1x1 discussion

Marfan syndrome is a disorder that affects the connective tissue in many parts of the body. Connective tissue provides strength and flexibility to structures such as bones, ligaments, muscles, blood vessels, and heart valves. The signs and symptoms of Marfan syndrome vary widely in severity, timing of onset, and rate of progression.

The two primary features of Marfan syndrome are vision problems caused by a dislocated lens (ectopia lentis) in one or both eyes and defects in the large blood vessel that distributes blood from the heart to the rest of the body (the aorta). The aorta can weaken and stretch, which may lead to a bulge in the blood vessel wall (an aneurysm). Stretching of the aorta may cause the aortic valve to leak, which can lead to a sudden tearing of the layers in the aorta wall (aortic dissection). Aortic aneurysm and dissection can be life threatening.

Many people with Marfan syndrome have additional heart problems including a leak in the valve that connects two of the four chambers of the heart (mitral valve prolapse) or the valve that regulates blood flow from the heart into the aorta (aortic valve regurgitation). Leaks in these valves can cause shortness of breath, fatigue, and an irregular heartbeat felt as skipped or extra beats (palpitations).

Individuals with Marfan syndrome are usually tall and slender, have elongated fingers and toes (arachnodactyly), and have an arm span that exceeds their body height. Other common features include a long and narrow face, crowded teeth, an abnormal curvature of the spine (scoliosis or kyphosis), and either a sunken chest (pectus excavatum) or a protruding chest (pectus carinatum). Some individuals develop an abnormal accumulation of air in the chest cavity that can result in the collapse of a lung (spontaneous pneumothorax). A membrane called the dura, which surrounds the brain and spinal cord, can be abnormally enlarged (dural ectasia) in people with Marfan syndrome. Dural ectasia can cause pain in the back, abdomen, legs, or head. Most individuals with Marfan syndrome have some degree of nearsightedness (myopia). Clouding of the lens (cataract) may occur in mid-adulthood, and increased pressure within the eye (glaucoma) occurs more frequently in people with Marfan syndrome than in those without the condition.

The features of Marfan syndrome can become apparent anytime between infancy and adulthood. Depending on the onset and severity of signs and symptoms, Marfan can be fatal early in life; however, the majority of affected individuals survive into mid- to late adulthood.

Thank you for putting all that information up! I will probably have to fact check myself a lot through the RP so my responses may be o the slow side.

That’s fine haha. Just to add info, I got this idea from the frontman of the band Of Mice & Men (austin carlile) who has marfan. It’s kind of a FamdomxOc but the personality I’ll give him is a bit different and i’ll add and take away things

Okay cool. ^-^ I’m a country girl so I don’t really know anything about the band or him so I wouldn’t know either way. xD

Alright haha. Nothing wrong with that :)

Certainly not. ^-^ I will get to work on my girl and will try to have her up shortly.

Alrighty :)

Name: Austin Carlile
Age: 28
Appearance: https://s-media-cache-ak0.pinimg.com/...
Personality: Austin was always a sweet, caring boy. When he found out that the same syndrome that had taken his mother’s life had transferred to him, it hurt. He knew that if the disease took him, he’d have to make the most of what he had left. Always smiling and laughing, making jokes and meeting new people changed when Austin was transferred to Costa Rica for intense medical care. He was pulled from his band, his girlfriend left, and he was pulled from his legs and soul, unable to walk or do daily things without collapsing, intense and unbearable pain, or pure loss of hope. Still trying to keep in high spirits, the 28 year old trains to regain strength and heart.

Name: Catalina Moreno
Age: 27
Appearance: https://i.pinimg.com/originals/4f/3f/...
Personality: She was always a compassionate and empathetic person growing up and she thinks that is what led her into wanting to be a nurse. She loves helping people and giving them courage and reason to fight when so many people want to give up. Seeing that so many times she has become more determined to not let many people in her care give up no matter how easy it may be in their minds.

I’ll post first then?

Yes if you don’t mind. ^-^

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Austin didn’t know what he was doing. All he knew was it hurt. He couldn’t see and he felt dizzy, so he assumed he was waking up from another surgery. “Austin?” He heard a male voice say. “Welcome back to Costa Rica, though our reasoning is quite unfortunate. I assume you are in pain and that your eyes are heavy.” This guy sounded like some philosopher. Austin exhaled to show consciousness, forcing his hazel eyes to open as well.
Just as he suspected, he was in a hospital. A groan in defeat left his throat painfully. “Austin.” The man- who had been a doctor, maybe a surgeon- as spoken again. “They found another cystic on your spinal cord. It caused to you pass out while preforming and your friends have suggested you take a break.”

