Part memoir, part history book, part solution oriented Haider Warraich explores the nature of pain and how we have misunderstood and mistreated it within the Western Biomedical industrial complex.
here's my notes:
Suffering is a uniquely human experience more in the mind than body as theorized by Descartes where as pain was seen as in the body.
Acute pain comes from body up to the mind where as chronic pain is seen as coming from the mind and finding a home to resonate in the body or phantom body part.
Mind- body dichotomy is false tho.
Fish & invertebrates are shown to feel pain not just nociception (awareness of body and threats to it) which may indicate consciousness because it is connected to learning.
Pain is deeply personal but also serves a social purpose in how it is shared or repressed. Pain is also felt very differently based on its context.
Pain turns into suffering when there is no answer for why, it is chronic, or connected to something dire.
Chronic pain became increasingly epidemic as life spans lengthened. Now ~1/5 people live with it world wide.
Despite how common it is it is still not fully understood or prioritized in its study. This often leads to doctors dismissing it especially along racialized and gendered lines.
Chronic pain likely more entwined with memory process (painful moments remembered much more clearly, trauma flash backs) than acute pain which lights up different parts of the brain.
Opium crisis: sprung out of the chronic pain crisis in the US in the 1990s but humans relationship with poppys & opiates is perhaps as old as civilization and frequently follows a similar trajectory from miracle medicine to addiction to death.
Opiates likely make chronic pain worse over time not better and are only helpful for immediate severe acute pain but have been systemically over and misprescribed for profit motives by the medical industrial complex and specifically pushed for by Purdue.
Civil War was the source of the first opiate addiction crisis in the US, and had rippled thru culture in waves since then switching from smoking to injection and morphine to heroin based on what is considered least tainted by poor peoples and people of colors usage of these drugs.
Current opiate crisis with fentanyl coming from China is almost an ironic inverse of the first Opium War in which Brittain created an opium addiction crisis in Chinese population to have an in for spice and tea trade creating an abundance of cheap opium with slave labor to sell first cheaply then more expensively once folks got hooked while banning the sale of it back home.
Industrialization changed how people related to their bodies and therefore their pain seeing them as machines and pain as a sign they needed to oil their gears (self-care discourse of late) rather than stopping to listen to what the pain is trying to communicate and shifting the life styles and systems that make these unsustainable demands on our bodies. It also shifted how people related to their pain as more than just a bodily experience but perhaps a spiritual and emotional one which would be witnessed and held in community the medicalization of pain also led to isolation of those who have to bear it.
Patent medicines gave way to pharmaceutical oligopoly in WW2 as penicillin needed to be mass produced, rewarded companies with large market control and made medicine gate kept by doctors who could prescribe it taking away the ability to self-medicate as prior generations had. Pharmaceutical companies however have profit motives and so do the doctors they work with which has led to the current problems we have with our medical system.
Large scale use of oxyconton came from hospice movement which was seeking to remedy end of life pain in part because Sicily Saunders (head of the movement) was Catholic and opposed to death with dignity and asked for a longer lasting opiate and came up with the idea of giving it before pain set in to avoid pain ever being felt- hospice wasn't profitable enough alone so this use of opiates got peddled to pain management at large in the US even tho its lax use initially was motivated by not worrying about addiction because death was around the corner an entirely different context.
When concerns started getting voiced about oxyconton and other prescription opiates being widely given to non- hospice patients Purdue & other companies paid out doctors & created "patient advocacy" groups that led a movement to guarantee patient access to relief and paid for falsified research and theorizing about opiods safety, lack of addiction & side affects going even so fast as to coin "pseudo addiction" which looks like addiction but is supposedly not and requires treatment by giving the patient even more if the meds they are appearing to be addicted to.
Purdue also had a revolving door with the FDA that had kept their medicines unhindered in usage despite research warning against our current policy or lack there of.
Wide spread use of Valium was a cultural shift in which doctors were expected to profile tired or stressed women and offer it to them (Mothers little helper by the Stones) and changed the way Americans thought about what was normal and what they could ask for from a doctor (prescriptions for social isolation, exhaustion, sadness etc instead of just bodily matters tho these are often entangled). This was pushed in large part by magazines paid for by big pharma with ads that detailed this profiling and which became a source for doctors continued education- something they couldn't usually access after having graduated.
Chronic pain and couples: leads to divorce often, especially men leaving women once they're disabled, women are much more likely to stick it out for a disabled partner- almost all caretaking for chronic pain is done by women. The more empathetic/ deeply entwined the couple is the harder the chronic pain is to manage and the more likely the other partner is to develop it in some way or another (esp because caretaking + working + homemaking is often a lot on 1 body). Its not sustainable within a nuclear family (Leah Lakshmi Piepshna has lots to say about this).
Chronic pain and emotions: catastrophizing makes perception of pain worse and more likely to endure but hope can also be unhelpful sending people to specialist after specialist looking for an answer that doesn't necessarily exist or isn't accessible within the current medical hegemony and to taking more and more pills trying to escape it- rather than working towards acceptance of a new chapter of life at a new speed and listening to what our bodies and their pain is demanding of us rather than trying to hit re-set and jump back to business as usual.
