I was disappointed in this book.
Christopher sounds like a lovely person, but I found the book deeply problematic.
The lives of the disabled people portrayed in his book (the author's brother, Oliver, along with a few others.) seemed to be treated as props for those that knew them, or read about them, to feel better about themselves and to discover "the meaning of life". Ironically, for a book that claims to want to give "power" to these disabled voices and to lend meaning to lives that others might write off as meaningless, it doesn't do any such thing. The prose is flowery and over-sentimental, with glurge-y religious overtones. The disabled people are basically inspiration porn.(from Wikipedia:" Inspiration porn is the portrayal of people with disabilities (or other uncommon life circumstances) as being inspirational to able-bodied people (or other common reference group), on the basis of their life circumstances.". These people didn't exist so that others could find some sort of inspiration and lead better lives. Their lives, just on their own, had meaning and purpose. We don't discover who these people really were. They're all painted in the insufferable "angelic" or "saintly" portrayal that a lot of severely disabled people get slapped with. These were real, live people who happened to have disabilities. They didn't exist so others could be inspired. They're not angels or saints. They're people.
I get that at the time Christopher likely published the original article, attitudes towards disability were even worse than they are today, so this would be ground-breaking. It desperately needs an update. (I was also, on a side note, not impressed with how much Reagan loved the article. Reagan could have used that so-called compassion towards those with AIDS that he treated like crap, and those living in poverty.)
I was bitterly amused at the fact that he gushes about the Kennedy family, after Sargent Shriver writes him a glowing letter about the original article about Oliver. Christopher glosses over and barely mentions the fact that JFK had a sister named Rosemary, who was intellectually disabled and rendered severely incapacitated after her father authorized her to get a lobotomy. She lived in a secluded convent home for the rest of her years, not seeing family for decades. I don't think JFK ever visited her. Christopher mentions vaguely how Rose Kennedy had a disabled child she was inspired by. Inspired by? Maybe much later in life, but they did exactly what Christopher was supposed to be preaching against: subjected Rosemary to brutal, inhumane treatment (although that was likely all her father, it's said Rose didn't know about it, but hard to say what really happened.) because the success-driven Kennedys were embarrassed by her, then warehoused her in an institution. (While Rosemary was a child, they also exaggerated and lied about her abilities, and hid her disability.) Not an uncommon attitude at the time, but it baffled me that Christopher held up the Kennedys as some sort of beacon of advocacy for the disabled without mentioning the dark truth of Rosemary. Yes, Eunice Kennedy did start Special Olympics, but she insisted that had nothing to do with her sister.
I was expecting to read a book about Oliver, and what life was like as the brother of a severely disabled sibling, living in decades when disability was barely understood and the rights of the disabled non-existent. His own story, and Oliver's, were skimmed upon and made into some sort of montage of ideal childhood memories.
It's unfortunate. This had the chance to be a great autobiography telling the story of a unique relationship with a man and his brother who lived with disabilities. Instead, it disintegrated into Hallmark-sentiment glurge that smacked of ableism.