Lore LongSoulSystem

“Denial is our very real, personal response to our own trauma. But denial is the normative response to trauma—by everyone. Society may deny that anything bad ever happened to us. It may deny that DID exists. But that doesn't mean to say it's right. All it says is that like global warming, our histories and our stories are an "inconvenient truth".͏”
― Carolyn Spring, Living with the Reality of Dissociative Identity Disorder: Campaigning Voices

“Several recent studies (Bliss, 1980; Boon & Draijer, 1993a; Coons & Milstein, 1986; Coons, Bowman, & Milstein, 1988; Putnam et al., 1986; Ross et al., 1989b) are largely consistent in terms of the general trends that they demonstrate. At the time of diagnosis (prior to exploration) approximately two to four personalities are in evidence. In the course of treatment an average of 13 to 15 are encountered, but this figure is deceptive. The mode in virtually all series is three, and median number of alters is eight to ten.
Complex cases, with 26 or more alters (described in Kluft, 1988), constitute 15-25% of such series and unduly inflate the mean. Series currently being studied in tertiary referral centers appear to be more complex still (Kluft, Fink, Brenner, & Fine, unpublished data). This is subject to a number of interpretations. It is likely that the complexity of the more difficult and demanding cases treated in such settings may be one aspect of what makes them require such specialized care. It is also possible that the staff of such centers is differentially sensitive to the need to probe for previously undiscovered complexity in their efforts to treat patients who have failed to improve elsewhere. However, it is also possible that patients unduly interested in their disorders and who generate factitious complexity enter such series differently, or that some factor in these units or in those who refer to them encourages such complexity or at least the subjective report thereof.”
― Richard P. Kluft

“You must be your own advocate... You can't rely solely on your doctors or you family or anyone else; you have to stay on top of your own care, no matter how sick or exhausted you feel. Learn everything you can about your disease and your diagnosis, locate the very best doctors, find out exactly what drugs and treatments your doctors are giving you and what they're supposed to do, never stop researching and asking questions, and check, check, check what the doctors tell you-get second and third opinions. All of this is up to you because ultimately no one else-not your family members who love you, or your doctors, who want you to survive-is responsible for your health. You need a support team, of course, but in the end, you run this race on your own.”
― Barbara K. Lipska, The Neuroscientist Who Lost Her Mind: My Tale of Madness and Recovery

“If they don't give you a seat at the table, bring a folding chair.”
― Shirley Chisholm