Angel Ackerman's Blog
October 7, 2025
We went for a Real ID and ended up with doughuts
Today, my friend Nancy and I embarked on getting her Real ID here in Pennsylvania.
We have prepared for this for weeks. We went online– at least twice– and checked the document requirements. We checked that the federal shut down wouldn’t impact state services. We reviewed the documents ourselves, provided extra ones where we could, and organized them.
Nancy has never had a Real ID, but she has had state-issued photo identification. It expires at the end of the year, and with the nature of life recently and the talk of needing certain forms of identification to enter federal buildings, Nancy thought a Real ID was smart. Nancy is blind, and should she ever have to turn up at the Social Security Office to straighten out any messes, she might need it.
With the rules in general on travel and proving one’s identity, it seems smart indeed.
I went through all the documents. We had an original birth certificate with raised seal, social security card, tax documents, marriage certificate with raised seal, utility bills for proof of address, and who knows what else we had in that envelope.
We could have gone to the local driver’s license center and had them verify our documents. If we passed their inspection, the next step would have been to apply online for the ID. Then, the state would mail a camera card for us to get the photo taken and the final product issued.
I talked Nan into going to the larger center in Whitehall because theoretically they could do everything all at once.
I was optimistic but also pragmatic.
We got there when it opened. There was three regular spaces and two handicapped spaces left open in the parking lot. I chastised Nan for not bringing her parking pass. The center had at least 10 counters open in a space that resembled a small airport terminal. The line extended out the door. We got inside within three minutes, chuckling at the guy behind us who had to answer the guy behind him about what documents he needed to renew his driver’s license.
And then that person loudly proclaimed, “I can’t stand here in line; I have to get to work.”
Then, why did you even show up if you don’t have the documents you need and you don’t have time. I literally cleared my whole day, just in case the wait was long. I had snacks, too.
We progress toward the end of the rug that lines the floor in front of the door. The man in front of us steps off the rug. A security card tersely tells him to get back on the rug.
The first stop is what might be reception desk where you are issued a number based on what you need to do. Nan states her purpose.
The gatekeeper, like a troll guarding a bridge, asked for her state-issued ID.
Boom.
He follows up with a request for her birth certificate.
Boom.
He then asks for social security card.
Boom.
Next, marriage license. Now, if we ace this, we only have proof of address left. I am nervous about the marriage license because all the married and especially divorced women I know have had problems with this step. Nan is nervous about address because she has moved since her state identification was issued.
The gatekeeper unfolds the paper. The one I studied so carefully because it had a raised seal.
“This is just a church certificate,” he said.
“What else would it be?” Nan asked.
As my heart fell, he said what I expected. “It needs to be the marriage license from the county courthouse. You should be able to walk in and pick it up.”
So we didn’t get to proof of address.
And I felt terrible because I knew they were picky, but I don’t know what the county-issued document looks like. I don’t believe they hand those out. I think the officiant files them and you have to request a copy in order to get one.
On the way home, Nan was apologetic and annoyed. I was upset with myself because I knew better.
But then we both got pissed.
Nan got pissed because this feels like another attempt to further impoverish people. If you have a disability or if you have a certain background that makes paper record-keeping difficult, or if you can’t drive or don’t have a car or reliable public transportation, how do you collect these documents and transport them to a formal government office like this? Especially when such places are typically crowded and require patience and waiting; and they are typically open at hours like 8 a.m. to 4:15 p.m. Monday through Thursday when normal people are also working.
I got pissed because look what document tripped us up–
The Marriage License.
Have you ever heard of a man being denied something because of a “discrepancy” with his name? (Actually, yes, I have. Men are much more prone to carry the name of a father or grandfather which can cause problems.)
In this case, Nan was denied a Real ID because we don’t have a county marriage license proving she married and changed her name.
But… Nancy has paid her taxes for 30 years with that name.
She has bank accounts in that name, and you can’t open a bank account without proving you are who you say you are.
Nancy receives her social security disability payments in the name of Nancy Scott.
And you know another thing that ALL THOSE OFFICIAL items have in common? The use her social security number as the factor that connects her to everything.
So what does her marital history have to do with anything? This does NOT have to be part of the process. At first I thought it made sense, because obviously you have to explain the name change. But if you have a track record of DECADES of use of the same name in association with your social security number, I don’t see its necessity.
 
