BrOKen: Living with EDS and other Chronic Conditions

by Marcia Brock, Cassandra A. Campbell

Broken is an autobiography depicting elements of the author's experiences of living with chronic illnesses. Marcia Brock has lived with hEDS, Raynaud's Syndrome, Lupus and has survived cancer several times. Cassandra A Campbell has been living with hEDS and Fibromyalgia. Together they deliver workshops for Ehlers-Danlos.org. Eight per cent of net sales proceeds is donated to this charity.

167 pages, Kindle Edition

Published May 28, 2020

Reviews

[Hanna Kylin · Rating 1 out of 5]

I REALLY wanted to love this book and give it high praise, instead, I find it a shallow, myopic marketing pamphlet for the authors. As a hEDS sufferer, I was looking for an informative book with intersectional perspectives, firmly grounded in science, reflected in personal experience. That is NOT what this is. Instead it's navel gazing, embarrassingly badly written, swamped with repetition, and worst of all, preaching pseudoscientific treatments of medical issues. This is inexcusable as it may put people at severe medical risk. Yes, the general medical system is deeply flawed and severely lacking in knowledge of, and effective treatments for EDS sufferers, the solution is however not to have your aura photographed and drink diluted tea. Educate yourself, make sure the references are founded in best practise scientific research, and find a doctor who actually does have competence to treat you. It's painstakingly hard work, but sadly the only option. We deserve better.

[Paige Hudson-Jones · Rating 5 out of 5]

Descriptive, helpful and inspiring. This book and the pure honesty it holds hit deep with me, a familiarity that has inspired me to pursue the correct help for my condition. Also read by my family who now have a better understanding of what I am going through and can relate it all to the words of this book.
Would highly recommend for anyone suffering with chronic illness or for anyone who knows someone dealing with one.

[Grace B. · Rating 2 out of 5]

I think I’d get depressed before I get to the end of this book.