What an amazing book and story.
This one is told by a Christian woman, so it talks about religious beliefs when she discusses her experience. I liked that it discussed some of the harmful and incredibly ableist perspectives some Christians have on disability, and it unpacks those. And as Joni goes through them all, she learns some things herself and in the end comes to a conclusion which sounds strong and healthy to me.
I admire Joni’s ability to talk about some of her struggles and joyous moments, but then lifting them and showing how some of the problems she is experiencing able bodied people can also relate to – and therefore she spoke to me on not only how to make the world a more inclusive space for disabled people and wheelchair users, but also on how I can improve and grow in my life personally and spiritually. I truly appreciated this.
I felt so many things when reading this. Angry, sad, happy… I especially felt angry when it talked about nurses. Of course, we get to hear about wonderful carers and nurses too. But the times when some cruel nurses took advantage of patients who relied on them in horrifically ableist and abusive ways. And sad when there were nurses who wanted to do more for their patients but were overworked, underpaid, and undersupplied.
The first chapter already gave me chills. And all through this book it showed me so many highs and lows I’ve not experienced myself… and worries I’ve never considered before.
I appreciated seeing the portrayals of relationships in this as well. How her disability influenced her relationship with family, friends, strangers and most importantly, her relationship to herself and God.
In the beginning it was very much an account of what happened and how she felt at various moments. It seemed to become more of a self-reflective piece toward the end. I think that worked well for the story.
Content Warnings: brain surgery, diving accident, mentions of murder and suicide attempt and car accident, broken bones (neck), quadriplegia, depression, death, suicidal thoughts, ableism, grief, mentions of cancer.