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My Heart Lies Here
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by Laurie Marr Wasmund (Goodreads Author)
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Jean-Dominique Bauby
“We are both locked-in cases, each in his own way: myself in my carcass, my father in his fourth-floor apartment.”
Jean-Dominique Bauby, The Diving Bell and the Butterfly

Jean-Dominique Bauby
“Does it take the harsh light of disaster to show a person’s true nature?”
Jean-Dominique Bauby

Jean-Dominique Bauby
“I receive remarkable letters. They are opened for me, unfolded, and spread out before my eyes in a daily ritual that gives the arrival of the mail the character of a hushed and holy ceremony. I carefully read each letter myself. Some of them are serious in tone, discussing the meaning of life, invoking the supremacy of the soul, the mystery of every existence. And by a curious reversal, the people who focus most closely on these fundamental questions tend to be people I had known only superficially. Their small talk has masked hidden depths. Had I been blind and deaf, or does it take the harsh light of disaster to show a person's true nature?

Other letters simply relate the small events that punctuate the passage of time: roses picked at dusk, the laziness of a rainy Sunday, a child crying himself to sleep. Capturing the moment, these small slices of life, these small gusts of happiness, move me more deeply than all the rest. A couple of lines or eight pages, a Middle Eastern stamp or a suburban postmark... I hoard all these letters like treasure. One day I hope to fasten them end to end in a half-mile streamer, to float in the wind like a banner raised to the glory of friendship.

It will keep the vultures at bay.”
Jean-Dominique Bauby, The Diving Bell and the Butterfly: A Memoir of Life in Death

Jean-Dominique Bauby
“Want to play hangman? asks Theophile, and I ache to tell him that I have enough on my plate playing quadriplegic. But my communication system disqualifies repartee: the keenest rapier grows dull and falls flat when it takes several minutes to thrust it home. By the time you strike, even you no longer understand what had seemed so witty before you started to dictate it, letter by letter. So the rule is to avoid impulsive sallies. It deprives conversation of its sparkle, all those gems you bat back and forth like a ball-and I count this forced lack of humor one of the great drawbacks of my condition.”
Jean-Dominique Bauby, The Diving Bell and the Butterfly: A Memoir of Life in Death

Jean-Dominique Bauby
“And then one afternoon as I confided my woes to her likeness, an unknown face interposed itself between us. Reflected in the glass I saw the head of a man who seemed to have emerged from a vat of formaldehyde. His mouth was twisted, his nose damaged, his hair tousled, his gaze full of fear. One eye was sewn shut, the other goggled like the doomed eye of Cain. For a moment I stared at that dilated pupil, before I realized it was only mine.”
Jean-Dominique Bauby, The Diving Bell and the Butterfly

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