Chronic physical illnesses-such as lupus, Sjogren's syndrome, fibromyalgia, chronic fatigue syndrome, inflammatory bowel disorders, Lyme disease, interstitial cystitis, multiple sclerosis-take their toll on every aspect of a person's life. Though millions of people manage to cook, care for children, or work despite their disability, they do so with fatigue, pain, and the grinding uncertainty of living with chronic illness.A thoughtful exploration of this experience, A Delicate Balance provides both up-to-date practical advice and inspiration for the millions of Americans who struggle daily against chronic illness. From locating a suitable health-care provider and making sense of the powerful emotions that accompany chronic illness, to seeking accommodations under the Americans with Disabilities Act and applying for Social Security Disability Insurance, A Delicate Balance is informed by in-depth, personal interviews with patients, care providers, and family members. The result is a compassionate and immensely hopeful book for anyone touched by a chronic disease.
“To find appropriate treatments for our disease we must first give up looking for a cure.”
“I could have been and done anything before I got sick.”
“I feel like a type A personality trapped in a type B body.”
“Define ourselves as who we are, not what we do.”
Check out Janet Macrae’s book Therapeutic Touch
“Your fiance must be pretty special to take you ob with all your problems..no.. YOU must be pretty special if he can see past your illnesses and love you for who you are.”