Catalina was called to Austin’s room since she had been one of his nurses the last time he was there. When she entered the room she heard the doctor telling him about the cystic on his spinal cord and she sighed to herself. She knew it was painful, not from experience, but from all the articles she had read after meeting Austin the first time.
As the doctor finished giving Austin information she smiled when he told him that she was in there to check his vitals and everything she needed to do. After the doctor left Catalina wrapped the blood pressure cuff around Austin’s arm, “I thought I told you to take it easy last time you were here?” She teased him lightly.

Austin couldn’t imagine leaving his band. It was the one thing he had left. He smiled as the nurse spoke to him. “Easy isn’t my thing.” He chuckled softly, looking over at her. She was definitely beautiful, but she was a nurse...and he was a patient.
Austin joked a lot, despite his condition. “That’s like telling a kid he didn’t get presents on Christmas.”

Catalina laughed softly shaking her head as she turned to record his blood pressure, “Forever the stubborn one aren’t you?” Not that she really needed and answer to that, Austin may not have been there very long the first time, but she quickly learned how stubborn he was to this disease and letting it control him.
Smirking as she put her stethoscope on she sat his bed up slowly, “No Christmas presents and telling a rock star to take it easy, yes I can see how those are one in the same in your mind.” Her light green eyes met his as she listened to his heart. One thing she was glad for was her ability to not show emotions on her face unless she wanted to, because hearing the skipped beats made her own heart sink.
“Think you can lean forward enough for me to listen to your lungs or too dizzy still?”

Austin saw an expression in her eyes when she put the stethoscope to his chest, but couldn’t decipher it.
He attempted to push himself up a bit, only succeeding at the slightest bit. His back only lifted maybe an inch before he sighed in defeat. “Hey hey, I’m not that stubborn.” Austin then laughed, knowing that wasn’t true. “Nausea isn’t the issue.” he sighed, leaning back down easily and pushed his thumb over his nose ring.

Catalina frowned seeing him struggling to sit up more than the inch that he could, “Relax,” she said gently as she helped him lay back down. Meeting his eyes again she laughed, “You keep telling yourself you aren’t stubborn. Maybe it will magically become true.” Grabbing the machine to check his O2 after taking the stethoscope off she shook her head, “Nausea wasn’t my concern with your dizziness, Austin, I’ve been a nurse for years I’ve had plenty of patients get sick on me. I was concerned about how your lungs sound, but,” she held up the clip for his index finger, “we will see what this says first and if it is high enough we will assume your lungs are fine for now.”

He laughed softly at the comment of his stubborn personality. “I don’t know what you’re talking about.” Austin had a light heart- even if it wasn’t his. Austin had tons of surgeries, one being a heart transplant. The scar had taken some of the ink from the tattoo on his chest and he refused to cover it again.
“Hey,” Austin reluctantly held out his hand for the monitor. “I haven’t died yet.-...er I have but, You know.” During the transplants Austin was clinically dead for three hours before being revived again.

Catalina looked at him as sternly as she could, which wasn’t very much. She was glad he had a positive and stubborn attitude, but... “I’ve told you I don’t like that joke,” she reminded him. She didn’t help with his surgery, but she had sat outside watching, praying everything would go okay. She was always concerned about her patients, but with Austin it was some how different. When the machine beeped at her she checked the number and smiled, “Ninety-nine, I am going to guess the doctor will be perfectly fine with that number.” She started recording the number in the computer as she glanced at him, “Any other problems you are noticing now that you are awake?”

Austin closed his eyes with a sigh. “Besides the fact that I’m a 6 foot four, twenty-eight year old who can’t walk, can’t live on my own, whose not out on the road doing the one thing he loves, whose girlfriend left because she ‘can’t take the pain’, or whose whole life is depended on an IV dosage and a couple of pills when I’m dying alone in a hospital no where near my home, with maybe ten to twelve years if Im lucky.” He cracked open his eye. “Should I continue?” Austin didn’t want sympathy, he wanted results.