We went back to her house and she did not have a county-issued document recording her marriage. And trust me, if someone had given Nan such a paper, she would have it.
We could have stopped by the courthouse but we opted to call first and went for a doughnut instead– trying the new shop Bill & Siobhan’s No BS Doughnut Shop.
October 6, 2025
On writing, living and working (with a disability)
I pride myself on being able to write just about anything at any time with no fear of writers block.
But lately, I haven’t been keeping this blog up-to-date. I think it’s because I’m doing so much that I don’t have enough stillness to think, reflect and write. I still have the thoughts, but I don’t have the time to germinate themes and record them and so I lose the moment.
Last night, I was a guest speaker at the Behind Our Eyes writing group for writers with disabilities. Nan has been a part of that group probably for most of its 19+ year existence, but I am a relative newcomer. I joined because I read Nan’s email and work so closely with her as a writer that I already knew most of the members in the creepy troll way.
Nan pointed out to the group that I was a gifted cook and bargain hunter, and that she hopes I commit more time to my disability memoir because I have some insights that the world needs to hear. And maybe they are things I also need to remember.
I overdid it last week. The last few weeks have been insane. I haven’t been eating right, or sleeping well, or giving myself any breathing room. I saw my cardiologist last week, and I mentioned to her that I don’t know if my blood pressure medications are the most efficient way to stabilize my heart rate.
The backstorySo, in March 2023, I had two bad falls down stairs in close proximity– 2 weeks apart. Neither were traditional mechanical falls of the type I am used to, those from lack of proper muscle control due to cerebral palsy. The first occurred as I was hurriedly leaving work to go to the chiropractor. I dove down the cement stairs and ended up severely spraining my pinky. Most dumb injury ever, and my pinky is still bent.
I didn’t know it at the time, but my eating habits had flooded my system with salt when I misbehaved, and then when I suddenly returned to my normal diet and drank the massive amounts of water I had always consumed, well, I washed all the sodium from my body, causing low blood pressure and dizziness (orthostatic hypotension).
With cerebral palsy impacting my gait, and allergies/congestion also challenging my balance, a sudden drop in blood pressure may have caused the fall. (I suggest this because I did almost pass out in the moments after the incident.)
Almost two weeks later, I was carrying a cup of tea upstairs when I had a nothing fall triggered by my head and not my legs. My daughter watched it happen. I plummeted out and down and into an air conditioner that was on the floor. I split open my chin directly under my lip. I definitely needed stitches so we headed to the emergency room.
I told the doctor that I knew mechanical falls and these weren’t from my legs, and he gave me some options:
He could stitch me up and send me home in a matter of minutes.He could order every test and I’d be there all night.I asked if there was an option in the middle, and he suggested starting with some bloodwork. But they also noticed my blood pressure hadn’t come down so they put me on a heart monitor and very quickly noticed that I was in Afib with OVR.
So it looked like I would be there all night anyway.
They eventually labeled the whole incident as idiopathic and put me on a low-dose beta blocker to make sure I stayed in rhythm. I invested in an AppleWatch to try and get information about what my heart was doing.
Fast forward to present-dayI have had no incidents of Afib since that initial one. But each fall, my blood pressure has risen in the autumn. Is it allergies causing stress on my body? Is it the stress of the end of the year and all the obligations of adulthood like taxes and paying for fuel oil? Is it just the looming presence of Christmas? Or is it the change in the seasons and the shorter days? Or a figment of my imagination?
In the autumn, I struggle more with anxiety. My primary care physician has talked with me several times about the impact of stress and anxiety on heart health. I have been in and out of psychotherapy for 15 years showing symptoms of depression and generalized anxiety disorder.
So I asked my primary care doctor, my cardiologist, and my psychologist if I might need an anti-anxiety med instead of the combination of other meds for high blood pressure. Because typically my diastolic pressure is typically good, and high in response to stress, but it’s not uncommon for my systolic pressure to stay high even when my heart is at rest, sometimes elevated for days even with a now higher dose of the beta blocker.
I take a muscle relaxer for spasticity several times a day and some anti-anxiety meds can also treat this, allowing me to reduce the amount of medications I am taking. A standard low-dose beta blocker and muscle relaxer for maintenance and on days that I am anxious, an anti-anxiety med instead. So now I’m on the hunt for a psychiatrist to get an evaluation.
 Which brings me back to last week
Which brings me back to last weekLast week was brutal. I was booked every day from 8 a.m. to at least 10 p.m. And Saturday I attended Collingswood Book Festival as an author with Pennwriters Area 6. I met with clients everyday, taught my college class, went to WDIY to talk about advertising my business (and hopefully make some new friends)…
And I still worked part-time. I don’t talk much about the job I have in a local fast-food restaurant, a job I took last January because after a year of relying on Parisian Phoenix Publishing for my income, the realities of first quarter in the business world were making me nervous. And since royalties pay out three months after sales, I know how much money is coming and when.
And 90% of the time, the evening fast food job suits me perfectly and feeds me. The general manager was an English teacher until this year and understands my business and my frequent time off requests.
But last week I had two long shifts back to back where I was assigned jobs that were physically challenging for me. And I haven’t been in that much pain and discomfort in a long time.
And so even though I still have more work than time, and business can be as stressful as it is rewarding, I will try to go easier on myself. I only have two fast food shifts this week, and they are both on the longer side… but my days aren’t packed nearly as tight.
September 21, 2025
A cane, a popcorn machine and a compost heap
I realized yesterday, after working for at least four hours on a political profile for Armchair Lehigh Valley on the upcoming Easton (Pa.) City Council race, that I currently spend about ten hours a week on political journalism for that publication, about ten hours a week teaching college and another twenty hours working my evening fast food job.
That’s 40 hours a week, before we consider the 30-plus hours a week I devote to my book publishing business, Parisian Phoenix (parisianphoenix.com). I thought I had everything perfectly balanced– but toward the end of the week, my sleep was starting to suffer.
And last night I fell. Not once, but twice. And not at home. Or even on the street. But at my fast food job. Both of the falls were trips. Both were quickly forgotten.
But when I got home, and when I woke up this morning, my body was struggling. And when I caught my right foot “catching” on my left ankle and almost causing a fall on the way to the restroom, I went and got my cane out of the car.
(And because I often have a lot of 21-year-olds in my house– Eva, her romantic interest, and one of her friends from high school staying with us– they thought my snake head cane was badass. They also encouraged me to change my outfit to match it as I am currently in sweatpants.)
After finishing my lesson planning for my class at Northampton Community College this week, I started the new Superman movie as I am a Superman fan. Since the movie includes Krypto the Superdog as a significant character, I restarted the movie an hour in so I could watch it with Eva.
 
