Kathleen Daughety

“Right there was our catch-22: Because the country was so inaccessible, disabled people had a hard time getting out and doing things—which made us invisible. So we were easy to discount and ignore. Until institutions were forced to accommodate us we would remain locked out and invisible—and as long as we were locked out and invisible, no one would see our true force and would dismiss us.”
― Judith Heumann, Being Heumann: An Unrepentant Memoir of a Disability Rights Activist

“Write,” instructs Annie Dillard, “as if you were dying.” We are all terminal patients on this earth—the mystery is not “if” but “when” death appears in the plotline.”
― Suleika Jaouad, Between Two Kingdoms: A Memoir of a Life Interrupted

“I understood now why so many writers and artists, while in the thick of illness, became memoirists. It provided a sense of control, a way to reshape your circumstances on your own terms, in your own words. “That is what literature offers—a language powerful enough to say how it is,” Jeanette Winterson wrote. “It isn’t a hiding place. It is a finding place.”
― Suleika Jaouad, Between Two Kingdoms: A Memoir of a Life Interrupted

“But I was beginning to learn something very important: when institutions don’t want to do something, to claim that something is a “safety” issue is an easy argument to fall back on. It sounds so benign and protective. How could caring about safety possibly be wrong or discriminatory?”
― Judith Heumann, Being Heumann: The Unrepentant Memoir of a Disability Rights Activist