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She told me I could have whatever I worked for. That means she was an American. But she’d say it was because she believed In God. I am ashamed of America And confounded by God.
“I may not find joy every day. Some days will just be hard, and I will simply exist, and that’s okay, too. No one should have to be happy all the time—no one can be, with the ways in which life throws curveballs at us. On those days, it’s important not to mourn the lack of joy but to remember how it feels, to remember that to feel at all is one of the greatest gifts we have in life. When that doesn’t work, we can remind ourselves that the absence of joy isn’t permanent; it’s just the way life works sometimes. The reality of disability and joy means accepting that not every day is good but every day has openings for small pockets of joy.”
― Disability Visibility: First-Person Stories from the Twenty-first Century
― Disability Visibility: First-Person Stories from the Twenty-first Century
“Brothers and sisters in Christ frequently point to the lament psalms for those grieving. It’s often said they always end in hope. But not all do. Some end in unanswered pleas (Ps. 44, 74, 80, 88). In the whirlwind, God displayed power to Job, not answers (Job 38–41). When Lazarus died, Jesus didn’t offer Mary a sermon or remind her that he wasn’t in pain anymore. Jesus wept (John 11:32–35). Similarly, the pieces in this volume don’t always neatly resolve. They don’t always end in hopeful exhortations. Many end in silence. Silence is the sound of God listening.”
― Solum Journal Volume IV
― Solum Journal Volume IV
“And the deal with so many chronic illnesses is that most people won't want to believe you. They will tell you that you look great, that it might be in your head only, that it is likely stress, that everything is okay. None of these are the right things to say to someone whose entire existence is a fairly consistent torture of the body and mind. They say it because they are well-intentioned usually, because they wish you the best, but they also say it because you make them uncomfortable. Your existence is evidence of death. . . .”
― Sick: A Memoir
― Sick: A Memoir
“What worries me most about the proposals for legalized assisted suicide is their veneer of beneficence—the medical determination that for a given individual, suicide is reasonable or right. It is not about autonomy but about nondisabled people telling us what’s good for us. In the discussion that follows, I argue that choice is illusory in a context of pervasive inequality. Choices are structured by oppression. We shouldn’t offer assistance with suicide until we all have the assistance we need to get out of bed in the morning and live a good life. Common causes of suicidality—dependence, institutional confinement, being a burden—are entirely curable.”
― Disability Visibility: First-Person Stories from the Twenty-first Century
― Disability Visibility: First-Person Stories from the Twenty-first Century
“It is no coincidence then that doctors and patients and the entire Lyme community report—anecdotally, of course, as there is still a frustrating scarcity of good data on anything Lyme-related—that women suffer the most from Lyme. They tend to advance into chronic and late-stage forms of the illness most because often it's checked for last, as doctors often treat them as psychiatric cases first. The nebulous symptoms plus the fracturing of articulacy and cognitive fog can cause any Lyme patient to simply appear mentally ill and mentally ill only. This is why we hear that young women—again, anecdotally—are dying of Lyme the fastest. This is also why we hear that chronic illness is a women's burden. Women simply aren't allowed to be physically sick until they are mentally sick, too, and then it is by some miracle or accident that the two can be separated for proper diagnosis. In the end, every Lyme patient has some psychiatric diagnosis, too, if anything because of the hell it takes getting to a diagnosis.”
― Sick: A Memoir
― Sick: A Memoir
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Bethany’s 2025 Year in Books
Take a look at Bethany’s Year in Books, including some fun facts about their reading.
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