Rachel > Rachel's Quotes

“Part of the problem with the word 'disabilities' is that it immediately suggests an inability to see or hear or walk or do other things that many of us take for granted. But what of people who can't feel? Or talk about their feelings? Or manage their feelings in constructive ways? What of people who aren't able to form close and strong relationships? And people who cannot find fulfillment in their lives, or those who have lost hope, who live in disappointment and bitterness and find in life no joy, no love? These, it seems to me, are the real disabilities.”
― Fred Rogers, The World According to Mister Rogers: Important Things to Remember

“I didn’t want to upset my loved ones, but I couldn’t carry this alone.”
― Julie Flygare, Wide Awake and Dreaming: A Memoir

“In the spirit of slumber parties, I want to have a sleepover and invite only narcoleptics.”
― Jarod Kintz, At even one penny, this book would be overpriced. In fact, free is too expensive, because you'd still waste time by reading it.

“It was hard to accept that the doorbell was just a dream, because I could still hear it in my memory, like the last song on the radio or an annoying TV commercial stuck in my head. It wasn’t a faint memory of an innocuous doorbell – it was an exact “ding dong” sound, with a particular pitch, volume and rhythm.”
― Julie Flygare, Wide Awake and Dreaming: A Memoir of Narcolepsy

“Allison of RADAD: The Royal Academy of Dramatic Arts and Disability
The ticks of Lyme
Suck my blood of time
And leave me rather drowsy.

My feet move like tar
With Epstein-Barr
And I wake up feeling lousy.

I fall asleep in my Pepsi
With Narcolepsy
To the chagrin of the soda jerk.

My Chronic Fatigue
(and thespian ability)
puts me in the big league
(of insurance fraud disability)

So who the fuck needs to work!”
― Beryl Dov

“ Normal ' Expressing the seemingly nonexistent 'Normal' which (having Narcolepsy with Cataplexy) is very much a cloudy, gloomy, often rainy-day like; lifestyle. Day after day; being frequently so, so tired at whatever, random point/s in time. Near never sleeping well; at least beyond perhaps, a couple of hours. Awakening tired and as though weights are tied to the body, and you need to sleep, more. 6 - 8 hours of sleep, will feel like 3 hours. But, a headache will develop beyond 8 hours. -Sigh- With Cataplexy, fun (and much more) can become restricted and/or a possible danger. People do just want to have fun, as do I. Staying within boundaries and limits though, knowing that if you do not, there are and/or will be dangers; takes a dramatic, and invisible, heavy toll upon (any) one. So much of this is, beyond imagine-able; until you've lived it. Having so many difficulties with being able to hold and/or fit any job/s, schedule/s, friendship/s, relationship/s, etc... (¿) 'Normal' somehow (?), it all becomes.”
― Solomon Briggs, Expressions of my own 'Narcolepsy with Cataplexy'

“To put the words / labels / diagnosis bluntly, in my own wording / description form: -'Narcolepsy with Cataplexy' is, becoming considered, an 'Auto-Immune Disease' which directly effects the Brain and the Neurological, Central Nervous and Immune Systems; aswell as involving also, the Endocrine System...- 'Narcolepsy' is the inability to get 'restorative sleep' which results in the inability to maintain wakefulness, throughout days and/or nights; so one with it does not sleep well, nor has energy, often. 'Cataplexy' is a symptom of Narcolepsy and is 'a minimal to complete, temporary muscle paralysis,”
― Solomon Briggs, Expressions of my own 'Narcolepsy with Cataplexy'

“ Day And Night ' Heat and/or cold, difficulty sleeping and/or remaining awake, frustration/s and/or/with dreams of giant fright/s, all close up... Be it day-dreaming, be it sight-seeing, be it night-fleeing. It is to represent the inner hell, the madness of troubles and struggles; apart, within, throughout, but most unfortunately all about.”
― Solomon Briggs, Expressions of my own 'Narcolepsy with Cataplexy'