Part two of the number 1 bestselling book A Girl Behind Dark Glasses. Jessica returns home after four years in hospital to a world changed beyond recognition. Her friends have grown up and gone to university, her baby sister is now 16. Everyone has moved on, but her battle with the M.E. Monster is far from over. Jessica faces new challenges daily but she wants to experience life as a young adult, and refuses to let her M.E keep her in hospital for years again. Jessica wants to show the world that she is more than what they see... and this time they will see her.
Jessica Taylor-Bearman was born in March 1991 in Kent, where she attended Rochester Grammar School for Girls.
At the age of 15, she became acutely unwell with an illness called Myalgic Encephalomyletis (M.E). She was continously hospitalised from 2006-2010, suffering with the most severe form of the condition. This included her being bedridden, unable to move, speak, eat and more.
She wrote in her mind, and when finally able to speak again, she began to write through her audio diary 'Bug'.
Despite still being severely unwell in hospital, Jessica continued to develop ideas, from creating a new method of painting, to starting a charity for other youngsters in her position.All her pieces have been exhibited since then.
Since she left hospital, Jessica's journey with severe ME has continued. She fulfilled her dream of becoming an author, she writes a blog, which you can see by visiting her website www.jaytay.co.uk.
Jessica has also featured in a film called Unrest. She advocates for voiceless people.
We call it M.E. because most of us have only heard it being spoken about vaguely or read about it in a paper or magazine. We call it M.E. because most of us don’t know how to spell its name, let alone pronounce it. Its name is Myalgic Encephalomyelitis or as Jessica Taylor-Bearman calls it “the M.E. Monster”.
M.E. is a neurological disease that is invisible and still widely misunderstood in the medical world. It is sometimes called Chronic Fatigue Syndrome (CFS) and in the eighties was bandied about as “yuppie flu”. There is no biomedical treatment for M.E.
“A Girl in One Room” is the sequel to the bestselling, award-winning memoir “A Girl Behind Dark Glasses” (2018) in which the author describes how in 2006 she is transformed from a happy, healthy fifteen-year-old to a prisoner of the severest form of this chronic illness.
She loses her voice and all ability to function, is completely bedridden and admitted into hospital for four continuous years: “... tubes were inserted to keep me alive and I faced a doctor who couldn’t pronounce the name of the damn condition, let alone treat it”.
Here, disabled and bed bound ninety-nine percent of the time — her symptoms often incapacitating her — Jessica returns home from hospital and faces new challenges. Although parts of her illness have improved, her health can fluctuate severely within a day and she can barely leave the confines of her room.
As I read the book I found myself quietly celebrating every time Jessica accomplished a goal she set herself: sitting in a chair for five seconds; standing up; being pushed around a shopping centre on an ambulance trolley; creating a song; hanging a bauble on a Christmas tree; founding her charity Share A Star which received a National Award; attending her brother Tom’s wedding; meeting Samuel Bearman, the man of her dreams, on a dating app, and marrying him. Jessica and Samuel welcomed Felicity, a beautiful daughter, into their family in 2019.
Jessica Taylor-Bearman writes with clarity, insight, unflinching honesty and without an iota of self-pity. “A Girl in One Room” is a testament to her patience, perseverance and passion for life in addition to the wonderful support network, including a large online community, by which she is surrounded.
I can’t think of anyone better to speak for Myalgic Encephalomyelitis sufferers across the world. She writes for “every person who hasn’t felt heard or represented, those who have sadly lost their lives to the disease and for those who are being institutionalised simply for becoming ill”. Everybody should read this book.
A huge thank you to @NetGalley and @HashtagPress for an ARC in exchange for an honest review.
I remember when my mum came into my room to tell me Jessica Taylor from UNREST had just gotten married and walked down the aisle. We both sat and watched the video clip together and felt overwhelmed with emotion for this person we didn’t know personally but who’s story we’d followed and was all too relatable.
Fast forward a few years, and it feels like a full circle to read this book and hear Jessica’s experience of the wedding and everything that came before it. It also feels surreal that the same person who walked down the aisle not only is now an amazing mum, but continues to write and share her story and awareness.
