Joyce Amen

“Recently, Stacey Milbern brought up the concept of “crip doulas”—other disabled people who help bring you into disability community or into a different kind of disability than you may have experienced before. The more seasoned disabled person who comes and sits with your new crip self and lets you know the hacks you might need, holds space for your feelings, and shares the community’s stories. She mentioned that it’s telling that there’s not even a word for this in mainstream English. We wondered together: How would it change people’s experiences of disability and their fear of becoming disabled if this were a word, and a way of being? What if this was a rite of passage, a form of emotional labor folks knew of—this space of helping people transition? I have done this with hundreds of people. What if this is something we could all do for each other? How would our movements change? Our lives? Our beliefs about what we can do?”
― Leah Lakshmi Piepzna-Samarasinha, Care Work: Dreaming Disability Justice

“Many of us who are disabled are not particularly likable or popular in general or amid the abled. Ableism means that we—with our panic attacks, our trauma, our triggers, our nagging need for fat seating or wheelchair access, our crankiness at inaccessibility, again, our staying home—are seen as pains in the ass, not particularly cool or sexy or interesting. Ableism, again, insists on either the supercrip (able to keep up with able-bodied club spaces, meetings, and jobs with little or no access needs) or the pathetic cripple. Ableism and poverty and racism mean that many of us are indeed in bad moods. Psychic difference and neurodivergence also mean that we may be blunt, depressed, or “hard to deal with” by the tenants of an ableist world.”
― Leah Lakshmi Piepzna-Samarasinha, Care Work: Dreaming Disability Justice

“Disabled people have always existed, whether the word disability is used or not. To me, disability is not a monolith, nor is it a clear-cut binary of disabled and nondisabled. Disability is mutable and ever-evolving. Disability is both apparent and nonapparent. Disability is pain, struggle, brilliance, abundance, and joy. Disability is sociopolitical, cultural, and biological. Being visible and claiming a disabled identity brings risks as much as it brings pride.”
― Alice Wong, Disability Visibility: First-Person Stories from the Twenty-first Century

“It’s not about self-care—it’s about collective care. Collective care means shifting our organizations to be ones where people feel fine if they get sick, cry, have needs, start late because the bus broke down, move slower, ones where there’s food at meetings, people work from home—and these aren’t things we apologize for. It is the way we do the work, which centers disabled-femme-of-color ways of being in the world, where many of us have often worked from our sickbeds, our kid beds, or our too-crazy-to-go-out-today beds. Where we actually care for each other and don’t leave each other behind. Which is what we started with, right?”
― Leah Lakshmi Piepzna-Samarasinha, Care Work: Dreaming Disability Justice