Julia Buckley

“Most people think they know pain. Everyone's done something: broken a limb, been stung by a wasp, recovered from an operation or rammed a baby through their birth canal. But chronic pain is different. It isn't just pain that lingers; it's pain that dominates. It swaddles you in its gloom and slips blinkers on you until everything you see, and everything you experience, is filtered through that pea soup of pain.

The vast majority of chronic pain conditions are not only incurable but also untreatable. They don't respond to drugs, and science hasn't -- yet -- located a central fuse box to repair. So people with chronic pain not only live with pain; they're told that this is it until death they do part. It is a diagnosis that dehumanises your body as much as it eviscerates your spirit. And it's made worse because, if there's no obvious physical explanation for it -- as is the case with most types of chronic pain (diseases like arthritis aside) -- people think, consciously or not, that you're making it up.

Three GPs, eight consultants, three physiotherapists, one nurse and two psychologists had tried to rout my pain in the first year of its existence. All had failed, though each had laid their failure at my door, not theirs. There's no physical reason for it, they said; or there's kind of a physical reason but not enough of a physical reason to correspond to your level of pain. Maybe, some of them ventured, possibly, do you think... could it be in your head?”
― Julia Buckley, Heal Me: In Search of a Cure