Joyce Amen

“Recently, Stacey Milbern brought up the concept of “crip doulas”—other disabled people who help bring you into disability community or into a different kind of disability than you may have experienced before. The more seasoned disabled person who comes and sits with your new crip self and lets you know the hacks you might need, holds space for your feelings, and shares the community’s stories. She mentioned that it’s telling that there’s not even a word for this in mainstream English. We wondered together: How would it change people’s experiences of disability and their fear of becoming disabled if this were a word, and a way of being? What if this was a rite of passage, a form of emotional labor folks knew of—this space of helping people transition? I have done this with hundreds of people. What if this is something we could all do for each other? How would our movements change? Our lives? Our beliefs about what we can do?”
― Leah Lakshmi Piepzna-Samarasinha, Care Work: Dreaming Disability Justice

“Disabled people have always existed, whether the word disability is used or not. To me, disability is not a monolith, nor is it a clear-cut binary of disabled and nondisabled. Disability is mutable and ever-evolving. Disability is both apparent and nonapparent. Disability is pain, struggle, brilliance, abundance, and joy. Disability is sociopolitical, cultural, and biological. Being visible and claiming a disabled identity brings risks as much as it brings pride.”
― Alice Wong, Disability Visibility: First-Person Stories from the Twenty-first Century

“There is so much that able-bodied people could learn from the wisdom that often comes with disability. But space needs to be made. Hands need to reach out. People need to be lifted up.

The story of disabled success has never been a story about one solitary disabled person overcoming limitations—despite the fact that’s the narrative we so often read in the media. The narrative trajectory of a disabled person’s life is necessarily webbed. We are often only as strong as our friends and family make us, only as strong as our community, only as strong as the resources and privileges we have.”
― Alice Wong, Disability Visibility: First-Person Stories from the Twenty-first Century

“Inclusion without power or leadership is tokenism.”
― Leah Lakshmi Piepzna-Samarasinha, Care Work: Dreaming Disability Justice