Eds Quotes

“e EDS patients are accustomed to being doctors’ first cases of something in virtually every medical specialty. We’re just as used to being dismissed and sometimes ridiculed by the doctors we pay to take care of us, having to find one who’ll even do the tests we need, and eventually being told we were right (when all we really wanted was to be wrong). This is a special sickness unto itself within the medical world, and is the cause of much of our suffering. Why do a medical test when you can just tell the patient they’re a melodramatic hypochondriac? Now stop asking questions and pay your copay.”
― Michael Bihovsky

“We EDS patients are accustomed to being doctors’ first cases of something in virtually every medical specialty. We’re just as used to being dismissed and sometimes ridiculed by the doctors we pay to take care of us, having to find one who’ll even do the tests we need, and eventually being told we were right (when all we really wanted was to be wrong). This is a special sickness unto itself within the medical world, and is the cause of much of our suffering. Why do a medical test when you can just tell the patient they’re a melodramatic hypochondriac? Now stop asking questions and pay your copay.”
― Michael Bihovsky

“When a surgeon refuses to operate on you because it’s dangerous and unethical, you have no options. Just 'Here’s one more permanent loss to grieve and get used to that you didn’t even know was possible to lose.' And 'Here’s the cure! And here’s why you can’t have it.”
― Michael Bihovsky