Willemijn’s Reviews > Still Alice > Status Update
Willemijn
is on page 137 of 345
Also, striking discussion on how she would rather have cancer than Alzheimer's, for a large part because of society's reaction to cancer (people see you as brave) but also for the opportunity to fight it, and if you lose, to say goodbye with a relatively clear mind. Come back to later.
— Apr 20, 2025 07:31AM
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Willemijn’s Previous Updates
Willemijn
is on page 287 of 345
Hallucinations, random associations between people and info about them but not their name, rapid regression, disappointment from loved ones (esp when you feel like you just accomplished something)
— Apr 22, 2025 04:06PM
Willemijn
is on page 239 of 345
More frustrating things:
- noticing your own regression, or just waiting for it to happen
- not being able to safely do anything independently, but not being far gone enough that you aren’t bored out of your mind. And associated: reliance on others.
- repetitive thoughts
- alienation, not belonging
- accepting information as fact rather than knowing it to be true (eg your relation to a family member)
— Apr 21, 2025 04:12PM
- noticing your own regression, or just waiting for it to happen
- not being able to safely do anything independently, but not being far gone enough that you aren’t bored out of your mind. And associated: reliance on others.
- repetitive thoughts
- alienation, not belonging
- accepting information as fact rather than knowing it to be true (eg your relation to a family member)
Willemijn
is on page 214 of 345
Devastating things:
- forgetting about people’s deaths, re-experiencing the news
- distrusting people for ‘withholding info’
- being lost in your own home
- ostracisation, people avoiding you
- knowing exactly what the prognosis of your disease is but not knowing the timeline
- being painfully aware you’re looking for a word but not being able to reach it
- forgetting your relation to the people you love
— Apr 20, 2025 03:40PM
- forgetting about people’s deaths, re-experiencing the news
- distrusting people for ‘withholding info’
- being lost in your own home
- ostracisation, people avoiding you
- knowing exactly what the prognosis of your disease is but not knowing the timeline
- being painfully aware you’re looking for a word but not being able to reach it
- forgetting your relation to the people you love
Willemijn
is on page 137 of 345
More notes for class:
Reader is in the weird place of knowing exactly what Alice has forgotten while those around her aren't and she isn't aware either. Makes social 'faux pas' really awkward (e.g. sitting down in a lecture waiting for the prof when *she* teaches the class).
Also, planning for one's own death based on a forgetfulness test... Clear loss of the will to live at the prospect of disease progression
— Apr 20, 2025 07:29AM
Reader is in the weird place of knowing exactly what Alice has forgotten while those around her aren't and she isn't aware either. Makes social 'faux pas' really awkward (e.g. sitting down in a lecture waiting for the prof when *she* teaches the class).
Also, planning for one's own death based on a forgetfulness test... Clear loss of the will to live at the prospect of disease progression
Willemijn
is on page 92 of 345
First impressions (for class):
- not overwhelmingly good writing but reasonably fast-paced, keeping the book engaging enough
- seems awful to realise from the behaviour of those around you that you’ve missed something/done something strange but have no idea what because you’ve forgotten
- “for others, [information] would have been enough [to convince them of the diagnosis], but X loved her” ouch
— Apr 19, 2025 07:37AM
- not overwhelmingly good writing but reasonably fast-paced, keeping the book engaging enough
- seems awful to realise from the behaviour of those around you that you’ve missed something/done something strange but have no idea what because you’ve forgotten
- “for others, [information] would have been enough [to convince them of the diagnosis], but X loved her” ouch

