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The Parent's Guide to Children's Congenital Heart Defects: What They Are, How to Treat Them, How to Cope with Them
Provides definitive answers from leading medical experts to parents' concerns about congenital heart defects, discussing the various types of problems, their causes and long-term prognoses, the various treatment options available, and what parents can do to help their children. Original. 10,000 first printing.
- GenresReference
265 pages, Paperback
First published November 20, 2001
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Displaying 1 - 2 of 2 reviews
October 24, 2010
A really good book that is a great start to the topic of Children's Congenital Heart Defects. My son was born with several - and had his first open heart surgery when he was 2. He has a rare chromosome deletion as well (8p23.1 -- pter) which is the cause of the defect. When he was born I had already done much research but his particular heart defect, Ebstein's Anomaly, is amongst the rarer of CHD's so there wasn't much on it. I hit up the medical library at UCSD medical school as well - and not much. Scattered articles...so I was not sure what this book would do to help. It seemed though that I should have it.
It was really good in particular with imparting to me that I was not alone and that other parents had been there and gone before. This book led me to a fantastic heart group in Los Angeles and for years my kids and I would travel up there for get togethers..and I consistently recommended this book to all the parents. When you have a child diagnosed with CHD it can seem a nightmare - and I won't lie - sometimes it is...particularly the surgeries and all the doctor's visits. But there are things that no one tells you -- like how (if the particular CHD lends to cyanosis) your child is going to have blue/purple lips no matter how warm it is, how to deal with a toddler that barely has enough energy to stand far later than his peers have started walking, like what it means to not sleep due to the fear of something happening to your child while you are sleeping. You are not alone. Someone out there is guaranteed to have felt what you felt, done what you did, and they came out of it - my son is 10. The boy they said would never live loves reading Harry Potter, is completely addicted to Pokemon and Ben 10, and shoots me such zingers as (when I caught him doing something naughty) "note to self - next time don't do it in front of mom". 'Nuff said.
It was really good in particular with imparting to me that I was not alone and that other parents had been there and gone before. This book led me to a fantastic heart group in Los Angeles and for years my kids and I would travel up there for get togethers..and I consistently recommended this book to all the parents. When you have a child diagnosed with CHD it can seem a nightmare - and I won't lie - sometimes it is...particularly the surgeries and all the doctor's visits. But there are things that no one tells you -- like how (if the particular CHD lends to cyanosis) your child is going to have blue/purple lips no matter how warm it is, how to deal with a toddler that barely has enough energy to stand far later than his peers have started walking, like what it means to not sleep due to the fear of something happening to your child while you are sleeping. You are not alone. Someone out there is guaranteed to have felt what you felt, done what you did, and they came out of it - my son is 10. The boy they said would never live loves reading Harry Potter, is completely addicted to Pokemon and Ben 10, and shoots me such zingers as (when I caught him doing something naughty) "note to self - next time don't do it in front of mom". 'Nuff said.
January 25, 2009
Easy to read, useful as an overview of different CHDs, and a nice quick-reference book.
Displaying 1 - 2 of 2 reviews