As two writers with M.E, I know the ridiculousness of how much energy it takes to write a book. I’m so proud of you Jessica and this book is a testament to your light and resilience, as well as your ability to pause and listen.
I think this book especially highlights the intricacies of balancing joyful moments and payback, as well as family and relationship dynamics of caring for loved ones. The unwavering love Jessica and Samuel share for one another, finding each other as they were - not waiting for when they were “better” - is such a beautiful example of love in the best possible way. Thank you for giving me that example and proof Jay, this book and you are amazing. Can’t wait for more!
The author is Jessica Taylor Bearman whose first book A Girl in Dark Glasses told the story of four years spent in hospital fighting and very nearly succumbing to the most vicious form of the disease. Her follow up is called 'A Girl in One Room' and it takes up her story in 2010 as she goes home for her first family Christmas in four years. It is a story of courage and humour that is genuinely uplifting whilst also being harrowing, upsetting and making you angry when you read how badly she was treated by many health professionals over the years. As well as being the founder of Share a Star and a finalist in the Pride Of Britain awards Jessica is simply incredibly engaging company as you read through her story. On many occasions you will be moved to tears as I was but you will also laugh and smile as she does frequently. Jessica never allows herself to succumb to thoughts of 'Poor me' for very long and you are left with total admiration for her fighting spirit as she faces a situation that would break lesser people. If you don't read another autobiography this year you MUST read this one. It is inspiring, brilliant and full of what it means to be human.
Part two of the number 1 bestselling book A Girl Behind Dark Glasses. Jessica returns home after four years in hospital to a world changed beyond recognition. Her friends have grown up and gone to university, her baby sister is now 16. Everyone has moved on, but her battle with the M.E. Monster is far from over. Jessica continues to face new challenges daily but wants to start experiencing life as a young adult; rather than being stuck in a hospital bed for years again. Her journey is far from easy, seemingly with more downs than ups but she starts to set herself goals, which until very recently where unachievable, she rises to the challenges and achieves these goals. A moving memoir of someone who wants to show the world that she is more than they see. I would recommend this book; it is difficult to read at times because of the contact and trigger points. I would like to thank Netgalley for an advance review copy of A Girl in One Room in return for an honest review.
This is a continuation of Jessica's story of what It’s like to live with severe ME/CFS. Her determination and optimism are incredible, and as someone with mild CFS, it makes me feel bad for grieving my own limitations when it could be so much worse. It's also scary - showing where I could end up at any time if I'm not careful. She shows how difficult and important it is to accept and live within the limitations of your body, but to at the same time find meaning and purpose, as she does in her small goals (to sit on her bed, to walk down the aisle at her wedding) alongside her charity work to help the families of chronically ill people. It's unbelievable that the disease is still treated by some doctors and psychologists as entirely mental - fear, laziness - when those who have it are working so hard to keep some semblance of a life.
A Girl In One Room is the follow-up to the bestseller A Girl Behind Dark Glasses, describing Jessica Bearman-Taylor’s brave battle throughout her teens and young adulthood with a severe form of M.E./CFS (Myalgic Encephalomyelitis). Or, as Jessica calls it, the M.E. Monster.
Jessica came down with M.E. in 2006 at the age of 15. M.E. is a disabling and complex neurological invisible illness with no known cause and is largely misunderstood by healthcare providers.
After reading A Girl Behind Dark Glasses, which documents Jessica’s years of living in a hospital too sick to move and being kept alive by tubes, I was keen to learn about how Jessica was doing now.
Still bedbound, Jessica is, fortunately, able to return home to her family, but finds everyone has moved on without her: her friends are at university, her baby sister has grown up, and her brother is getting married.
Jessica wants to experience life like any other young adult and sets herself new challenges, such as sitting up in a chair and standing up; everything we all take for granted every day. These goals used to be very much unachievable for Jessica, but she steps up to the challenge and proves there is a light at the end of the tunnel.