Catalina looked down as he spoke. He was rarely like this and she assumed it was because of not being out on the road and his now ex girlfriend. Sighing softly she looked at him with his next question, “You know what I meant. I can’t say I understand about not being on the road to do what you love, but your friends were very concerned when they brought you here. Your ex girlfriend well I can’t nicely say what I want to and I have to remain professional so I’m going to leave that one alone. But you aren’t alone and you don’t know how long you have. Advancements in medicine are made every day.” Taking the clip off his index finger from checking his O2 levels she rolled the wire around the machine carefully.

Austin sighed again. “You know what I mean, though.” He shifted his weight onto his left, feeling tension on his right. “Be unprofessional for a minute, natural. What would you say then?” He asked, opening his eyes and looking at her. His face looked aged, older than his twenty eight year old bones.

“Yes, I know what you mean, but your stubborn streak is what helps in situations like this.” Her eyes narrowed as she watched him shift seeing the slight winces he probably didn’t even know he was doing. Laughing slightly she looked at the door to see if the head nurse or any doctors were nearby before looking back to his eyes, “Assuming everything else was going well for you and your ex,” she shrugged one shoulder up, “to put it bluntly she’s a bitch and very dumb. You are an amazing man and to throw it away because of something like this, it’s dumb. I know people get scared wondering how they will care for their significant other, but leaving is never the answer.”

Austin chuckled In agreement. A thought popped In his mind from the topic "You had a boyfriend the last time I was in here, yeah?" Austin and the girl had always passed friendly flirts since his first admittance, flirty being a part of his personality.

Giving a slight laugh as she nodded with a sad smile, “The important word in that sentence would be had. That has been over for a very awhile now.” Catalina had been in love with the guy, until his archaic views began to come out. She wasn’t the type to stay home with the kids which was what he was looking for.

“Damn, my bad.” He said tilting his head ever so slightly. “But hey,” Austin then smiled, always knowing how to lighten a mood. “Wanna hear a pickup line?” he ran a thumb over his nose ring, grinning at the stupidity that awaited in his words

Shaking her head she smiled softly, “We wanted different things. I’m not the stay at home mommy type and he wanted me to be. I’d mis this too much,” she said gesturing to the hospital. Lifting an eyebrow at his smile she looked at the clock knowing they would soon be asking her to make her rounds, but she enjoyed being with Austin so she nodded, “I’m afraid to agree to this since they are usually cheesy, but hit me with it.”

Almost everyone in the hospital that had worked with Austin had bonded with him nicely, supporting his musical dreams and health. He especially felt this bond with Catalina. “Okay okay,” he coughed into his large fist. “How much does a polar bear weigh?” he grinned.
Austin had told Cat hundreds of dumb lines, and actually got her now-ex to snap at him. He laughed it off, not minding

Catalina loved seeing him grin like that. Despite everything he had went through his smile was always bright and made her days better. “How much does a polar bear weigh?” She repeated with a laugh, “You said it was going to be a pick up line not a riddle. And I have no idea. How much does one weigh?”

“Enough to break the ice.” Austin grinned like an idiot at his own stupidity. He waited a moment and chuckled. “See? Game over!” his chuckle turned into a laugh, his forehead creasing and brows furrowing as he laughed.

Cat tried to keep a straight face, but it didn’t last with his grin and then laughter. Laughing she nodded, “Alright you win it was a good pick up line. Or ice breaker,” she said with a grin. “You need your rest though and I better get back to work before I get in trouble. Do you need me to get you anything?”

“Tell Olson I didn’t get my coffee.” He said with a smile. Austin wasn’t really allowed coffee after the one they barely let him have at breakfast, but sometimes the doctor would let him have cream and sugar for the caffeinated gold. “No, I think Im fine for now.”

Cat smiled shaking her head, “Rest. You can have coffee in the morning. Maybe then you will actually be awake during most of my shift.” She wouldn’t be on duty much longer, but she always Seoul’s swing by his room at the end of her shifts and stay much too long afternoon working twelve hours. “Well you know the drill if you change your mind. And I’m only here a couple of more hours before shift switch.”

“Wait wait wait.” He said with a chuckle “actually, you should like bring me Starbucks’ Caramel Latte even if I can’t have it because my record went platinum last week” Austin grinned childishly at his attempt. “Please~?”