When Eva left for work, I cleaned the cupboards and collected all the open and stale food items that were more than a couple weeks old. I also admitted what items I would never eat and I took these out to the compost heap. A lot of crackers including a box of Triscuit thins I treated myself to and forgot about.
This is really hard for me. I have experienced food insecurity and have gone mildly hungry, so I have a tendency to not waste food to an excessive degree.
I used to garden when Eva was little, and our neighborhood has terrible clay soil so I keep a compost heap under my porch. And believe-it-or-not, the regular digging and turning of the heap provides a great deal of emotional relief for me. Resuming care of the compost heap has given me some renewed vibrancy. And a lot of mosquito bites.
And if you haven’t cared for your own soil, it’s amazing to see the soil change and grow richer.
In addition to the maintenance of the compost, I also cleaned my popcorn machine. I’m hoping maybe the 21-year-olds might want to have a movie night with popcorn sometime.
All those memories of pizza and popcorn from Target Café.
September 12, 2025
End of Summer Update
More than a month has passed again. Since I last blogged, I have taught three classes at Northampton Community College in their creative writing program. Well, it’s one class and I’ve taught for three weeks. I am the instructor for their publishing class, “Paths to Publication for the Aspiring Author.”
My falls have been minor. A little too frequent, but they typically classify as trips and I have managed not to significantly hurt myself when I go down. Though I hate that they are happening about every other week.
I had two of my four annual doctor visits– gynecologist yesterday and primary care provider today. I even got my pneumonia vaccine, since the recommendations have changed from age 65 to age 50. Shingles will be next.
I have officially lost ten pounds during the last year. It’s not as much progress as I would like to see, but it was enough to please my doctor. He says my efforts in weight, nutrition, rest and exercise will have a huge impact on my life in ten or twenty years.
Though I am still a big fall risk.
I did finally get some medication issues straightened out between CVS and my insurance company. The insurance company kept refusing to pay for my pills until my neurologist changed the dosage of the individual pills from 5 to 10 mg. If I need five, I need to cut them in half– but at least they are paid for!
August 6, 2025
Ruminations on a fall
It’s been a month this time– since my last entry and since my last fall. I wasn’t going to share this fall. I wanted to keep it to myself because it’s circumstances were mortifying enough. No need to share with the world.
But then a friend fell down the stairs. And I sent my regards, asked how she was feeling, and we had a conversation about the mental toll falls take.
I fall a lot.
Before my fall in July, I was thinking to myself, “It’s been about six months.” And I felt smug. And just now I went to my phone where my watch records hard falls and I manually enter the smaller one and I realized… for most of 2025, I have had a fall worthy of noting just about every month. And that “six months” I had in my mind– it was two months.
It felt like a lifetime.
Here’s the thing…
When something happens and a person falls, that person knows why it happened, brushes themselves off, and goes about their business. But when a scary fall happens… Well, maybe you just misjudged or your balance was off or your body didn’t do what you expected it to do… It’s not about injury. It’s about your body failing you.
It’s a special mind game when you can no longer trust your body.
Most people will experience this type of fall in their lifetime, and most of us will have more than one instance. Falls can often be the first sign that something is off.
It could be as simple as being tired, the kind that comes from not sleeping well or working too hard.
It could be blood pressure fluctuations or allergies impacting the sinuses.
It could be the failure of a certain muscle or neurological dysfunction.
And sometimes it could be a simple trip because your body couldn’t compensate as quickly as it needed to. (Or your eyesight failed and you didn’t see something you should have.)
These falls are terrifying. The mental anguish is more confusing and painful that the bruises or lacerations. The embarrassment, especially if you fall doing something simple, is so crushing.
My recent fall?
It barely left a mark on me. But, if I’m honest, it still reverberates through me even today, five days later.
Now, if you are reading this you probably know me or you’ve read some of my stuff before. I have a lot of eclectic interests so I’m not going to assume you’re here for or familiar with my disability content. But if you don’t know, I have diplegia spastic cerebral palsy, and I spend a good deal of my life as a fall risk.
I run a small publishing company putting out 10-12 books a year. I help freelance clients with their own book projects. I cover my county for a local political newsletter run by former staffers of our local daily newspaper. I write horror novels. And as of this fall, I am teaching a three-credit class at Northampton Community College.
But sometimes that’s not enough to pay the bills. So I have a part-time job in the evening.
And I fell at that job on Friday night.
In front of a LOT of people. But not one of my co-workers or supervisors saw, so that made me feel super vulnerable and invisible. On top of mortified.
And my daughter is livid, ranting about how I shouldn’t have been in a position alone where that could happen.
I’ve been under some stress, and my blood pressure has been all over the place with no logic. Allergies have been terrible. Some weeks I sleep decently, but last week I did not.
I walked about 3,000 steps in the 90 minutes before I fell, about 3.75 hours into a 4.5 hour shift. So I was certainly tired.
And even though I know and understand that I have falls, it still shakes me to the core when I have one. So, I can only imagine what it feels like when it’s not something that happens to you.
In other news, I may need to do a cat update soon. Our 14-year-old tripod cancer survivor is scheduled for euthasia Tuesday. This is the second cat I have lost in two months.
July 4, 2025
A visit to Boonton, N.J.
Almost two months.
I sat down a few times to write a post and never finished.
In the last two months:
I celebrated my 50th birthday.My personal cat of five years died suddenly.My daughter turned 21 years old.I spit out part of a tooth, one that I originally damaged during my big fall 15 years ago.Even though we have other animals, and even other cats, in the house, the loss of Fog has troubled me. That’s been hard. It creates a special loneliness to have other pets around but none of them are truly mine. Now the bird would beg to differ, she would say that she is the ultimate companion and that I should have no other beasts before her. And perhaps that makes me her pet. For larger birds are even worse than cats for acting like they are the most superior of species.
Yesterday, my dear friend (and Parisian Phoenix art director) Gayle and I went to Boonton, N.J., to see if we could find the remnants of their portion of the Morris Canal.
 
