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¿Cómo Conocerte?: La demencia al Final de las Vida
Cuidar a alguien con demencia presenta desafíos diferentes que cuidar a personas con otros problemas de salud. No "cumple con las reglas" que significan acercarse a la muerte por enfermedad o vejez. Este folleto describe los problemas y el progreso que probablemente seguirá una persona con demencia. El objetivo de este folleto es proporcionar información sobre el acercamiento al final de la vida a aquellas personas, familiares y otras personas importantes que se preocupan y toman decisiones por alguien con demencia. Se le daría a la familia al ingresar al programa de Cuidados Paliativos o a cualquier familia que tenga que abordar el dilema de comer y no comer. Al igual que sus folletos complementarios, Gone From My Sight, A Time To Live, The Eleventh Hour y My Friend, I Care, ¿cómo te conozco? Está escrito de una manera simple y directa, pero amable.
18 pages, Kindle Edition
Published April 4, 2020
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Displaying 1 of 1 review
September 12, 2023
I have no affiliation with Ms Karnes, her hospice materials, or any hospice.
I do have a family member with cancer that has been under five seasons of treatment to reduce the cancer and prolong quality and life. I am the caregiver at home; and I also live in the hospital room advocating the entire time. I affirm Ms. Karnes’ statement that “Knowledge Reduces Fear”.
When my loved one was first diagnosed, 14 years ago, I divinely came across Ms Karnes’ “Gone From My Sight”, aka “The Little Blue Booklet”. As soon as I finished that, I ordered a set of her booklets and book “The Final Act of Living”. I devoured them, marking them all up. I ordered additional sets, and in other languages for friends.
There is such a fear about the unknowns of dying! Why let that control you, when you can be knowledgable, forewarned, forearmed, and peaceful for this natural exit from life?
By twenty-five years of observation, I ‘ve noticed that physicians who are trying to fix patients, generally have no knowledge of the natural steps a body goes through to leave this earth. So, when THEY finally realize they can’t fix someone, and give a prognosis of so many months, weeks, or days, they are always off, by a long-shot. In our area, with MANY specialists and teaching hospitals, the timeline is way overestimated. In actuality, almost without exception, the people have passed at only one-third the time estimated. This really angers me. The dying person, and their family members, no one was prepared for the moment of death to happen “that early”. Important conversations never happened because people were waiting until later, which never came.
These materials lay it out in simple, logical & biological order of progression. There is no need to be caught off guard by the timing of the passing of a person with disease, or old age. One can make the effort to get important business taken care of.
“The Final Act of Living” is helpful, in contrast, to acknowledge the eventual death, then encourage everyone to LIVE OUT YOUR DAYS. To LIVE right up to the last breath! To “take care of business” so that there’s NO regrets. A friend will pick up a set from me, this week, to work on just that.
I cannot recommend these materials highly enough. Just behind the Bible in importance, I’d rate these materials as a “10”.
I do have a family member with cancer that has been under five seasons of treatment to reduce the cancer and prolong quality and life. I am the caregiver at home; and I also live in the hospital room advocating the entire time. I affirm Ms. Karnes’ statement that “Knowledge Reduces Fear”.
When my loved one was first diagnosed, 14 years ago, I divinely came across Ms Karnes’ “Gone From My Sight”, aka “The Little Blue Booklet”. As soon as I finished that, I ordered a set of her booklets and book “The Final Act of Living”. I devoured them, marking them all up. I ordered additional sets, and in other languages for friends.
There is such a fear about the unknowns of dying! Why let that control you, when you can be knowledgable, forewarned, forearmed, and peaceful for this natural exit from life?
By twenty-five years of observation, I ‘ve noticed that physicians who are trying to fix patients, generally have no knowledge of the natural steps a body goes through to leave this earth. So, when THEY finally realize they can’t fix someone, and give a prognosis of so many months, weeks, or days, they are always off, by a long-shot. In our area, with MANY specialists and teaching hospitals, the timeline is way overestimated. In actuality, almost without exception, the people have passed at only one-third the time estimated. This really angers me. The dying person, and their family members, no one was prepared for the moment of death to happen “that early”. Important conversations never happened because people were waiting until later, which never came.
These materials lay it out in simple, logical & biological order of progression. There is no need to be caught off guard by the timing of the passing of a person with disease, or old age. One can make the effort to get important business taken care of.
“The Final Act of Living” is helpful, in contrast, to acknowledge the eventual death, then encourage everyone to LIVE OUT YOUR DAYS. To LIVE right up to the last breath! To “take care of business” so that there’s NO regrets. A friend will pick up a set from me, this week, to work on just that.
I cannot recommend these materials highly enough. Just behind the Bible in importance, I’d rate these materials as a “10”.
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