Jolene’s Reviews > Second Life: Having a Child in the Digital Age > Status Update

I asked Dr. Hasadsri, a clinical molecular geneticist at Mayo Clinic, whether it would someday be possible to develop a NIPT-style blood test that screened for BWS and related conditions early in pregnancy... I thought about the expectant parents who might jump, scared, at an early chance to prevent kids like my son. All their private, data-informed decisions, adding up to the total elimination of his genetic code.

I have cried so many times while reading this book. I love it. It makes me feel so incredibly seen.

One PDF featured a series of impenetrable bar graphs charting my pregnancy's risks. At the time I received it, it had felt so reassuring, so precious in my inbox. I did not consider that it only ran the odds on a small band of conditions and that it had nothing to say about an obscure genetic disorder with a name I had already forgotten how to spell.