We failed. And while I was there (specifically somewhere around point 10 on the map), I spent a few minutes studying the map to make our visit more successful, but the summer sun perhaps made it more difficult to interpret the map. I may have to return and try again.
So, Why Boonton?I wanted to visit Boonton for several reasons. I had been discussing and researching the Morris Canal as part of my work with Maryann Ignatz, the fourth-generation proprietor of Steve’s Café/ Historic Morris House on South Main Street in Phillipsburg, N.J. Her family’s business abutted the Morris Canal and canal workers would stop for food and drink along the way.
Reason 1. I have a fascination with canals and the Industrial Revolution in the United States. The coal regions in Pennsylvania were so instrumental in feeding the cities from Philadelphia to New York. Think of all the petroleum reliance we have today– and in this era as electricity was just coming onto the scene the indsutrial sector used coal to produce steam to provide energy for travel and manufacturing.
Reason 2. I was born in Boonton and some of my family used to live there.
 How the visit went
How the visit wentParking is super easy and plentiful with a $1 fee to park all day. If you use ParkMobile, the fee is $1.30 and gets you exactly 24 hours.
I fell before we got fully out of the parking lot.
(But it was my first fall since April! And it didn’t register on my watch which means it wasn’t a hard fall. The impact was relatively gentle.)
 Loved the Van Gogh paint job
Loved the Van Gogh paint jobThe downtown had at least four coffee shops, some art galleries, several gyms/pilates/yooga studios, a record store, an alternative clothing shop, a bookstore (which is only open Friday, Saturday and Sunday), pizza places, convenience stores, a crystal store, a Mexican restaurant in what appears to be a classic diner, and other businesses and restaurants.
We meandered along the Rockaway River and found a couple of the spots listed on the map, but somehow completely missed that we should have explored Plane Street.






