It has taken me a while to read and review this non-fiction book, as I took it slowly to really absorb and integrate the messages and actions into my daily life.
In this volume, Maureen Sharphouse explores how she, and we, can live well with chronic illness and chronic pain instead of merely surviving living with it. The author’s condition is different from my own, but produces very similar restrictions to a previously ‘normal’ life and similar levels of pain and fatigue, leading to almost identical levels of frustration and helpless hopelessness. The difference is that Maureen Sharphouse had a moment of epiphany and realised that her life could continue to stretch out in front of her as a path of suffering, or she could choose to live in each moment instead, as best and full a life as possible.
The tone throughout is kind and empathetic, sympathetic to the suffering of her readers, but also firmly joyful and positive. Each chapter is bracketed with quotes and ends with both a useful summary of what was said and a ‘Rise’ exercise – one for each of the 30 days the book spans.
Having dutifully followed nearly all of the Rise activities (I don’t share the author’s Christian religious/spiritual beliefs and so read those chapters with interest but bypassed those activities or adapted them to my own belief system) and I noticed immediate improvements – not in my health, or my pain levels, or my energy levels, but in my mood, attitude, positivity and hope levels.
This book reminded me that pain and fatigue doesn’t have to rule my life. It can change my body but it cannot ‘hack’ my soul, my mind, my sense of self. This is such a valuable resource for those struggling with despair at their chronic condition/s and looking for some light in that darkness, and I will be recommending Unhackable Soul to all of my spoonie friends in the hope of spreading that light to as many as possible who need it.