Lee describes one of the cruelest aspects of schizophrenia in a way that shook me and had me saying, there's a name for it:
Alogia, for example: a lack or poverty of speech, one of the so-called negative symptoms of my illness. I’ve experienced this my whole life without having a name for it. This has only grown more pronounced for me, to the point that engaging verbally with others, beyond my partner, is grueling. With her I can prattle on so she forgets, until we’re in the company of others, that around others, I barely speak at all.
When I used to attend, with my partner’s friends, doughnut Sundays, I stayed silent, noticeably silent, embarrassingly silent, during conversation. Her friends didn’t know that these occasions were often the only social engagement I’d had in a week’s time, if not longer—and that this absence of social engagement isn’t accidental, but purposeful, one of the only ways I can find to ameliorate my condition, despite the tremendous loneliness that accompanies such social isolation.
My silence has always been a problem. Others have attributed negative intent on my behalf, assuming my silence is selfish, that I am purposely keeping back my thoughts for myself, when in reality, I am often too afraid to speak, not sure when and where to insert myself into the conversation. Like a novice trying to surf, my movements are uncoordinated—I’m not quite sure when to throw myself up onto my elbows, push and stand, and so instead I lie passively, while the waves of conversation lap and tide, and I miss every appropriate window to enter midstream.
More than simple fear, I oftentimes am simply unable to verbalize—a symptom of my illness that has become more pronounced. Being robbed of the ability to speak means lacking the social graces of small talk. It means missing out on connection. It means being unable to voice inner objections.
The negative and cognitive symptoms of my illness are what are so disabling. These symptoms, the ones no one talks about, recognizes, or knows, are the ones that render me nearly nonfunctional so frequently. The positive symptoms—the hallucinations, the delusions—are what keep me terrified of what could be.