Our internal andogenous opiod system balances our sense of wellness in our nervous system (& most vertebrates). This system includes MOP receptors & beta endorphins which can open & close the doors to pain between nosoception in or bodies and the creation of pain in our minds. Endorphins are also tied to our reward system triggered by sex, connection, delicious food and our stress management (yin & yang)- responding to crises is important for survival but chronic stress creates illness within us so the dopamine reward system kicks in afterward to try & rebalance andogenous opiods to counteract stress hormones - also decreases pain sensitivity to escape an immediate crisis, while increasing our sensitivity to pain more in the aftermath to compensate so we can take stock of and nurse our potential wounds. This is trickier when our stressors are chronic not immediate & short term like escaping a predator but instead living in a volatile home or working a stressful job, our andogenous opiod systems are put into over use and makes us more sensitive to developing chronic pain. Taking synthetic opiates rather than helping with this vicious cycle just adds fuel to the fire by decreasing our bodies natural ability to regulate and decreasing our connection to our organic reward system and increasing the follow up sensitivity when they wear off requiring more and more drugs with less and less return and getting in the way of our reward system sapping the ability to feel the warmth of connecting with loved ones, delicious food, and even sex when in withdrawal and more sensitive to pain and negative emotions.
This is especially tricky for people with depression & ptsd which are disorders that show up in disregulation of the andogenous opiod system already.
Adverse childhood experiences are one of the primary predictors of chronic pain 👀
"The body only knows how to speak one language that of aches and pains. "
Who's pain is considered to be real and matter is incredibly reflective of societal power dynamics.
Black kids suffering from appendicitis (easily diagnosable and with a clear need for acute pain mediation) are 5× less likely to recieve pain meds than white kids.
Corporal punishment- pain and the maintenance of the status quo.
"Medical" rationale given for torture in medieval Europe and ancient Greece and Rome. Pain also used to be seen as more spiritual, connecting you to something beyond yourself, ancestors, God, etc. a message to be recieved- as this worldview feel out of fashion and pain became seen as a bodily symptom torture began to fall out of fashion and our cultures tolerance for a pain that has no meaning began to plummet as well.
Medicalization of racism backed the Atlantic slave trade and its undercurrents still show up in how drs treat Black people today. Cartwright the founder of psychiatry and a signer of the declaration of independence came up with diagnoses for enslaved African Americans who wanted to escape and didn't believe they had the same pain tolerance as "more civilized people" which had trickled down into today 1/4 med students still don't believe Black people experience pain the same as white people.
War on drugs focused primarily on Black people to counteract the Black power movement which has also led to doctors (and the general public) to associate Black people with drug addiction more than white ones ever though the rates are the same, this shows up as fewer prescriptions for opiates for Black folks in the US which is bad for managing acute pain but has led to them largely escaping the most recent opiate crisis though just like how injecting heroin was sheek compared to smoking opium which became associated with Chinese immigrants, now injecting heroin has trickled down to being seen as uncouth and taboo and cheaper, someday taking oxys will also likely trickle out into the larger population as the current war on drugs plows ahead.
The Bible and Eve's punishment of pain in childbirth has similarly trickled into the medical field and is response to women's pain. The main interventions to child birth pain from ether to the free birth mvmt always came with eugenic white death scares, it turns out white supremacy will trump misogyny.
The vast majority of testing is done on men or male tissue or make animals which is probs interfering with how women, intersex, and trans folks recieve care.
Integrating a broken system isn't enough the whole medical system and the way it approaches people needs to be overhauled to take in the complexity of whole people.
Now that the risks of opiods are being realized there's jumps towards other miracle drugs namely ketamine clinics & cannabis being pursued.
Warraich puts forth hypnotism and psychotherapy as tools to listen to what the chronic pain is trying to teach us. Its giving the premise of Crazy Like Us but for chronic pain not just classic mental health diagnoses which is very interesting to me.
Empathy and placebo go a long way, sometimes performing just as much as actual treatments in studies.
Known placebo or medical ritual with a side of kindness may be even more powerful than hidden placebo for psychic/ chronic pain (feels in conversation with Drawing Down the Moon).
Feeling cared for is maybe the secret ingredient which is troubling because chronic pain sufferers are last likely to be taken seriously compared to other visible issues. This is especially a problem as many doctors are men and white and not likely to be good at empathizing in general but esp not with women and people of color.
Multidisciplinary care is starting to gain traction again pushing back on increasingly separate specialists, due to pressure from insurance companies and big pharmas push towards opiates.
For profit health care puts pressure on doctors to push for more expensive reimbursed procedures and pills that may or may not be effective- a real conflict of interest.
The VA is an example of social medicine in the US and seems to be leading the way in multidisciplinary pain mediation.
Acceptance and commitment therapy is about accepting quality of life (not catastrophizing or holding onto unrealistic hope) while committing to work through the pain to live the life they want and is within their values, emphasis on agency is key.