This is an odd book on ME. Published 2023, written by someone claiming to have recovered after a short period of CFS and claiming to be evidence based on the second page.
I'm currently reviewing books held by my local library, Hertfordshire UK, on ME. This book has many similarities to a previous book I read which was published 2 years prior, Decode your Fatigue by Alex Howard, I feel it was used as a close companion while writing this.
It is published since the revised NICE guidelines of 2021 which removed Graded exercise Therapy, GET, and cognitive behavioral therapy, CBT, as treatments for ME since they both rely on old and discredited theories that deconditioning and negative illness beliefs are the basis of the illness. Thankfully this book (unlike Decode your Fatigue) does acknowledge the removal and that for a diagnosis of CFS/ME you need to have Post Exertional malaise, PEM. CBT can now only be used as a management tool - to help you adjust to living with a chronic illness.
The oddness I referred to earlier is because despite claiming to be evidence based, and being aware of the NICE guideline changes and the reasons for them, it still basically advises you to use GET and brain training as ways to recover.
The books claim is that factors perpetuate this condition after the initial viral onset. Stress and dysregulation. 'Belief has a fundamental part in influencing your recovery'. The book says that most are told by their doctor early on that they won't recover, and that this makes recovery less likely. We are told exercises of thought on how we need to believe. We cannot think 'I am managing my health' even as that indicates stagnation.
As with the Decode your Fatigue book we are told there are three stages of recovery. Crash - where you basically can do very little , wired and tired - which it claims is when we have more energy but it goes to the nervous system, and restoration - where we return to society. However as has been shown in research and known by most with ME the wired and tired feeling is normally when you have done too much. Your body is full of adrenaline and therefore its hard to relax or sleep. This is a dangerous state as its easy to think you are ok and keep doing things when you have already done too much and need instead to rest. It is not a recovery stage.
There is a reasonably section on testing, which is detailed about what you can/should request on the NHS as well as a lengthy part on additional functional medicine tests her company can run and it is less clear how much here is backed by science.
The a 90 page section on dietary issues and 'recipes for recovery' which are gluten free but are not easy or quick to cook meals (she does say you may need to find someone else to cook them)
The activity management section refers to finding a baseline, activity you can safely manage for 3-4 days with no worsening of symptoms and suggests staying at this level for 2 weeks to make sure no PEM. But then there is a section about how we need to remember everyone has fatigue and how we mustn't blame ME as even healthy people get tired after doing such and such activities.
She talks about caution not to exercise too soon or too much. To stop if we feel worse but then discusses a method of increasing activity every two weeks (stopping if needed) but seeming unaware that for many/most with ME this does not work. We hit a boundary we can not cross because of our dysfunctional energy systems.
She talks about jogging when in the wired and tired phase and trying HIT, boxing and weights in the restoration stage. Reminds us too much rest is bad.
There is a section on Neuro Linguistic Programming, NLP, which she says is like CBT, two sides of the same coin. It will help you overcome your limiting beliefs and move towards positive thinking. Get rid of the toxic thought patterns which she claims perpetuate and exaggerate symptoms. Uses 'Stop' technique which is known to be part of the Lightning process - absolutely stated in NICE guidelines that this should not be given to people with ME/CFS.
You are recovered, in her mind it takes 6-12 months to see improvement, when you spend more of your day thinking about what you are doing or planning than 'living through the lens of your illness'. I find this highly insulting.
~Conclusion
So the overall feel I get from this book is that she took the time to learn about the NICE guideline changes and the reasons (though not very deeply) but then ploughs ahead with the way she has been thinking about CFS for the past decade or so and continues to offer the same ideas despite the fact that the NICE guidelines state these techniques should no longer be used. The NICE guidelines changed upon review of very many research and scientific studies showing the weight of evidence indicates that it is damaging to assume ME can be overcome by thought pattern change and exercise. The fact that scientific evidence now shows underlying disease preventing adequate energy production seems to have passed her by.
It comes across as a book of someone who has never encountered more moderate or severe ME.
Do I recommend it? No