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272 pages, Paperback
First published January 1, 1943
This same feeling of my own intrinsic separateness was always with me, too, when certain grown-up callers insisted on coming burbling upstairs "to see poor little Katharine." I could always hear them coming and I knew just what to expect. I didn't need to be very subtle to realize from their puffing exclamations of pity and their heavily tactful asides that these visitors imagined that I was unfortunate. under their breath I heard the gruesome word "afflicted." Such people bored me beyond words. They didn't seem like real living people. I knew they were not interested in me at all as Katharine, only as "poor little Katharine." They never paid any attention to what I was drawing or making, they were blind to all the interesting treasures around me. They were not real people, surely, but just large meaningless objects that had got into my room by mistake and were very much in the way there. Ignoring everything under their noses which would have interested them if they had been alive, they could only seem to see the one thing in the room which was not interesting and not important except that it was doing me good, my halter and rope. And they would stand staring and asking questions and boring me with their stupid pity until my mother or my nurse finally led them away. The only impression, luckily, that was left on me by these visitors was disgust for their ignorance and a fresher satisfaction in my own affairs.This book was suppressed so that the disability porn cuntfuckery that is "Flowers for Algernon", "Of Mice and Men", "Me Before You", and so many flatulent, no nothing, obscenely renowned others could be written. Heaven forbid any of the disabled and/or neuroatypical folks find love and life and even consensual sex on their own doesn't-die-at-the-end terms. heaven forbid that not only a disabled person, but a disabled woman, not in the 21st century or even in the late 20th but someone born in the tail end of the 19th be capable of traversing the ocean in the pursuit of art, fame, romance, and best of all succeeding in all of these goals, both consciously striven for and otherwise. I won't profess that the author is perfect, but her voice is a powerful counter to the ableist filth that clogs the assumptions of both media and law that in turn contribute high and low to the denial, dehumanization, and death of both me and those in my community. I don't care how much able authors writhe and moan. If they had ever actually had a healthy dialectic with a disabled person, they never would have written what they ultimately made bank off of.
I was a fanatic in my belief that life is not ordinary, and in my hatred for all the acts, manners, talk, and jokes which treat the mystery of life as if it were comic and obscene, to be handled with contempt and laughed at or kicked around like an old rag.It is extraordinarily valuable to have a record of a child rejecting the pitying glances of self serving adults and obnoxious children, for the bullying in the schoolyard is always handed down via the sins of the parents, and the only way to humanize disabled/mentally ill children is to rid the world of disability porn and other related ilk which those parents consume. Hathaway had the benefit of extraordinarily supportive finances and a generally supportive family, but that only points out how much of the devastation of disability is artificially created via capitalism and socially sanctioned abuse. The moment one believes people exist for the society, not the other way around, is the moment one sells one's soul to the deep. Hathaway's emotional turmoils are harrowing, but her life is one of triumph largely in thanks to emotional as well as financial confidence, and I am likely to add her cumulative letters and other writings just to read of the multiple transatlantic crossings and interactions, as well as to see whether her disappointingly racist views with regards to Japanese people, especially Japanese women, have any underlying context. That was one of the major flaws in an otherwise singularly wonderful piece of memoir, and reading on would ease my mind somewhat, if for nothing more than the acquiring of context for a sensationalist narrative. Sometime in the future, then. This book was difficult enough to acquire in my usually passive fashion, and a more discombobulated work will certainly prove even more elusive.
For as the Apostle with good reason admonishes us: "Those that seem the more feeble members of the Body are more necessary; and those that we think the less honorable members of the Body, we surround with more abundant honour." Conscious of the obligations of Our high office We deem it necessary to reiterate this grave statement today, when to Our profound grief We see at times the deformed, the insane, and those suffering from hereditary disease deprived of their lives, as though they were a useless burden to Society; and this procedure is hailed by some as a manifestation of human progress, and as something that is entirely in accordance with the common good. Yet who that is possessed of sound judgment does not recognize that this not only violates the natural and the divine law written in the heart of every man, but that it outrages the noblest instincts of humanity? The blood of these unfortunate victims who are all the dearer to our Redeemer because they are deserving of greater pity, "cries to God from the earth."
-Paragraph 94, Mystici corporis Christi