Miranda > Status Update

Miranda
Miranda added a status update
My baby got to get off of his iv for a little bit today.(pic is before the iv was taken off) He had tons of fun riding around on "his" bike. :) Photobucket
Dec 09, 2012 09:05PM

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message 1: by Wminbc (new)

Wminbc Hope he had fun racing the halls! <*>


message 2: by Miranda (new)

Miranda He did. He had so much fun. We found a hallway that is not used for patients so he was able to go as fast as he wanted to. :)


Little Butterfly He is such a sweetheart! How much longer does he have to stay?


message 4: by Miranda (new)

Miranda Hopefully we will be out by this weekend. Poor kid he is taking like 15 different meds...and he doesn't complain too much about any of them.


JoJo - JJJ (Jo Anna) Janesko What happened Twigs?


message 6: by Miranda (new)

Miranda He has Cystic Fibrosis..so when he gets a cold it turns into pneumonia REALLY easily. He isn't sickly or anything has all the energy in the world (and I wish he would share some with me!) but the doctor wanted to keep him before his lungs got worse and he ended up really sick. They are keeping him for 10 days and today is day 5.


message 7: by Baba (new)

Baba  He is a cutie! Stay strong, Twigs! *hugs*


message 8: by Aму (last edited Dec 10, 2012 09:25AM) (new)

Aму He is absolutely precious Twigs! :) Thinking of you and wish him all the best.


message 9: by Clarifina (last edited Dec 10, 2012 09:16AM) (new)

Clarifina ~Books Are My Drugs~ Aww, he's adorable.


message 10: by Dd (new)

Dd Lots and lots of love for him!!I hope he gets well very soon!!:))


JoJo - JJJ (Jo Anna) Janesko I will keep him in my thoughts and prayers. he is too stinkin cute.


message 12: by Miranda (new)

Miranda Thanks ladies...I'm actually really worried for when we do get home...he is getting so spoiled there! The nurses do everything he asks them to! Haha! :)


message 13: by Baba (new)

Baba  Twigs1704 wrote: "Thanks ladies...I'm actually really worried for when we do get home...he is getting so spoiled there! The nurses do everything he asks them to! Haha! :)"

Oh, just spoil him some more when he gets home. :)


message 14: by Bonnie (new)

Bonnie What a cutie! Hope he gets well soon. <3


message 15: by Miranda (new)

Miranda Thanks ladies. He is doing really well.

Haha! Oh I will...we are waiting for him to get out of the hospital to put up all of our Christmas decorations. We were supposed to do it this weekend that just passed but since he is in the hospital I wanted to wait for him because he was so excited about decorating the tree. :)


texxie-PRUFreads.blogspot.com Wishing him all the very best. Decorating the tree sounds like a great 'welcome home' idea! :-)


message 17: by Miranda (new)

Miranda Thanks Tex! He keeps talking about it to make sure we haven't done it without him. Haha!


message 18: by Wminbc (new)

Wminbc Twigs...both my neighbour and a coworker have sons with CF...my thoughts are with you. Both Jamie (5) and Evan (24, I believe he is now...yikes he was so little when I first met him) have shown me true strength...yes, you always have to be cautious with colds. It is hard to get my 6 yr old to not go play with Jamie when my guy has a cold---trying to limit his number of colds. Take care, and I would read the little guy a book if I could! me


message 19: by Lady Heather (new)

Lady Heather What a beautiful little boy! Wishing you all the best Twigs! *hugs & prayers*


message 20: by Gina (new)

Gina He is a beauty, I am sending my good thoughts and hugs to you both!


Kelly| Just Another Horror Reader Aw, he is so darn cute, Twigs! I hope he's better real soon, sweetie. :)


message 22: by Miranda (new)

Miranda Wminbc wrote: "Twigs...both my neighbour and a coworker have sons with CF...my thoughts are with you. Both Jamie (5) and Evan (24, I believe he is now...yikes he was so little when I first met him) have shown me..."

I didn't even know what CF was until I was pregnant and they told me that the kids dad and I are carriers of it. Don't worry..my kids are too much like me..they love to have books read to them! :) I'm teaching them well. Haha!


message 23: by Miranda (new)

Miranda Thanks Lady H, Gina and Kelly! He told me the other night that his lungs told him they were happy and they could go home now. Haha. I went and picked up sister today and she is complaining that her ear hurts! Ah!


message 24: by Miranda (new)

Miranda Thank you Mia! He is my brave man. :) Merry Christmas to you and yours as well!


message 25: by Wminbc (new)

Wminbc Awesome Twigs....I just know that I love to be read to..my oldest reads to me when i am sick and DH reads to DD and me to younger son...nice to fall asleep to a loved ones voice...have a great time decorating!


message 26: by Rach (new)

Rach Sorry to hear your son isn't well. Cystic Fybrosis is an awful illness. You must be never out of hospitals :( Children are so strong, they give you the strength to get through the tough times too.

I don't have any of my own but I work with them and when you feel low there is nothing better than getting a cuddle from them.

I'm glad he is starting to improve, :)


message 27: by Miranda (new)

Miranda Wminbc wrote: "Awesome Twigs....I just know that I love to be read to..my oldest reads to me when i am sick and DH reads to DD and me to younger son...nice to fall asleep to a loved ones voice...have a great time..."

I'm glad my kiddos love to read. They don't play video games and love to go outside. Not many kids like that these days! Thanks again hun!


message 28: by Miranda (new)

Miranda Racht wrote: "Sorry to hear your son isn't well. Cystic Fybrosis is an awful illness. You must be never out of hospitals :( Children are so strong, they give you the strength to get through the tough times too. ..."

So far we are actually doing pretty good about staying out of hospitals..just the last few years we have been starting to go and have to stay. Usually we only have to go once a year. We spent Christmas there in 2010 so I'm glad he will be out for this one. That stay we were there beginning of Dec and got out New Years Eve day. So we got to start 2011 out of the hospital. But he banked with Christmas gifts that year...they gave him a huge bag filled with toys. :) He was so excited he didn't know which toys to start playing with! haha!


message 29: by Miranda (new)

Miranda Em - everybody's got a dark side ;) wrote: "That's amazing news <3333 He's a real cutie ;)"

Thanks Em...he knows how to use that cuteness too!


message 30: by Rach (new)

Rach Twigs1704 wrote: "Racht wrote: "Sorry to hear your son isn't well. Cystic Fybrosis is an awful illness. You must be never out of hospitals :( Children are so strong, they give you the strength to get through the tou..."

Ah you sound like such a strong person to cope with all that. He does well to stay out of hospital, but it must be a relief for you that he doesn't as hospitals are not a nice place to stop in, even when they try to make it as nice as they can for the children.
I bet he was excited last Christmas if he got double the presents, when the little love has to cope with what he has to, he deserves to be spoilt!
I hear the medications and physio are brutal for CF sufferers. Glad you will be out in time for Christmas :)


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