Jennifer

“ODTAA syndrome: the syndrome of One Damn Thing After Another.”
― Atul Gawande, Being Mortal: Medicine and What Matters in the End

“In the horrible places, the battle for control escalates until you get tied down or locked into your Geri-chair or chemically subdued with psychotropic medications. In the nice ones, a staff member cracks a joke, wags an affectionate finger, and takes your brownie stash away. In almost none does anyone sit down with you and try to figure out what living a life really means to you under the circumstances, let alone help you make a home where that life becomes possible. This is the consequence of a society that faces the final phase of the human life cycle by trying not to think about it. We end up with institutions that address any number of societal goals—from freeing up hospital beds to taking burdens off families’ hands to coping with poverty among the elderly—but never the goal that matters to the people who reside in them: how to make life worth living when we’re weak and frail and can’t fend for ourselves anymore.”
― Atul Gawande, Being Mortal: Medicine and What Matters in the End

“Being mortal is about the struggle to cope with the constraints of our biology, with the limits set by genes and cells and flesh and bone. Medical science has given us remarkable power to push against these limits, and the potential value of this power was a central reason I became a doctor. But again and again, I have seen the damage we in medicine do when we fail to acknowledge that such power is finite and always will be. We’ve been wrong about what our job is in medicine. We think our job is to ensure health and survival. But really it is larger than that. It is to enable well-being. And well-being is about the reasons one wishes to be alive. Those reasons matter not just at the end of life, or when debility comes, but all along the way. Whenever serious sickness or injury strikes and your body or mind breaks down, the vital questions are the same: What is your understanding of the situation and its potential outcomes? What are your fears and what are your hopes? What are the trade-offs you are willing to make and not willing to make? And what is the course of action that best serves this understanding?”
― Atul Gawande, Being Mortal: Medicine and What Matters in the End

“I missed her so much I wanted to die: a hard, physical longing, like a craving for air underwater. Lying awake, I tried to recall all my best memories of her—to freeze her in my mind so I wouldn’t forget her—but instead of birthdays and happy times I kept remembering things like how a few days before she was killed she’d stopped me halfway out the door to pick a thread off my school jacket. For some reason, it was one of the clearest memories I had of her: her knitted eyebrows, the precise gesture of her reaching out to me, everything. Several times too—drifting uneasily between dreaming and sleep—I sat up suddenly in bed at the sound of her voice speaking clearly in my head, remarks she might conceivably have made at some point but that I didn’t actually remember, things like Throw me an apple, would you? and I wonder if this buttons up the front or the back? and This sofa is in a terrible state of disreputableness.”
― Donna Tartt, The Goldfinch