5 AMAZING BRIGHT SHINING STARS
I always experience trepidation when I initiate a request for a Goodreads Giveaway, particularly in the memoir category. I feel conflicted about disliking someone's account of their life experiences. What if I find it boring? What if I don't like the individual or their choices? What if I feel a moral conflict with their actions or thoughts? Thus, I avoid some that may in fact be very interesting stories. This autobiography is not one of those! When I saw that the focus of the memoir dealt with James Tate Hill's challenges resulting from being legally blind and navigating school and career, I was fully committed. Hill is very honest in his account which both delivered insight into the life of those physically challenged.
A personal note, I am handicapped after a number of severe auto accidents (not my fault) caused irreversible damage to my spine and major joints. I've had a few surgeries with limited success, far less than I was led to believe would result. I now function on a limited basis with the help of monthly visits to the pain doctor. More recently, the last car accident left me with a traumatic brain injury, further removing my activities options and enjoyment of tasks from which I derived pleasure. It is a life, I never expected having always enjoyed a diverse number of cerebral and physical activities and a challenging career which I had enjoyed. What hurt most, the barrier my challenges created with those I was close to. Many people didn't like the fact that I could not longer participate in activities we had once shared. Furthermore, romantic interests didn't find my new, quiet life something of interest, particularly due to the prognosis of increased physical challenges in the future. Thus, Hill, who fears these very things as well, works to make his challenges seem insignificant and understates them.
Hill reveals his deep, personal struggles from the age of sixteen when his vision quickly fades as it impacts his social life, his adaptations to learning differently and his career options. His living situation reveal added challenges to which he must adapt but even more daunting for him are his dating life challenges. In a world of flirtation filled with facial and body language cues, how can he ascertain a woman's interest in him? When and to what degree should he share things about himself, such as the inability to drive or even navigate areas other than the campus alone?
We travel with him as he tries a variety of ways to cover his inabilities. His overcompensation in relationships, so that his negatives are overshadowed by his upbeat responses to them. We also follow him, as he examines his feelings of being disingenuous. Is he a fraud? Could he have done things different and managed to keep several relationships from disintegrating? One gets the sense even in the retelling that the worst of what took place is not revealed. That these parts remain to painful. They are hidden and to tender to expose publicly. I understand, oh, yes, I do.
Hill's experience brings about catharsis to his readers, who have had some form of medical challenge. In one relationship, when his partner becomes ill, he hopes that the person will develop more empathy toward him (there is a certain 5 letter word that he never uses to describe her) but instead the individual choses to terminate their connection. Don't get me wrong, this was not a depressing story, not at all. Despite revealing his deepest fears, Hill manages to convey things without self-pity. Hill has had a brilliant career and is a published author within the short-story and novel genres. He is also an academic. He is creative, humorous and a terrific storyteller.
This was a story that I thought about when I couldn't sit down to read it. My review is my takeaway from the eyes of someone, who faces disability every moment as does he. The challenge is focusing on what I can do, not what I no longer can not. Hill has embodied that in his account and he fully comes to acceptance 14 years later, when he realizes that his denial doesn't change the circumstances.
I read a review on this site, where a reader naively asks why he makes such a big deal about hiding his handicap. Hill addresses this a number of times and it isn't just one reason. Some people will dismiss you because of how your challenge impacts them (I've definitely experienced this, too). Others may treat you differently and even treat you as mentally deficient as well (check). Others may be uncomfortable with your challenge (um hmm). And there will be a few that will treat you like you still have value as a person and adjust their expectations when needed (in Hill's case, they will drive you to a restaurant for dinner and read the menu without making a big deal of it), refreshing and uncommon. Perhaps, that reviewer doesn't see disability as a problem but in this real world, a large number people are often seeking self-gratification and have little interest in being there for others.
This isn't just my personal experience, either. I've seen this repeatedly as I walked the road with three different close friends, who died quite young from cancer (34, 32 and 52). My closest friend, that I met in a church sponsored support group for those suffering illness, was always thanking me when she asked if she could remove her wig (she had lost all her hair before we met). I was always hurt by her comment of appreciation because of what this conveyed that her comfort was secondary to mine.
Her needs were often overlooked to make others comfortable. This sweet, kind and funny woman told me that all but one friend, a former co-worker had abandoned her (this was including her church friends). Janice was one of the dearest persons in my life and one of the most loving I've ever met. She suffered horribly but I believe that pain of being tossed aside and forgotten hurt just as much as the cancer that ate away at her.
Thank you James for sharing your story. You are so brave. You have overcome not only the physical issues you've suffered but also the social construct which imprisoned you for so long. I believe the world is a better place with your experiences having been shared.
I am grateful to Goodreads, the Publisher and the author, James Tate Hill for providing me the opportunity to read this story in exchange for my honest opinion.
This book is now on sale.