Status Updates From Second Life: Having a Child...

I asked Dr. Hasadsri, a clinical molecular geneticist at Mayo Clinic, whether it would someday be possible to develop a NIPT-style blood test that screened for BWS and related conditions early in pregnancy... I thought about the expectant parents who might jump, scared, at an early chance to prevent kids like my son. All their private, data-informed decisions, adding up to the total elimination of his genetic code.

It was, I agreed, insane. I had been so excited for [my baby] to be discharged from the NICU, then released from his infernal oxygen tank. Now the baby-monitor industry was recruiting peppy moms to sell a vision of the perma-hospital, restyled as comfy and chic.