Miranda > Status Update
Miranda
added a status update
My baby got to get off of his iv for a little bit today.(pic is before the iv was taken off) He had tons of fun riding around on "his" bike. :)
— Dec 09, 2012 09:05PM
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Wminbc
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Dec 09, 2012 09:46PM
Hope he had fun racing the halls! <*>
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He did. He had so much fun. We found a hallway that is not used for patients so he was able to go as fast as he wanted to. :)
Hopefully we will be out by this weekend. Poor kid he is taking like 15 different meds...and he doesn't complain too much about any of them.
He has Cystic Fibrosis..so when he gets a cold it turns into pneumonia REALLY easily. He isn't sickly or anything has all the energy in the world (and I wish he would share some with me!) but the doctor wanted to keep him before his lungs got worse and he ended up really sick. They are keeping him for 10 days and today is day 5.
Thanks ladies...I'm actually really worried for when we do get home...he is getting so spoiled there! The nurses do everything he asks them to! Haha! :)
Twigs1704 wrote: "Thanks ladies...I'm actually really worried for when we do get home...he is getting so spoiled there! The nurses do everything he asks them to! Haha! :)"Oh, just spoil him some more when he gets home. :)
Thanks ladies. He is doing really well.Haha! Oh I will...we are waiting for him to get out of the hospital to put up all of our Christmas decorations. We were supposed to do it this weekend that just passed but since he is in the hospital I wanted to wait for him because he was so excited about decorating the tree. :)
Twigs...both my neighbour and a coworker have sons with CF...my thoughts are with you. Both Jamie (5) and Evan (24, I believe he is now...yikes he was so little when I first met him) have shown me true strength...yes, you always have to be cautious with colds. It is hard to get my 6 yr old to not go play with Jamie when my guy has a cold---trying to limit his number of colds. Take care, and I would read the little guy a book if I could! me
Wminbc wrote: "Twigs...both my neighbour and a coworker have sons with CF...my thoughts are with you. Both Jamie (5) and Evan (24, I believe he is now...yikes he was so little when I first met him) have shown me..."I didn't even know what CF was until I was pregnant and they told me that the kids dad and I are carriers of it. Don't worry..my kids are too much like me..they love to have books read to them! :) I'm teaching them well. Haha!
Thanks Lady H, Gina and Kelly! He told me the other night that his lungs told him they were happy and they could go home now. Haha. I went and picked up sister today and she is complaining that her ear hurts! Ah!
Awesome Twigs....I just know that I love to be read to..my oldest reads to me when i am sick and DH reads to DD and me to younger son...nice to fall asleep to a loved ones voice...have a great time decorating!
Sorry to hear your son isn't well. Cystic Fybrosis is an awful illness. You must be never out of hospitals :( Children are so strong, they give you the strength to get through the tough times too. I don't have any of my own but I work with them and when you feel low there is nothing better than getting a cuddle from them.
I'm glad he is starting to improve, :)
Wminbc wrote: "Awesome Twigs....I just know that I love to be read to..my oldest reads to me when i am sick and DH reads to DD and me to younger son...nice to fall asleep to a loved ones voice...have a great time..."I'm glad my kiddos love to read. They don't play video games and love to go outside. Not many kids like that these days! Thanks again hun!
Racht wrote: "Sorry to hear your son isn't well. Cystic Fybrosis is an awful illness. You must be never out of hospitals :( Children are so strong, they give you the strength to get through the tough times too. ..."So far we are actually doing pretty good about staying out of hospitals..just the last few years we have been starting to go and have to stay. Usually we only have to go once a year. We spent Christmas there in 2010 so I'm glad he will be out for this one. That stay we were there beginning of Dec and got out New Years Eve day. So we got to start 2011 out of the hospital. But he banked with Christmas gifts that year...they gave him a huge bag filled with toys. :) He was so excited he didn't know which toys to start playing with! haha!
Em - everybody's got a dark side ;) wrote: "That's amazing news <3333 He's a real cutie ;)"Thanks Em...he knows how to use that cuteness too!
Twigs1704 wrote: "Racht wrote: "Sorry to hear your son isn't well. Cystic Fybrosis is an awful illness. You must be never out of hospitals :( Children are so strong, they give you the strength to get through the tou..."Ah you sound like such a strong person to cope with all that. He does well to stay out of hospital, but it must be a relief for you that he doesn't as hospitals are not a nice place to stop in, even when they try to make it as nice as they can for the children.
I bet he was excited last Christmas if he got double the presents, when the little love has to cope with what he has to, he deserves to be spoilt!
I hear the medications and physio are brutal for CF sufferers. Glad you will be out in time for Christmas :)










