Jolene’s Reviews > Second Life: Having a Child in the Digital Age > Status Update
Jolene
is on page 188 of 272
I asked Dr. Hasadsri, a clinical molecular geneticist at Mayo Clinic, whether it would someday be possible to develop a NIPT-style blood test that screened for BWS and related conditions early in pregnancy... I thought about the expectant parents who might jump, scared, at an early chance to prevent kids like my son. All their private, data-informed decisions, adding up to the total elimination of his genetic code.
— Mar 01, 2026 06:07AM
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Jolene’s Previous Updates
Jolene
is on page 167 of 272
It was, I agreed, insane. I had been so excited for [my baby] to be discharged from the NICU, then released from his infernal oxygen tank. Now the baby-monitor industry was recruiting peppy moms to sell a vision of the perma-hospital, restyled as comfy and chic.
— Feb 28, 2026 07:09PM
Jolene
is on page 113 of 272
I have cried so many times while reading this book. I love it. It makes me feel so incredibly seen.
— Jan 21, 2026 09:59PM
Jolene
is on page 72 of 272
One PDF featured a series of impenetrable bar graphs charting my pregnancy's risks. At the time I received it, it had felt so reassuring, so precious in my inbox. I did not consider that it only ran the odds on a small band of conditions and that it had nothing to say about an obscure genetic disorder with a name I had already forgotten how to spell.
— Jan 20, 2026 04:07AM