Pausing before leaving the room when he called for her to wait. Cat bowed her head with a groan, but still smiling, “Ugh that is so not fair to use a platinum album and that smile on me.” Looking at him she bit her lip, “Alright. I will get you a tall one only and half caf when my shift ends. Deal?”

"Venti Caramel Latte, gotcha" Austin smirked, biting his tongue softly. When she left he popped in his earbuds and decided to take a nap when he was woken up by an intern with his medication. She was obviously nervous as she read his files and looked over her shoulder at one of the head nurses.

Cat’s night finished out without too much insanity which she was thankful for. She was exhausted, but she had promised Austin, so after she got herself to what she deemed presentable she ran to Starbucks getting his caramel latte and some tea for herself.
When she returned she saw one of the interns nervously giving him his medicine and spoke up, “Relax he doesn’t bite too hard.” She smiled at Austin while coming in and sitting in the recliner beside all the beds. Once the intern finished and disappeared she handed him the latte, “How do you feel?”

Austin grinned as he handed her the latte "Venti as promised?" He struggled, but pushed himself up. "I'm alright, a bit put off that some tattoo-aphobe woke me from my nap though." He shrugged, taking a nice sip of latte.

“Ah-ah I didn’t promise venti,” she told him even though it was what she got for him. Biting her lip to holding in a giggle she nodded a little, “How do you know they were a tattoo-aphobe? I have never had any issues with anyone here when they see mine.” Of course it was rare since she usually had a long sleeve shirt on under her scrubs anyway.

"but you got me one" he smiled in a bit of triumph. Austin cocked an eyebrow. "I don't care if she was a pink kangaroo. she woke me from my nap" he pointed out, shaking his head. Austin enjoyed when Cat would come back at times. When she didn't have to be so nurse-y and professional with him and they could talk like people

“I did even though I shouldn’t. It is way less than half caffeinated coffee though because I’m not hurting you.” Laughing Cat shrugged, “I dunno a pink kangaroo might be a sight to see. So long as you’re sober,” she pointed out with a smirk. Moving her dark hair out of her eyes she looked at Austin again. She was surprised to realize how much she had missed his company. “I hate that you are in here, but it is good to see you again.”

Austin nodded. He hates this place so much, but had to be there. “Yeah...it sucks. I should be in like Germany by now, but, I’m here just to torture you now.” he smiled at her.

After taking a sip ofher tea she rolled the cup between her hands and smiled sadly, “Well no matter where you should have been I’m sure anywhere is better than the hospital. As a patient anyway.” Looking in his eyes she laughed softly, “I’m used to you, you can no longer torture me. Seeing you bug the new people will be fun though.”

“Used to me? Nah, you can’t be.” He teased, smiling softly. Austin bit his lip in thought. “Wait, new people? This is gonna be fun.” Cat was Austin’s favorite, and he knew she probably shared the favoritism.

“You don’t think I’m used to you? I have spent more time with you than I have any other patient.” She smiled as she pointed that out. It made her happy to spend time with him. “Yeah, new interns. New head nurse. She’s a bit bitchy fair warning.”

“Oo, bitchy? Has she been with you yet?” Austin said but in a friendly way. Chuckling he took a drink of latte. “I’m kidding, anyways, how have things been around here? I’ve missed it kinda.”

Cat stuck her tongue out at him playfully and laughed. “You’ve missed it here?” She asked shocked any patient could miss dealing with being stuck here. “Everything here is about the same. Doctors boss us around, we run around doing everything, but the doctors are the ones that get thanked when the patient gets better. The normal unfortunately of life and death also.”

"Well, yeah. Kinda." He said again with a shrug. It wasn't the scrubs, robes, and normal hospital circumstances he missed, it was the personalities and all the great people he'd met. Austin would often tell Catalina his stories of his childhood and days with his band; like the time he got the shit beat out of him in high school and saw the man at one of his concerts, or how there were crazy fans and just how nights off went.

“You miss the flirting,” she teased as she sat back in the chair. When she blinked she felt herself having to force her eyes open again. This was the only bad part of being close with a patient, when you want to talk after you get off work it is difficult to actually stay awake. “How was traveling going with the band until yesterday?”

"Maybe, maybe not." Austin grinned, knowing she was right. "You look exhausted, Cat." He pointed out, shrugging. "It was amazing meeting so many people, making new music. Probably wouldn't do anything else if I had the choice.