Read this a long time ago, and again just now because it was featured in Will Schwabe's "Books for Living." What struck me most about this story, of a high school senior who lives for 15 months with a brain tumor, is how much the world has changed -- and how little cancer has. John Gunther is an author, well known in his time, who tells the story of his son Johnny's short life from the spring weekend he was diagnosed with a brain tumor to his death just over a year later, just after his high school graduation. It is the story of how hard he fought to live, and how hard his parents fought to make that possible.
Even though the book was written just after World War II, and the science of treatment has changed so much (mustard gas, X-rays, and an insane diet were the primary treatments for Johnny), the disease progress itself has changed very little. That's disheartening. Change the language from X-ray to radiation, eliminate mustard gas and replace it with some other unproven experimental treatment, and change the type of diet, and both the treatment and the disease progress will feel the same then as it does now.
But if cancer has changed very little, the way we live around it has changed so deeply, and that's what was more disheartening to me, today. Obviously this was a family of privilege, John Gunther an accomplished author and apparently Frances Gunther as well; they lived in Manhattan and had a home in the country and sent their child to elite prep schools. But there was an intellectual rigor and curiosity about Johnny that made me sad, in a way, because I just don't know if it exists any more. Johnny wrote letters to Einstein, spent most of his time conducting chemistry experiments and writing mathematical theories; he had composed a symphony at the age of 10, read academic texts out of curiosity, and talked of philosophy, science and religion in great detail. He was almost certainly an extraordinary young man.
But it also was a glimpse into American life before our obsession with social media, with the quick adrenaline surge of Facebook posts. His life was the opposite of superficial, it was filled with meaning and curiosity and engagement. And it is devastating, to see it cut off so abruptly, with so little warning; and in 2017, it is almost more devastating, to realize that none of us -- including me -- live that way any more. I would like to try to do better.