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“Mere despair never tells the whole human story, as much as despair would like to insist otherwise. Hopelessness has the insidious talent of explaining everything: the reason X or Y sucks is that everything sucks, the reason you’re miserable is because misery is the correct response to the world as we find it, and so on. I am prone to despair, and so I know its powerful voice; it just doesn’t happen to be true. Here’s the truth as I see it: Vicious cycles are common. Injustice and unfairness permeate every aspect of human life. But virtuous cycles are also possible.”
― Everything Is Tuberculosis: The History and Persistence of Our Deadliest Infection
― Everything Is Tuberculosis: The History and Persistence of Our Deadliest Infection
“For me, anyway, this way of understanding chronic illness—as being of the world but also not permitted by circumstances or the social order to be entirely with the world—is a sentiment applied from within rather than from without, a way of thinking about the limits and opportunities of disability that acknowledges difference and loss without othering or romanticizing. It’s not trustful or loving or soothing or mild. It’s true.”
― Everything Is Tuberculosis: The History and Persistence of Our Deadliest Infection
― Everything Is Tuberculosis: The History and Persistence of Our Deadliest Infection
“Stigma is a way of saying, “You deserved to have this happen,” but implied within the stigma is also, “And I don’t deserve it, so I don’t need to worry about it happening to me.” This can become a kind of double burden for the sick: In addition to living with the physical and psychological challenges of illness, there is the additional challenge of having one’s humanity discounted.”
― Everything Is Tuberculosis: The History and Persistence of Our Deadliest Infection
― Everything Is Tuberculosis: The History and Persistence of Our Deadliest Infection
“But of course people are not just their economic productivity. We do not exist primarily to be plugged into cost-benefit analyses. We are here to love and be loved, to understand and be understood.”
― Everything Is Tuberculosis: The History and Persistence of Our Deadliest Infection
― Everything Is Tuberculosis: The History and Persistence of Our Deadliest Infection
“The job of the “invalid,” as patients were commonly known, was to improve their health. The word “invalid,” of course, gets at the core of what it meant to live with chronic illness—you were a person outside of society, invalid in the social order, separated from your family and your community. Even if you convalesced at home, you were still kept from many of the rhythms of daily life.”
― Everything Is Tuberculosis: The History and Persistence of Our Deadliest Infection
― Everything Is Tuberculosis: The History and Persistence of Our Deadliest Infection
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