After exploring parks and looking for historical markers for about 1.5 miles, we visited Catfight Coffee– chosen for its name of course. It offered Goth-inspired decor and music from the dark end of the 1990s. ‘




The final thing we noticed was The Dog Days of Summer project. Various dog sculptures lined the downtown.
 
   
   
   
  May 11, 2025
Mother’s Day morning & a pretty perfect Saturday
This morning I found something truly beautiful on my desk.
Eva had picked roses from our rose bush and left them with a sweet card. And she used a novelty chicken watering can as a vase.
 
This week, and the weekend, has been a mix of refreshing and infuriating. The car battery died on Friday which threw that day off-kilter. And Saturday was very busy– Phillipsburg comic con with the Echo City duo, where I also picked up a copy of Hustler that features Ralph Greco’s article on female porn stars that host successful podcasts.
On the way home, Eva and I stopped at Pie + Tart to grab some refreshment and said hello to Parisian Phoenix author Hugo Yelagin and grabbed this delicious lamb & chickpea stew. I didn’t mean to eat the whole quart and burn my mouth, but I did. No regrets.
 
Then, I attended an event launching Poetry Rocks! at Northampton Community College— where artist-in-residence Anne Sipos debuted her installation along the college’s poetry walk. You can learn more about that here: Poetry walk.




Then, I had a three-hour shift at my part-time job. We were very busy and my body was not very able to keep up, so that was not a fun three hours, but it also was not the worst. Unexpectedly, my supervisors gave me an early birthday card and a $10 gift certificate that I could apply to just about any entity. So that was nice. And four of my supervisors even took the time to write personalized messages on the card.
April 29, 2025
Some days go off the rails (or weird reasons why I didn’t get my work done)
Whether you’re a small business owner like me or a homemaker or someone who works a corporate 9 to 5 or whatever, it often feels impossible to make a dent in life’s responsibilities.
I think as I get older, and as one friend keeps reminding me I have a significant birthday coming up in May, I realize it doesn’t matter. Stuff eventually gets done or it doesn’t and the important/necessary stuff rises to the top.
Or maybe that’s just because I’m good at prioritizing and fairly awesome at time management.
The last week or so has been exhausting and/or exciting depending on your point of view. I’ve scheduled a storytelling/written word workshop with Larry Sceurman at Hellertown Library at the end of May. I’m strategizing a memoir workshop this summer in the suburbs of Philadelphia. I helped with and sold books at a storytelling event at Bethlehem’s Ice House (hosted by Patchwork Storytelling Guild). I sold books and talked with poets at the third annual Poet Palooza 3 at Book & Puppet Company in downtown Easton.
I received word that Lehigh Valley Community Foundation approved my application for a Pennsylvania Creative Entrepreneurship grant, which I will use for national and local advertising. I performed my duties as president at Greater Lehigh Valley Writers Group and heard a fantastic presentation by Jill Peters.
And book orders have picked up. Still not to the level as last year, but enough to give me hope. I am finishing my local candidate profiles for Armchair Lehigh Valley.
 