I also have M.E., albeit mildly, so the book was difficult to read at times. Jessica is an excellent writer who shares her inner-most thoughts in a raw, honest way; anyone with a chronic health condition will relate to Jessica. It was horrible seeing her struggle, but every time she accomplished a goal, I was cheering her on; I knew she could do it! She has experienced so much but still comes across as a positive person and a role model to so many with M.E./CFS.
I would recommend reading this book; it is a must-read, inspirational, and full of hope!
A Girl In One Room was just as impressive for me as Jessica Taylor-Bearman's debut best-selling novel, A Girl Behind Dark Glasses. While her first novel was about the start of her brave battle with the 'M.E. Monster' and the subsequent four-years she spent in hospital, this novel told of the following years, once she’d left hospital. For me, this book was just as powerful and hard-hitting as her first book. I was brought to tears countless times while reading this, just like with the first one, but it wasn't all because of sadness at the tortures the M.E. Monster put her through; this novel definitely had a lot more light moments, where Jessica reached so many personal goals. I got choked up with every success and I particularly loved the chapters about #ForTheFirstTime.
Jessica is such an inspirational woman, and not just for retelling her journey which I know couldn’t have all been easy to recall. Even though I follow Jessica's blog - A World of One Room - I haven't followed it from the beginning so I was unaware of how much she has done for the M.E. community.
The end of this book hit me hard. It had me in tears. Mostly because of the way it ends, and that final sentence - wow!, it gave me goosebumps – but also because of personal reasons. Having just come out of a pretty brutal M.E. crash, which stopped me from finishing the book almost two weeks ago only 40 pages from the end, finally finishing this book was very emotional for me.
I think everyone should read Jessica's books. I will never stop recommending them! They are the perfect way to raise awareness for Myalgic Encephalomyelitis. They are my favourite nonfiction books ever.
I really hope this won't be the last book Jessica releases. I personally would love a 3rd novel about her journey since the end of this 2nd one, about her pregnancy and being a chronically ill mum. Whether she writes another or not, with these 2 books alone she has done a tremendous job of giving a voice to the Millions Missing.
A Girl In One Room is the compelling follow-up to Jessica Taylor-Bearman's bestselling book, A Girl Behind Dark Glasses. This second installment follows Jessica's return home after spending four years in hospital, only to find that her world has transformed in her absence. Her friends have moved on to university, her baby sister has blossomed into a teenager, and everything seems different. However, Jessica's battle with M.E. (myalgic encephalomyelitis) is far from over, and she faces new challenges every day.
Despite this, Jessica is determined to live life as a young adult and refuses to be confined to a hospital for years again. This book chronicles her journey as she fights to show the world that she is more than her illness and is determined to be seen for who she truly is. A Girl In One Room is a powerful and inspiring story of perseverance and resilience in the face of adversity.
The main character in this story is not only inspiring and courageous but also a symbol of resilience and bravery. Throughout the narrative, they face numerous challenges and obstacles, yet they never falter in their determination to overcome them. Their unwavering strength and courage serve as an inspiration to those around them, inspiring others to stand up in the face of adversity and to never give up on their dreams. Their bravery, in the face of daunting odds, is a testament to their indomitable spirit and unwavering commitment to their values and beliefs. The main character's courage is not just a character trait, but a powerful force that drives the narrative forward, making them an unforgettable protagonist that leaves a lasting impact on readers. Their inspiring journey serves as a reminder to never underestimate the power of courage and resilience in the face of life's challenges.
I reviewed this book as part of GeekDis 2022 an event discussing disability representation in pop culture from the perspective of the disabled and neurodivergent community.
Content warnings:
At the end of A Girl Behind Dark Glasses, Jessica’s goal of leaving the hospital had been reached, although she had been left reeling when doctors had given her the shocking news that she had severe osteoporosis. In A Girl in One Room, Jessica’s uphill battle is still not over. While she is now at home with her family, her severe Myalgic encephalomyelitis (ME) prevents her from being able to move or sit up. This book takes us from the 2010 to 2017 and takes us through Jessica’s journey to take back control from the ME monster with the help of her care team and the support of her family.
