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Hillary Savoie

Goodreads Author

Born

The United States

Website

http://www.hillarysavoie.com

Twitter

HillarySavoie

Genre

Memoir, Ebooks, Science

Influences

Kurt Vonnegut ...more

Member Since

May 2015

URL

https://www.goodreads.com/HillarySavoie

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Hillary Savoie, PhD, Hillary Savoie has blogged about life with her daughter Esmé, who is medically-fragile, since September 2012 on The Cute Syndrome Blog. Hillary’s first short book, Around And Into The Unknown tells the story of her family's journey through Esmé's genes in an effort to find a diagnosis for Esmé. Around And Into The Unknown is available as an individual e-book and as part of the paperback anthology Travel 6 of 1. Her second book, “Whoosh,” also by Ponies + Horses Books, will be out in July 2015.

Hillary is also the Founder and Director of The Cute Syndrome Foundation, which is dedicated to raising research funds for and awareness of rare disorders like PCDH19 Epilepsy and SCN8A Epilepsy. She is also the Chief Communication ...more

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Hillary Savoie’s books

Average rating: 4.77 · 13 ratings · 2 reviews · 5 distinct works

	Around and Into The Unknown (Travel 6 of 1) 4.80 avg rating — 10 ratings — published 2015 — 2 editions	Error rating book. Refresh and try again. Rate this book Clear rating 1 of 5 stars 2 of 5 stars 3 of 5 stars 4 of 5 stars 5 of 5 stars
	Travel 6 of 1: P+H Travel Anthology by Geraldine DeRuiter (Goodreads Author), Aefa Mulholland (Goodreads Author), Carla Wilson it was amazing 5.00 avg rating — 3 ratings — published 2015 — 3 editions	Error rating book. Refresh and try again. Rate this book Clear rating 1 of 5 stars 2 of 5 stars 3 of 5 stars 4 of 5 stars 5 of 5 stars
	Whoosh (Childhood 6 of 1) 4.67 avg rating — 3 ratings — published 2015 — 2 editions	Error rating book. Refresh and try again. Rate this book Clear rating 1 of 5 stars 2 of 5 stars 3 of 5 stars 4 of 5 stars 5 of 5 stars
	Around And Into The Unknown 0.00 avg rating — 0 ratings	Error rating book. Refresh and try again. Rate this book Clear rating 1 of 5 stars 2 of 5 stars 3 of 5 stars 4 of 5 stars 5 of 5 stars
	Childhood 6 of 1 by Hillary Savoie (2015-07-15) 0.00 avg rating — 0 ratings	Error rating book. Refresh and try again. Rate this book Clear rating 1 of 5 stars 2 of 5 stars 3 of 5 stars 4 of 5 stars 5 of 5 stars

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73 posts
Hillary Savoie's Blog

Get in Line

A visit to the amusement park with my child with special needs

Lately my notions of what is possible for Esmé are changing.

I don't mean the distant ones that I do my best to keep an open mind about: Will Esmé speak? Will Esmé walk? Will she fall in love? Will she find a way to share her talents with the world through some kind of work?

Rather, I am referring to my concepts of what the five-and-a-half-year-old girl in front of me can do...these are changin Read more of this blog post »

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