Status Updates From The Elusive Body: Patients,...
The Elusive Body: Patients, Doctors, and the Diagnosis Crisis by
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Ariel
is 50% done
CFS/ME is a specific diagnosis with a unique set of symptoms, the utterly crucial one being POST-EXERTIONAL MALAISE. It is not simply being very tired. If you do not experience PEM, you do not have CFS/ME. Doctors like to use my condition as a catch-all for fatigue, but that sows confusion among patients, medical professionals, and the general public. It mischaracterizes a disease that makes people bedridden as mild.
— Nov 04, 2026 08:26PM
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