Saving Ryven: STAYING AT THE FOREFRONT

by Robert Harris

My son Ryven was born with an extremely rare disease called Wiskott-Aldrich syndrome. You’ve probably never heard of it. My wife Cindy and I hadn’t either before Ryven was born. It’s a one-in-a-million disease that’s life-threatening.Cindy and I have fought to save Ryven’s life from the moment he was born. We have spent more time in hospitals and talking with medical experts all over the world about Ryven’s treatment options than you could ever imagine.It’s something we wouldn’t wish on any parent, but we have met some truly amazing people along the way. Unfortunately, we’ve also seen the other side of human nature.This book is our story of how we have coped with our son’s disease and the decisions we made to save his life. None of those decisions were easy because none came with any guarantees.

158 pages, Kindle Edition

Published October 28, 2021

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