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Brain on Fire
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Brain on Fire (February 2021)
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She gave lots of publicity to the disease she came down with - sounds horrifying and hopefully helpful for research and others who may be facing this or their loved ones. My RL book club is actually reading The Great Pretender: The Undercover Mission That Changed Our Understanding of Madness.
I got this from the library and started it last night. I love the way she takes us through her journey with rare/invisible illness, and the frightening experience of going through test after test, seeing doctor after doctor, with so many tests saying "nothing is wrong" when your body is slowly self destructing.I also have a rare/invisible illness (spinal CSF leak/SIH) which affects 5 out of 100,000 people. It took me 3 years and 15 doctors before someone thought to order a spinal tap where they finally caught it. It's been good reading a book like this and knowing others have shared this experience (which sounds bad--I would never want anyone else to go through what I did--maybe a better way to say it would be that I felt good to know I wasn't alone.)
Books like this help inform the public about rare conditions. I read this one a while back. My review: https://www.goodreads.com/review/show...
Has anyone watched the movie? I loved the book, but I want to make sure that watching the movie won't ruin it for me.



Brain on Fire My Month of Madness by Susannah Cahalan