Sometimes there are books that feel as if they are completely meant for specific readers. That was Places Where I’ve Taken My Body for me. I’m afraid I cannot even pretend or try to be objective in my review. This is a book I read and related to from a deeply personal place inside myself and one that speaks to things that I don’t think are so uncommon at all, but they damn sure are in the publishing world.
Molly McCully Brown is a year younger than me, (so 29), and a poet loving with cerebral palsy. She loves to travel, read, write, and religion is deeply important to her. She knows first hand the rage of living in a body that compels others to ask “What’s wrong with you?” She was also born a twin though her sister died shortly after their early birth. All of these things could basically be said about me as well, though my disability (disabilities plural, I suppose but hard to say where one ends and the next begins) is different and I was not born early. I was born with a partially developed twin (although mine was probably not identical like Molly’s. I’m an IVF baby so it may have been that our egg split but I’ve always figured it was one of the other embryos implanted with the one that became me) and I’ve often contemplated many of the same things Molly writes in the book about loneliness, about missing that part of herself. My parents also lost another child a year and a half after I was born. This one is buried in a cemetery, and I used to go and visit and contemplate all the weirdness that I should be alive and why me. I’ve never really read the work of anyone else dealing with such thoughts. They seem a little melodramatic perhaps, as even Molly mentions, yet to grow up with the shadow of this, it’s a thing and one I wasn’t expecting to find reflected here.
I really liked the way Molly writes about religion and about how traditional religion would seem to conflict with her liberal political and social views or or life experiences yet she’s so deeply drawn to and cares for it. For Molly, it is Catholicism. I also nearly became Catholic in my mid-teens. I grew up in a rather Catholic area, with a Catholic K-12 school down the street as well as a small convent and a pair of Franciscan Friars who worked at the church and school and wore their brown robes. It absolutely fascinated me as a child. I liked the adornments of Catholicism and as a tween at a fancy fine arts school, fell in love with Renaissance and Medieval art and architecture and all the religious symbolism and allegory. Eventually I found myself back home where I started, as a Jew, and to this day all who know me talk about the way I light up when I talk about Judaism (and Israel and Middle East Politics and policy). So I loved reading about Molly’s experiences. It occurs to me I don’t know if many people my age who write or even discuss religion like this, especially those who like Molly and I, were the rare birds to not be raised particularly religious but to come to with a deep hunger at an early age.
Molly also writes extensively about living in her body. About the experimental surgeries she had as a child to loosen her contracted muscles, the trauma of her first memory being surgery, the absurdity of how others respond to her body. There’s a chapter I adored about sexuality and disability and about how when your body has been so medicalized and touched and controlled by doctors what it’s like to finally realize oh, I’m not just a patient but a human, a woman, and there are other ways I want to be touched as well. My heart squeezes just typing that because boy do I relate. There’s so much here about body and self and all the disconnects.
I deeply loved this collection. Essays are one of my favorite things, something I long to write myself. I have so many quotes I saved and I think the best I can do at this point is simply to share a few. I feel like this is a book that will draw to it those who need it most but I have no idea what others who live in fully functional bodies and don’t have these experiences might think or feel upon reading it. It’s so special to me I would not necessarily recommend reading it just for disability rep. No. You’ve got to want to gain more than that and I don’t know. I don’t think I care whether others like this one or don’t. It was a book I needed and will cherish and have a zillion tabs in to return to on my shelf.
A few of my favorite quotes-
“You need a lot of grit, a little rage to wrestle pain.”
“I’m the wildest combination of young and old. I don’t want fifty more years running on rage.”
“There is so much in the world I want to see and do, and already so much of it is unreachable to me.”
“Whatever ontological unease I feel, however ethereal my thoughts become, the truth of my body is literal and absolute, like an anchor pulling me back to the world.”
“Everything about the repetition, discipline, and slowness that my life required made me furious. I wanted to run, to leap, to burst out of my own body and then beat it to a pulp.”
“I was so occupied with pain and with being a patient, perpetually hamstrung between being taken apart and put back together, that it would take me years to really look at myself and realize, Oh, I’m also a person. A woman. There’s a whole other way I can want to be touched.”
“Above all, though, I blame my body for the fact that, after all these years, I’m still grieving a plain stupid grief that I can’t hide. I blame it for being itself, for existing to be ruined and repaired.”
And my very favorite passage, one that I think works even as a thesis statement for this book and one I personally so deeply relate to as someone who has found herself so full of words since becoming sick, as someone who has also found her own words to be life itself-
“To help realize the world I want, I have to write, I have to talk. Language is my medium. It is the thing that has borne me up and out of every valley, the thing that has tied me to other people and made my life large. Often, it’s the only thing I really believe in.”