Status Updates From Second Life: Having a Child...
Second Life: Having a Child in the Digital Age by
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Jolene
is on page 188 of 272
I asked Dr. Hasadsri, a clinical molecular geneticist at Mayo Clinic, whether it would someday be possible to develop a NIPT-style blood test that screened for BWS and related conditions early in pregnancy... I thought about the expectant parents who might jump, scared, at an early chance to prevent kids like my son. All their private, data-informed decisions, adding up to the total elimination of his genetic code.
— Mar 01, 2026 06:07AM
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Jolene
is on page 167 of 272
It was, I agreed, insane. I had been so excited for [my baby] to be discharged from the NICU, then released from his infernal oxygen tank. Now the baby-monitor industry was recruiting peppy moms to sell a vision of the perma-hospital, restyled as comfy and chic.
— Feb 28, 2026 07:09PM
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