World ME/CFS Awareness Day is May 12th. This time three years ago, I shared about having ME/CFS and how I make meaning in it. The reality is that this is a chronic illness and there is no cure. I feel it’s important to post occasional updates to be real about my long-term residency in the kingdom of the sick.

What is it like to make a home here? Those of you with your own residency cards know what I speak of, the day in and day out of the same daunting reality. This is not a hero’s journey. The ...