It is a slow, meticulous process with multiple setbacks as Jessica works towards goals such as being able to sit up in bed, and sit up in a chair. Gradually moving on to working towards more difficult goals that are not just more important for her long term health, but also for emotional reasons, such as attending her brother’s wedding. You’ll find yourself cheering along, crying when she has a setback and being thankful for the online ME and chronic illness community that supported Jessica as she works towards each goal.
I remember getting to the year in the book when I developed ME and realising how much Jessica had already been through by that point, how I had no idea about ME or any of Jessica’s social media campaigns. I was disabled before I developed ME and active in the online community, and yet was completely oblivious about ME. The reason I mention all this is to point out how little is known about ME within our own community. It’s becoming more well known now through the efforts of advocates like Jessica and Jennifer Brea who created and starred in the film Unrest (which Jessica also took part in and her contribution is included in this book). Even with their work, and the awareness that has come from covid and Long-Covid, ME awareness still has a long way to go.
A Girl in One Room includes the story of Jessica meeting her husband on an online dating site. The awkwardness of her having to send her dad to pick him up from the station in her stead, so he met her dad before even meeting her in person. Jessica’s worries will be relatable to everyone who is disabled, who worries about whether someone will love them for who they are or judge them for illnesses beyond their control. I am a complete sucker for romance, and reading about a real life love story is always beautiful, this is no exception.
Once again Jessica provides an important account of what it is like to live with severe ME, never wavering from the difficult moments. Jessica has another book on the way, a third book to finish off her memoir trilogy, and I’m looking forward to reading it.
The way Jessica writes, you feel like you know her, like she’s one of your friends talking to you. It’s kind of weird to put the book down and realise that while I know all her thoughts intimately, she doesn’t actually know me the reader :(
I read her first book years ago through NetGalley and just stumbled across this second one now - and imagine my utter delight at seeing a quote from my review of her first book at the start of this one!
To say I “enjoyed” this would be the wrong word, but I was engrossed by it and read it almost all in one go. Beyond her books I don’t know much of ME (though I warrant still more than some of the people tasked to care for her!) and it’s something which thankfully for me is so difficult to fathom - imagine using up all your energy just to sit up, to roll over in bed, to touch your face, things we do without even thinking of it! It’s way more than just being fatigued. I was tired walking home yesterday after being on my feet all day at work, but I still managed to put one foot after the other without needing to stop.
This book has the loveliest of endings, and I see there is also a third one! I must find that!
A Girl in One Room, by Jessica Taylor-Bearman follows the incredible Jessica and her life with M.E. It's an incredible book following her awe-inspiring story. This next book highlights how much pain she goes through yet manages to stay upbeat and positive throughout. I really enjoyed this novel and highly recommend for anyone to understand how autoimmune diseases can affect peoples life.
Jessica continues her incredible story of living with myalgic encephalomyelitis. Her family help her with every day tasks. And standing up is a major goal to work toward. Jessica works toward one impossible goal after another. Her courage to keep trying despite the odds are inspiring. I highly recommend this book to anyone struggling to overcome.
Jessica’s second book is as impressive as her first one. I could not put it down. Jessica is a role model for the ME community. Despite her horrendous experiences dealing with her illness, she never gives up and is quite upbeat. She is courageous, and writing such a quality book whilst ill, says a lot about her determination and positive mindset.
This book was so amazing. When i first picked it up I thought it was fiction before realising it was an amazing truthful autobiography about something I had never even heard of. This book was so full of hope and Jessica's desire to live that it made me cry in places. Ten stars. P.s I loved this and I am only 12.
Such an incredibly inspiring memoir! Couldn't put it down; read the first 200 pages in a single sitting (despite as an adult not being the intended audience for this YA book). It's an honest portrayal of a devastating chronic illness, but the memoir is still uplifting and hopeful - Jessica's resilience is awe-inspiring and the familial relationships described in the book are beautiful. Would warmly recommend to any young person experiencing chronic illness in particular.