Yesterday I went to the eye doctor and spent more than $500 for exam and glasses (at which point I was told, before being given the price, that they knocked 30% off everything because my insurance was crap). I tried on every pair of Parisian Phoenix pink glasses.
That got me thinking– as everything often does– that with glasses normally being updated every two years I pay about $30/month for eyesight.
And walking home from the eye doctor, I fell. So that sucked. But I’m fine, so yeah!
I received a call from my life insurance company today that I scheduled last week to convert my term life insurance into something more permanent. The bad news is, it’s probably going to cost triple my current policy. But that’s an conversation for me and another agent next week. Sigh. The insurance person kept me on the phone for 45 minutes and we may be continuing the conversation this weekend as she has an idea for a book.
In other news, my blind friend Nan received a print poetry book from a small press recently. We had ordered a braille one, and so I tracked down their email and reached out to see if there had been a mistake. Turns out they made an error so Nan will be getting her book. It felt good to resolve that and get her the book. And I wanted the small press to know there is a real need for these braille books.
 
Also today I applied for and received a business American Express. I’ve had a personal AmEx for quite some time but now the business is established enough that it can have and should have its own card. No more Ingram bills on my personal card. Yay! (And yes, I do have business banking, but the business account doesn’t always have the assets for large print orders.)
Finally, let me offer you this photo of Eva’s dog wearing Gayle’s sticker from Jury Duty.
April 6, 2025
Well… That’s a first
Every week, usually during the weekend, I walk down to my local CVS. It’s about a half mile away, and between my daughter and I, we usually have a prescription to retrieve. And if you buy items at CVS regularly, it triggers a variety of digital coupons that can have a domino effect and yield good deals.
Today I had about $5 in ExtraBucks, plus a $2 off a $12 purchase, plus some digital manufacturer coupons in the CVS app, and some product-specific CVS coupons that I planned to add to a 30% your full-price purchase coupon.
I bought a 90 count of Total Home kitchen trash bags (which were similar in price to a 100 bag box at Target), plus eight-gallon trash bags that were expensive for the number of bags in the box. BUT– I had a $5 off $15 coupon for Total Home trash liners AND the 30% total full-price purchase coupon, and the $20 box of 13-gallon bags would guarantee I hit the minimum after the 30% reduction.
Eva needed large bandages and some first aid cream, which was also full price. My bill came to about $43 and after coupons and discounts was $20.31.
On the walk home, I stumbled walking up my least favorite hill. I could feel my feet dragging but just didn’t have the strength to fight them. Here’s the odd thing– I lost my balance because my toes were dragging upward along the sidewalk. My arms went out, and normally at this point I do a bit of a corkscrew roll to minimize the damage as I attempt to fling myself onto grass.
But today something very unusual happened.
I recovered my balance. My hands hit the ground, but my body bent more like a hinge instead of crashing into the concrete. I didn’t even scrape my palms. I bent; I stood up. I walked home.
Never in my life have I recovered my balance once I put out my hands and braced for the fall.
Never. Ever.
Now, when I got up this morning, I gave myself a stern talking to because I did not go to 8:30 a.m. Boot Camp with Greg at Apex, my favorite local private gym. My back hurt and I was groggy and a host of other excuses. So I made myself promise that I would walk to CVS.
I need to do some straight leg deadlifts and other exercises for my back and legs but I’m not that motivated yet. And I stumbled at home trying to walk around the vacuum cleaner at the bottom of the stairs (Eva got a new vacuum cleaner, well, her third of the same model) and tripped after the CVS trip over a huge cardboard box right in front of my eyes. But neither led to a fall. Let me repeat, neither led to a fall.
I’m having more leg, hip and knee pain than usual, perhaps due to the dampness, the rain and the drop in temperature. Who knows?
 
