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Siblings of Children With Autism: A Guide for Familes

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Since 1994, SIBLINGS OF CHILDREN WITH AUTISM has been helping parents meet the needs of siblings in families of children with autism. During many years in clinical practice, the authors have worked with hundreds of families and seen firsthand how siblings can become overshadowed by the intensive focus on a child with autism. This common occurrence is only one of the many sibling issues that parents and professionals should not only be sensitive to, but ready to address. Now in a brand new and expanded edition, SIBLINGS OF CHILDREN WITH AUTISM explores the basics of sibling relationships and the complexities that surface in families of children with autism. Chapters cover how to explain autism to siblings, how to get siblings to share their feelings and concerns, how to master the family balancing act, and how to foster play between siblings. New chapters have been added concerning what siblings actually believe or understand about autism at different ages and how autism continues to impact adult sibling relationships, careers, and caregiver roles. Throughout the book, there are stories about individual families, giving readers points of comparison and helpful insights along the way. The direct challenges of raising a child with autism are well known to parents. But it is important for parents to also see autism through the eyes of their other children. For families looking for guidance on sibling issues and autism, the new edition addresses a multitude of their concerns and questions, and also offers advice on how to seek support from a family therapist or other professional when more intensive help is needed.

180 pages, Paperback

First published January 1, 1994

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Displaying 1 - 4 of 4 reviews
Profile Image for Charlie.
574 reviews32 followers
May 4, 2014
Wow, what an awful book. Even in a work that's supposed to be about siblings of autistic people, the non-autistic siblings are overshadowed. It's a book designed for middle-class nuclear families, full of anecdotes by straight white cis mothers talking about their concern for their children. There are no writings or interviews here from actual siblings of autistic people. Even the author has only been around developmentally delayed people in a professional setting. She and the parents in this book are seeing the problem from the outside, and are therefore missing all the complexities of actually growing up with a disabled sibling, and are totally ignoring the possibility of the non-autistic sibling having problems of their own.

My older sister has autism, and she functions at about the level of a neurotypical four-year-old. Growing up, I was seen as the "good" child, because I seemed normal. But even when I was really little I had a ton of resentment toward my sister, who received far more attention from our parents than I did. I started making my own meals once I could stand on a chair to reach the stove, and (as I had difficulty relating to most kids my age) I learned how to be alone. I grew to enjoy being alone so much that now I have debilitating social anxiety. After a while I guess I deviated from the "good child" model, once I came out as trans and queer and once it became obvious that I was bipolar, and that my eating disorder, self-harming habits, and suicidal urges weren't going to go away with a few more hugs. My status as the new "problem child" was met with aggression, especially from my mother, who seemed to believe that my problems existed because I wanted attention.

I don't really know what I'm getting at with all this, except that I felt under-appreciated even within a book which is supposed to be about and for people like me. Also, most of the autistic people in the book were treated either as problems (obstacles in the way of cis-het happiness) or as strange, otherworldly beings who are difficult or even impossible to understand. This is pretty insulting. I know this book was written in 1992, but seriously, people shouldn't write books on topics about which they know little, especially if those books are supposed to be non-fiction.
Profile Image for Bettyjo.
127 reviews
March 27, 2022
I saw that there is an updated edition. I think that might be more worth reading, but for me-- being involved with the disability world for quite a while and this book being published almost 30 years ago-- I feel like the culture around disability has shifted to include most everything in this book. So it feels a bit out of date. Again, I'm interested to see the updated version, but for this edition-- I wasn't too captivated.
Profile Image for Elizabeth Meadows.
1,992 reviews306 followers
November 30, 2017
Very interesting insights into families and siblings of people with autism. Since I have a daughter with autism and one who is typical, this book hits very close to home.
57 reviews2 followers
January 25, 2011
This book was better than I thought it was going to be.
Topics that were helpful:
The impact of Development on Children's understanding of autism
How to create an atmosphere for communication with your children, spouse,
Early, middle childhood
Parents speak
Giving clear instructions

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