When I first read this book, I was distraught, sad, grieving. I didn't even have my daughter's diagnosis at the time, but I knew it was coming. I was desperately searching for something, anything, that would validate how I was feeling, and reassure me that everything would turn out OK. (And at the time, what OK meant to me was completely different than what OK is now). And then this book came along, knocked me on my ass, and held me so tenderly. This book was the single piece of hope I needed at that time. It validated everything I was feeling - guilt, sadness, grief, loneliness. And then it gave me reassurance that I wasn't alone. So many parents before me felt exactly what I felt. And not only that... they were thriving. They had joy. They had purpose and meaning. And it gave me hope that I would have that one day too.
2 years later, I am rereading this book, and it's hitting me just slightly different this time. Again, I feel validated that everything I went through was normal, and I wasn't a bad mom for feeling those thoughts. But now I look back and see that I too, am the other parents in this book. My family is thriving. My daughter brings me an immense amount of joy. Yes, she has tough days that are draining for all of us, but she brings me so much fulfillment, it makes those days easy to forget. I have a renewed purpose, and I have skills that I've borrowed from this book to help cope when the grief makes an unwanted appearance.
When I have a friend who is going through a similar experience with their kid, this is the first book that I recommend they read. Because they are not alone, and they will one day be full of joy and love, and be a part of the secret society.