In The Great Pretender, Susannah Cahalan wishes to write about mental illness and the ways that the system of psychiatry is broken. Her starting point was her own experience, when a misdiagnosis of schizophrenia almost kept doctors from finding her rare brain condition.
This book had a lot of potential to describe the true failings of past and modern psychiatry through the lens of Rosenhan’s famous study where several healthy people had themselves committed to mental institutions to see how they would be perceived. Unfortunately, I had to stop about a quarter of the way through, because Cahalan’s antagonism to psychiatrists is so heavy as to be irresponsible. I know many of the studies she references, and I have done a lot of reading about anxiety, about the history of psychiatry and mental illness treatment, and about misdiagnosis (particular in women). So, particularly for the studies I was most familiar with, I can comfortably say that her conclusions are often speculative, she wildly simplifies many circumstances or studies, and she presents many generalizations as fact. Cahalan’s bias is understandable given her personal experience, but has no place in a text that presents itself as a nonfiction historical account and analysis.
Cahalan had an immense opportunity with this book to dig deep into the stigma against the mentally ill. She had a thesis hiding under the muck: the idea that once you are labeled as schizophrenic or manic depressive or mentally ill in some other way, it is nearly impossible to prove sanity given the bounds of current mental health understanding; the idea that once labeled, everything else you do is filtered through the lens of what is in your file, and the possibility of misdiagnosis is rarely considered. The treatment of people in hospitals, the relentless boredom of mental health facilities, and other such issues, are under-examined as well. It’s all lost under Cahalan’s speculation and bias that cast psychiatrists as villains.
Early in the book, Cahalan acknowledges that she was once critiqued for unfairly providing mental and physical illness as a dichotomy between unreal and real. And yet she continues to perpetuate the idea that psychiatrists are plotting and making it up as they go along, and that insanity and sanity are in a clear binary. For example, in telling her own story she says that her family fought against her being diagnosed with schizophrenia—they said that “I was acting crazy, sure, but I was not crazy.” She writes that, “It wasn’t me. Something had descended upon me in the same way that the flu or cancer or bad luck does.” (Italics are Cahalan's own in both cases.) This hit me hard as a prime example of the stigma against mental health that she later claims to be fighting against. My depression and anxiety aren’t me either, they are illnesses that I too cannot control. And she seems to ignore neurotransmitters completely—she mentions dopamine and other brain chemistry as new “terminology” without ever acknowledging that this is the physical basis for mental illness, dismissing a prime and necessary place for her to examine the link between mental and physical. At another point she writes: “When doctors diagnosed me with an organic illness (as in physical, in the body, real) as opposed to a psychiatric one (in the mind, and therefore somehow less real), it meant that I’d receive lifesaving treatment instead of being cordoned off from the rest of medicine.” (Again, italics are Cahalan's own.)
I have been misdiagnosed before. Several times, in fact, although this time in particular was terrifying. It wasn’t as deadly as in Cahalan's case, don’t get me wrong, and so I don't claim to grasp Cahalan’s pain. But last fall, I came down with lightheadedness, the feeling that I was short of breath, my heart pounding, and a fullness in my chest accompanied by sharp pains in my left ribs. When a doctor X-rayed my chest and found that my lungs were fine, his immediate next step was to tell me it was my anxiety. So I’ve been there. I have had a medical professional tell me that my illness was mental. I understand the pain and stress that comes from that, and the anger that follows—the anger knowing that a medical professional sent me home, advising me to stop taking my antidepressants and to not trust my psychiatrist without getting a second opinion from a primary care doctor. The anger knowing he did all that while I had pericarditis, which the cardiologist I would finally eventually see said was easily diagnosable, but which had gotten worse by the week, and if it had gone on unchecked, could have developed life-threatening complications.
I know that kind of anger, and I would be fascinated to read Cahalan’s memoir. But here, Cahalan has brought that anger into a troubling place. She is projecting her anger onto psychiatry, blaming it and its methods for its inability to diagnose definitively, something that is not limited to the world of mental illness. Some of her best writing in this book is around the stigma of being mentally ill, and yet she seems to lack the ability to turn that inward onto her own analysis and judgment of the field. She doesn’t interrogate why the mental health field is so behind other medical ones—the lack of funded research, the stigma itself, the prejudices against those commonly labeled insane (such as the disabled, women, people of color, queer people). In her analysis of the Rosenhan study she fails to consider that committing yourself into a hospital because you are hearing voices would inevitably lead doctors to trust your own reporting of hearing voices, and that a doctor releasing a person with the diagnosis of “schizophrenia in remission” makes a lot of sense when the patient says “I was hearing voices, I’m not any more,” and seems sane.
Overall, I’m deeply disappointed with this book and ultimately stopped reading it at page 140 because I did not want to feed my brain misinformation, and so felt I was getting frustrated without getting anything out of the text. Her bias against psychiatry and her bias, to be frank, against mental illness as something “unreal” were so pervasive that they inhibited my ability to enjoy the text. Once I realized how much that bias was also impacting the facts, this ceased to be a useful read.