (the chronic pain beast I've been fighting against for 6 years).
This book is a must read, not just for every person who has (or had) a uterus, but also every person who knows one!
I really hope they add it to school curriculums, so every young person has to read it!!
Thank you Eleanor for this book, indeed the "pamphlet" that every (young) person with a uterus suffering from period & pelvic pain needs!
Learning that the endometriosis growths create their own hormone supply and that's why the pain/symptoms are not cyclical... 🤯🤯🤯 ...blew my mind and explained so much!
This book has helped me understand so much about my relationship with chronic pain, not just in terms of my endometriosis (the chronic pain beast I've been uncomfortably living with for over 2 decades), but also my degenerative osteoarthritis (the chronic pain beast I've been fighting against for 6 years).
This book is a must read, not just for every person who has (or had) a uterus, but also every person who knows one!
I really hope they add it to school curriculums, so every young person has to read it!!
September 1, 2024
This is everything you wished the doctors told you when you were diagnosed and (slightly worryingly) everything the doctors don’t know to tell you. Granted, there were some bits in this book which didn’t exactly make me feel spectacular but it was mixed in with some gallows humour that truly helped along with some positive bonuses about how the treatment being thrown at me actually works. These particular bits made me feel a lot better about where I currently am and where I’m going. This worked well with some in depth explanation about what these pelvic conditions actually are. Some bits were a little repetitive but Thom makes sure to state at the start that this book is designed to be picked up and flipped through to certain parts as and when you need it. Some things do need to be re-stated because maybe you didn’t need or didn’t read the last chapter at the time. However, as someone who sat down and read this whole thing, it did become a little annoying. Overall, it remained a spectacular read which is super helpful and should be a must read for anyone with uterine tissue growth somewhere it shouldn’t be- not just for those with Endometriosis.
August 15, 2025
I'm really glad this exists, as there are so few endo books out there. I liked the chapters on the physiology of pain, and coping with flare-ups best.
It needed a better edit - there are quite a few minor mistakes; and a lot of jumping from memoir to bullet point lists to advice, which makes it feel fragmented. To be fair, the author admits she wrote a lot of it dosed up on heavy painkillers which gave her brain fog - so this is an editorial issue.
The tone is light and suitable for younger readers, and perhaps those new to an endo diagnosis. I don't think I'm the best target, as there wasn't much that was new to me here, but I was grateful that it wasn't all heavy and grim (300 pages of that would have killed me off).
Trigger warning: the language isn't inclusive, and the gendering binary (Endo isn't just a women's issue, and not all partners will be men). Also suicidal ideation, and fatphobia.
But still, glad it exists.
It needed a better edit - there are quite a few minor mistakes; and a lot of jumping from memoir to bullet point lists to advice, which makes it feel fragmented. To be fair, the author admits she wrote a lot of it dosed up on heavy painkillers which gave her brain fog - so this is an editorial issue.
The tone is light and suitable for younger readers, and perhaps those new to an endo diagnosis. I don't think I'm the best target, as there wasn't much that was new to me here, but I was grateful that it wasn't all heavy and grim (300 pages of that would have killed me off).
Trigger warning: the language isn't inclusive, and the gendering binary (Endo isn't just a women's issue, and not all partners will be men). Also suicidal ideation, and fatphobia.
But still, glad it exists.
February 18, 2021
I borrowed the wrong book from our local library. I assumed it was on the condition I am suffering from and borrowed it.
The writer wrote the book well and I could relate as a chronic diseases patient. Hence, I decided to finish the book for some additional knowledge even though it was not relevant to me. Halfway through, I was thinking it was a 'pity' the writer has a different condition as we would benefit a lot of someones could illustrate our situation so well. That's not a nice thought and I hope instead someone with our condition could have this ability to write as well, and write something similar.
The writer wrote the book well and I could relate as a chronic diseases patient. Hence, I decided to finish the book for some additional knowledge even though it was not relevant to me. Halfway through, I was thinking it was a 'pity' the writer has a different condition as we would benefit a lot of someones could illustrate our situation so well. That's not a nice thought and I hope instead someone with our condition could have this ability to write as well, and write something similar.
August 28, 2020
For someone recently diagnosed I found this book a little daunting. Though I appreciate that the author makes it clear everyone’s journey is unique and it affects women in individual ways. I did find parts helpful, and the fruitcake bit made me laugh out loud! It covers a wealth of information, really stands up for women suffering with this condition, and I think readers will find it a comfort and informative. Having said that, I wouldn’t recommend it for someone newly diagnosed who doesn’t want to find out how bad the condition could get.
This entire review has been hidden because of spoilers.
February 2, 2020
This book is essential for anyone living with Endometriosis- you will laugh and cry at the authors honest accounts featured in the book. I would also recommend that this book be read by the family or friends of a loved one with Endometriosis. This book articulated the struggles of the illness and will provide you with an insight into what it means to have Endometriosis, both mentally and physically.
July 19, 2020
I pretty much never give 5* reviews for books but this gets one. Anyone who suffers from endometriosis, is suspected of having it or loves someone who has it should immediately buy this book and read it cover to cover. It was so empowering to read the account of someone who’s not only been through what I’ve experienced, but who is knowledgeable about the subject and speaks with such humour and tenderness. A MUST READ. Every doctor should have one.
October 28, 2022
Really informative yet with moments of reassurance and giggles. As someone waiting for a diagnostic and treatment laparoscopy, I know this is the start of the long journey ahead. I am so glad I fell upon this book by chance at the library when I had. It’s made me more aware and equipped to face this horrible disease. Also, my new favourite way to refer to all endo fighters is ‘endo-sisters’. Thank you x1000 🦋
February 21, 2021
So much of what’s written in this book resonated with me. I’ve read numerous books about endometriosis but the combination of information, personal stories and dark humour makes ‘Private Parts’ stand out. I highly recommend this book for anyone struggling with endometriosis and importantly for their family and friends.
March 22, 2020
Quite simply put, this book has come into my life just when I needed it. If you’re dealing with pelvic pain, endometriosis or anything close, you need this book. Brilliantly optimistic and realistic all at once. Just the thing.
June 14, 2024
Do you have endometriosis? Does someone you care about have it? If so, please read this book. It is full of facts and first hand experience. It will make you laugh and cry. Best endo book I’ve read so far.
December 20, 2019
Such a valuable guide!
March 5, 2020
Extremely relatable, in fact freakishly so at times. Worth a read for anyone interested/ would like to know more about endometriosis.
May 23, 2023
Fantastic read!
May 26, 2023
super good! anyone who has a uterus or knows someone with a uterus should srsly read this book<3
July 16, 2024
If you don’t laugh you’ll cry.
A fabulous book for endo sufferers, with a perfect blend of sarcasm, humour and helpful tips and advice.
A fabulous book for endo sufferers, with a perfect blend of sarcasm, humour and helpful tips and advice.
May 21, 2021
A wealth of information from someone who lives with endo that I found both helpful and informative.
November 5, 2019
Fantastic for those with Endo or for those who want to understand it better.
June 17, 2021
Being so far in my endo journey I learnt a lot of this myself. There was some new information I learnt which came at the right time for me given my condition.
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