Elizabeth

“Western views of justice are primarily focused on how things should be done—laws, rules, and what should happen when laws are broken. In Hebrew thought, justice is focused on what life should be like. Justice in the Hebrew world was concerned not just with laws, but with enhancing all human life, especially the social world.”
― Jessica Nicholas, God Loves Justice: A User-Friendly Guide to Biblical Justice and Righteousness

“Over the years I have developed and employed a variety of such coping mechanisms, mostly focusing around a philosophy I call, “Live Because.”

“Live Because” is in contrast to what I’ve termed “Live Despite,” which is the idea that people can live rich, full lives in spite of their physical or emotional barriers. “Live Because” takes this a step further by suggesting that in many cases, patients can live a more fulfilling life with their illness than they could ever have done without it.

Ehlers-Danlos syndrome has transformed me from a frequently petty and self-absorbed person into the person I am today (still somewhat self-absorbed, but a lot less petty, and with a clearly defined purpose of alleviating whatever suffering I can). I am better because of my illness, and not just in spite of it.

But this process was, and still is, a journey. Chronic illness is nearly always accompanied by depression, and the need to constantly remain one step ahead of my illness has left me fearful and exhausted. I could never go through this alone...

A part of me will always be angry; such is the process of mourning the pieces of oneself that are lost to chronic disease. I have learned to accept the duality of being bitter and at peace; ignorant and enlightened... while still laying a foundation of hope for the possibility that I can still realize my personal dreams and ambitions, even if not in the exact ways I had expected.”
― Michael Bihovsky

“There is always light, if only we're brave enough to see it. If only we are brave enough to be it.”
― Amanda Gorman

“There will always be injustice in the world, because, you know, humans. The question is how we will choose to respond to the injustice around us.”
― Bruce Reyes-Chow, In Defense of Kindness: Why It Matters, How It Changes Our Lives, and How It Can Save the World