I did not love this book as much as I wanted to love it. There was some poignancy, but it wasn't until the very end that I started connecting with the book. I didn't care much about Clarke's life - her life as a journalist, medical student, or doctor. I think it's because I thought the book was going to be about hospice and palliative care, and dying, but it was only half of the book. By the time she got that far, I was kind of annoyed because it took so long to get there.
I wanted to read this book because the cover was so beautiful and because I think I might still have been looking for some answers for myself. My mom was placed in hospice as soon as she got her diagnosis. She was in stage four cancer, and we were all in shock. When she heard her only option was hospice, she was in denial that she was so far gone. Like many patients described by Clarke, the word hospice automatically indicates to them that they are dying, and my mom thought the same. She wasn't ready to die. But when they arrived and set up her hospital bed and filled her room with hospital equipment, she gave up the fight. We had three weeks together, and I was with her when she took her last breath. But I think I needed more, and I didn't know that until I picked up this book.
She was in great pain that last morning. My dad asked me to give her morphine. I didn't know how much. I called hospice for advice. They told me to give her more than what was written in the instructions. She didn't have the strength to open her eyes, but as soon as it touched her lips, she sucked it down with all the might of a twenty-year old. It was the last thing she did. She soon stopped breathing.
Before her last breath, my dad had asked me to call an ambulance. Hospice had told me to call them first when that day came. I did, and they talked me out of calling the ambulance. It had something to do with bureaucratic paperwork. When he asked me a second time, I could see his desperation, and I wasn't willing to listen to hospice. He'd placed a tissue under her nose, and it wasn't moving. She wasn't breathing. I called 9-1-1, and the operator dispatched the ambulance but basically hung up on me after telling me she couldn't talk me through CPR because of my mom's DNR order (do not resuscitate). I felt like she'd punched me hard in the gut. Suddenly, I couldn't breathe either. I knew about the DNR. I'd helped her file it. I had wanted one for me too. But then when the time came for it, I felt helpless and empty. Since then, I have reconsidered if I want one for myself. I'm undecided.
Aside from what happened her last day, we didn't really have a great experience with hospice, even though we'd selected the service that had the highest ratings and had come well recommended by my friends. I've been carrying a lot of anger toward hospice ever since. I know it's illogical, but I've always felt like I was the one who delivered my mother to her death, that I basically gave her an overdose of morphine. Since then, I've been trying to reframe it as having given her a painless way out. I believe in the right to life, in terms of euthanasia, which is illegal in Texas. But because she did not choose to die, I've been feeling so guilty for having killed her. I know it was the cancer that killed her, but...I've spent a lot of time in counseling to work this out. So I think I've been reading books like this, books about dying, for some more answers or maybe for some absolution.
I did get a little closer to that from reading the book. It helped me reflect on whether my mom left this world feeling like she had lived a good life. I hope she did. I don't know though...she suffered a lot all throughout her life - the Japanese occupation, the Korean War, poverty, emigration, miscarriages, racism, xenophobia, my dad (he was a great man but a really difficult husband), and these are just the highlights. But she had a devoted family, a church that she loved, and so much goodness. So I hope she left feeling that way.
The book reminded me that we all die. It's not something I think about regularly, but it was a good prompt to think about how well I'm living. I'm certain my mom has forgiven me, and maybe she might even be thankful for that last dose. I'll never know. I know, though, that she gave me her blessing for the decisions I've made for myself and that she was proud of me. I know she loved me deeply. I hope she knows how much I love her still.
So I didn't love this book, but it did help me to work through some residual guilt, a few questions I needed to think over, and possibly get me closer to accepting that she's really, really gone (in terms of the stages of grief - I've gone through all five stages in different forms, including acceptance, but I still need this final stage - at least I think it might be final...). At the very least, I got a very good cathartic cry out of it, and the author also gives some very sound advice for legal considerations that everyone should think about for their own lives. It's based on UK law, but everything she talks about (advanced directives, power of attorney, etc.) exists in the US as well, and I'm guessing many countries have equivalents. For these reasons, I am upgrading this book from a 2.5 to a 4.