Raine’s Comments (group member since Jun 19, 2013)

Raine’s comments from the Understanding Parents with Dementia group.

There is also the book "turn of mind" by alice laplante. It's a fiction book but the character also has dementia. A nice read. "Still alice" is currently on my reading queue -- i have read a lot of positive comments about the book.

From my experience and from the courses i've attended, it's very helpful to understand the concept of person-centred care in dementia, in a sense that carers should know the person's likes, dislikes, and personality before they had the disease. They are still the same person even if they appear confused and scared most of the time.

Im glad that you are all actively participating in the care of your loved ones. :) It is also a plus to view the dementia caregiving as a positivity in life (e.g. : bonding moments, reminiscing, an act of love) rather than a burden. Of course, i know it is not often possible to always feel that way :( but at least we should try.

Finally, a group about dementia! :) Im a dementia nurse in an acute hospital, also my grandmother has dementia even before i became a dementia nurse, so i know the stress and difficulties in managing them. I would love to see your recommended books, so i can also share with my colleagues. :)

Have you read "making rounds with oscar" by david dosa,m.d? It's about pet therapy in a nursing home full of patients with dementia. :)