Allison Knight's Blog

I did not sleep well lasts night, Never buy a refurbished computer. Tiger and a
martjk@mchsi.com
and I will be having a talk Monday.

In the meantime my angle finds the most wonderful things for nails and bed and all my drinks for my pills.                                    

I do feel better if  DH FEELT BETTER!


~Allison~

As things progress I find that things need to be adjusted.My granddaughter got  a lap tray which helps.And my son is installing Dragon tomorrow. That should help also said as-long; as the fingers work I will write.

Breathing is hard, but  there is not much pain more to come? Time will tell. in the mean time I'm living each day to the fullest

tomorrow we start on the booklets for Lovesong and I intended to  teach granddaughter some arts and crafts things.

Not going too well. Typing is hard, too many, This I the first time I've managed the put some decent thoughts together for days. And not doing that too well. I end up with five or fifteen i's o's or 'p's .
I am sliding, although my nurse says not a while yet.

My granddaughter from Wa  is here and God sent me am angel. She cooks, cleans, washes. I don't think she there is anything she can't do.

From now on thing will be short.

Allison

I"m coming to the end. Lots of pain.  Pills don't do much good, more prayers please.

Allison

Had to call the nurse this morning. I started an increase in my meds yesterday and this morning I was very concerned that I was reacting to it. I felt weird, my breathing was hard so I called my nurse. We don't think it's the meds, but breathing is hard and I have to admit I felt funny for a good part of the morning.

Here is why I encourage anyone terminally ill to get hospice help. The nurse came Right away, took all the vital signs then stayed with me for about an hour to make sure there was no meds reaction. Now, I'm very sleepy and I must sleep.

So, night all.

I started this blog to help people going through what I'm going through. So far, it's been very easy sailing. But things are beginning to get a bit touchy. The hip pain is almost gone - completely - but I suspect it's because the pain under my left shoulder blade is really nasty. The nurses keep saying on a scale of one to ten. Unfortunately,  with each visit it gets a bit higher. I'm starting to grind my teeth with it, so it's getting up there.

My really good news is that DH got told he goes in tomorrow for a complete upper body scan. Now, we'll finally find out what's wrong with him. The will take some (probably most of my worry away.) When you have been together as long as we have, feeling the way we do about each other, my worries are about him and his worries are about me.

That's why I feel so sorry for people who have no partner as the end nears. You have no one to be considered for or with. Time to bow my head and give thanks for the partner I have.

Bending head, here.

Allison

We went to the grocery this am. Oldest son arrives tomorrow so we needed food.  He still likes to eat, even though his father and I don't eat nearly as much as we used to eat.  So, now I'm tired. Better term would be exhausted. I can only do  much any more.

Of course, I'm also worried sick about DH. He gets as tired as I do. He has to stop and rest and he's having trouble breathing too.  Sympathy pains? I've mentioned it before, but tomorrow, finally, he will see his doctor. I think he's worried enough that he'll tell all. I have a feeling he's never completely leveled with the doctor before. And of course, they are friends, so that makes it harder I guess.

So, maybe you could squeeze in a prayer or thought for him as well. We'll be in serious trouble if we both are sick with something nasty.

My thanks

Allison

Time to breath and rest. In fact, that's about all I get to do more than half the day. Fortunately, I can sit at the computer and type away. Problem is, the writing programs I use are all on the big computer in the office, what used to be  few feet away but now seems like a mile.

Oh and I forgot to talk about the wheel chair. See, I figured since my legs are good and strong and my arms work fine, why not a wheel chair I could manage on my own to go from room to room. Right?
Sounds like  great idea. Care takers were skeptical but everyone agreed I could try. So here came the wheel chair. However, this one was a chair that had to be pushed. No way for me to turn the wheels. Okay, that wasn't going to work. They took it back and brought out the one with the wheels I could turn to make it go.

And I made it go! right into a table, but with a sharp corner where I promptly tore off about 2 inches of skin. Remember what I said about keeping my mouth shut. I guess that has to go for my ideas as well.
(sigh). I'm going to have to listen to all my advisors.

Okay, now my DH says I can go to my office and work on the budget at least for a little bit. So, since I get to work for a bit, I better take advantage. Because, based on past experience I better do what I'm told.

Allison

I'm going to have to go to my dictionary and starting looking for works the describe rough, tough, etc, I have a feeling I'm going to need them.

Last night was rough. Breathing was hard and very breath felt like a good kick in the back. All in one spot too. If you've ever had pleurisy you have a pretty good idea what it was like. And this is wonderful part of having hospice care (a good one) I called this morning and explained what it felt like and ask what I should do. After my nurse went through current med routine she called the doctor. I then got three more phone calls. Med routine has now been changed  and I have orders to call if I have trouble tonight.

Unfortunately, the meds I need won't be available until the first of the week but with the routine med change right bow things should work better. The weather is getting very warm and that probably has an effect as well. (But warm is better than freezing - believe me, I know.)

And the orders for today - you are gonna love this.  DO NOTHING! I get to sit in my chair, take my pills, listen to music and read. That's it. No cooking, no laundry, no shopping, no cleaning (which I don't do anyway) and take it easy. Just rest. This to a bookaholic. HE. He. He. He.  

So I am now going to grab my kindle, and read. Doing nothing.  (grinning from ear to ear) I wonder if DH thinks I invented this so I could sit and do nothing.  Well, I certainly don't want to give him that idea.

Now where is that kindle?

Allison

Well, talk about stupid, I mean really stupid. I have a power port! It is a clip like device that was inserted during surgery along with a tube that goes from the clip inside my chest to the main artery in my neck. It is a marvelous way to avoid a pick line, which also goes into a main vein and stays for up to a year. With a pick you have a tube hanging out of you arm (where they usually put it) which you have to clip closed every time they draw blood or insert meds. And yes, it's not easy to walk around with a tube hanging out of your arm. The port doesn't show. Only problem is it has to be flushed once a month. Of course, if you have big veins that are straight and don't mind a slight bruise, then a blood draw from your arm or hand will work. My veins are tiny, wiggley, and I bruise something awful.

Now, that's where the stupid comes in. The meds company came with the supplies. Everything that came was what I had when I had a pick line. So what did this "very smart" person do. I sent the stuff back. I didn't have a pick line. I didn't need any of this. HA! What I needed was with the stuff for the pick line. So I sent everything we needed to flush the port back 'cause I was so smart.

One of these days, I'm gonna have to learn to keep my mouth shut!

My nurse graciously agreed to call and have them return the package. They did and my husband answered the door. I was hiding my red face.

Now, I have decided to let my nurse order whatever I need and I WILL keep the mouth closed.  I WILL!

Stupid Allison