I checked my phone and before I left for CVS in the first place my walking asymmetry spiked to 36% and before and after the near-miss fall registered at 2%. Now, let me reiterate (as my favorite doctor would say) that these phone figures are far from precise or even scientific, but they do seem to accurately reflect trends in my gait. My fall risk/walking steadiness consistently gets classified as “okay.”
 
But when you look at the last six months, you can see a drop. And while both are still within the range for “okay,” I wonder about it.
And for the record, last night, at my four-hour shift for my very part-time job that has somehow become 23 hours a week (thanks to some staffing issues and I can understand that), I worked at least five different positions.
I did some standing still, then a lot of walking around across a nice stretch of distance, and then I stood still some more until 2.5 hours into my shift, I was asked to cover a break delivering food inside the restaurant. At the beginning of that change, twice over the first five minutes, the asymmetry registered as seven percent. Did I notice it? No. Did it happen beyond those two instances? No. And after that 30 minutes, I went back to a position where I primarily stood still but also did a lot of stocking which meant moving to various storage locations and lifting boxes of various weights.
And the pace of the restaurant means my heart rate is usually between 120-130 for my whole shift. I noticed last night it reached 172 bpm. That’s my maximum heart rate at my age! My heart is supposed to be physically incapable of doing more than 170 bpm.
As I promised my doctor, I have been taking my allergy medicine, watching my blood pressure and taking the appropriate prescriptions and taking my baclofen. I’ve been good about taking at least 10 mg before my shifts.
PS– the anecdotal evidence is mounting that the Twinings Sleep + vanilla and cinnamon tea with melatonin not only tastes like a baked good, but it also increases the amount of deep sleep I get. I will still keep Traditional Medicinals Valerian in my rotation, but Twinings is a definite win.
PPS– I ate almost a whole can of salt & vinegar Pringles last night and gained a pound overnight. And because of how Omada measures your success as an average of the whole week, they have my weight listed as 163.5. It was 161.5 yesterday and 162.5 today.
April 4, 2025
The Day the Garbage Trucks Swarmed
My shift at the restaurant Thursday evening went much easier than Wednesday— though I couldn’t bend and reach the floor and I took a lot of Baclofen.
And my left hand strangely hurt last night in the fifth metatarsal, in the same spot where I broke my right hand what had to be a decade or more ago.
Today I slept until 8 a.m. when my Goffin’s cockatoo, Nala, screamed, probably concerned that I died in my sleep.
I stripped my bed, started laundry, drank some coffee and used household chores as my warmup for a home workout. (After clearing my business email and banking stuff.)
The scale showed another pound gone. Soon I might hit the ten-pound mark.
Nothing like 30 or 40 pound cat litter boxes to practice farmer’s carry. And five trips up and down the stairs gets the heart rate up.
I did a pretty solid shoulder workout today, 22 minutes of just weights— including push press, dumbbell row, shoulder lateral raise.
Did some more wash, handled some more email and spoke with one of the Parisian Phoenix authors about a presentation we have been invited to give at Hellertown Library.
I did the dishes, started cooking some chicken livers for the dog, and made myself a big salad with lots of carrots.
I went to Panera for a while to work on my background material for the stories I am writing for Armchair Lehigh Valley regarding the May 20 primary.
And I got my schedule from the restaurant— 4 days in a row and 22 hours. I messaged my boss on Slack to warn her that that may be a struggle for me. She hired me so quickly I never had a chance to tell her about my cerebral palsy. She hired me to work 10-12 hours a week in the dining room, so I didn’t think I would have to.
But here I am, working 20+ hours all over the place.
I wasn’t sure how to bring it up, and I feel it’s better to do these things in person, but at least on Slack there’s a paper trail.
It turned out to be a great conversation. One we will continue in person. As I suspected, she’s short-staffed and I can really use the money so I didn’t want to complain.
Eva picked me up and we stopped at Grocery Outlet. And as soon as we got home, three garbage trucks swarmed us and our house.

I made a vegetable lovers DiGiorno thin crust pizza and split it with Eva and watched some more of The Pitt. Then I came up to make my bed, clean litter boxes, feed the bird, and get the cats water before my shower.
Now it is almost 8 p.m. and I plan to read until I am sleepy.



