Status Updates From A Face for Picasso: Coming ...

"It didn’t help that Zan and I looked like healthy children for our first few months, until our eyes began to bulge so much they looked like golf balls in the center of our faces. By then, it was clear our faces were different, but nobody could figure out why."

In middle school, I began to dream that one day I, and others with Crouzon syndrome, would finally be seen for who we are: normal.

"I got angry anytime anyone asked me about my face—my differences. How dare they, I thought." As someone with the same syndrome, that part hit hard.

It’s good! Just a little slow and there isn’t any suspense.