Utchenik > Utchenik's Quotes

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  • #1
    Jenny  Lawson
    “Do you know about the spoons? Because you should. The Spoon Theory was created by a friend of mine, Christine Miserandino, to explain the limits you have when you live with chronic illness. Most healthy people have a seemingly infinite number of spoons at their disposal, each one representing the energy needed to do a task. You get up in the morning. That’s a spoon. You take a shower. That’s a spoon. You work, and play, and clean, and love, and hate, and that’s lots of damn spoons … but if you are young and healthy you still have spoons left over as you fall asleep and wait for the new supply of spoons to be delivered in the morning. But if you are sick or in pain, your exhaustion changes you and the number of spoons you have. Autoimmune disease or chronic pain like I have with my arthritis cuts down on your spoons. Depression or anxiety takes away even more. Maybe you only have six spoons to use that day. Sometimes you have even fewer. And you look at the things you need to do and realize that you don’t have enough spoons to do them all. If you clean the house you won’t have any spoons left to exercise. You can visit a friend but you won’t have enough spoons to drive yourself back home. You can accomplish everything a normal person does for hours but then you hit a wall and fall into bed thinking, “I wish I could stop breathing for an hour because it’s exhausting, all this inhaling and exhaling.” And then your husband sees you lying on the bed and raises his eyebrow seductively and you say, “No. I can’t have sex with you today because there aren’t enough spoons,” and he looks at you strangely because that sounds kinky, and not in a good way. And you know you should explain the Spoon Theory so he won’t get mad but you don’t have the energy to explain properly because you used your last spoon of the morning picking up his dry cleaning so instead you just defensively yell: “I SPENT ALL MY SPOONS ON YOUR LAUNDRY,” and he says, “What the … You can’t pay for dry cleaning with spoons. What is wrong with you?” Now you’re mad because this is his fault too but you’re too tired to fight out loud and so you have the argument in your mind, but it doesn’t go well because you’re too tired to defend yourself even in your head, and the critical internal voices take over and you’re too tired not to believe them. Then you get more depressed and the next day you wake up with even fewer spoons and so you try to make spoons out of caffeine and willpower but that never really works. The only thing that does work is realizing that your lack of spoons is not your fault, and to remind yourself of that fact over and over as you compare your fucked-up life to everyone else’s just-as-fucked-up-but-not-as-noticeably-to-outsiders lives. Really, the only people you should be comparing yourself to would be people who make you feel better by comparison. For instance, people who are in comas, because those people have no spoons at all and you don’t see anyone judging them. Personally, I always compare myself to Galileo because everyone knows he’s fantastic, but he has no spoons at all because he’s dead. So technically I’m better than Galileo because all I’ve done is take a shower and already I’ve accomplished more than him today. If we were having a competition I’d have beaten him in daily accomplishments every damn day of my life. But I’m not gloating because Galileo can’t control his current spoon supply any more than I can, and if Galileo couldn’t figure out how to keep his dwindling spoon supply I think it’s pretty unfair of me to judge myself for mine. I’ve learned to use my spoons wisely. To say no. To push myself, but not too hard. To try to enjoy the amazingness of life while teetering at the edge of terror and fatigue.”
    Jenny Lawson, Furiously Happy: A Funny Book About Horrible Things

  • #2
    Toni Bernhard
    “Behind every stressful thought is the desire for things to be other than they are.”
    Toni Bernhard, How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers

  • #3
    “As with many life-altering events, an autoimmune illness is almost guaranteed to cause you to re-evaluate your priorities.”
    Joan Friedlander, Women, Work, and Autoimmune Diease

  • #4
    Stephen Fry
    “For some reason the word “chronic” often has to be explained. It does not mean severe, though many chronic conditions can be exceptionally serious and indeed life-threatening. No, “chronic” means persistent over time, enduring, constant. Diabetes is a chronic condition, but measles is not. With measles, you contract it and then it is gone. It can sometimes be fatal, but is never chronic. Manic depression, in other words, is something you have to learn to live with. There are therapies which may help some people to function and function for the most part happily and well. Sometimes a talking therapy, sometimes pharmaceutical intervention helps.”
    Stephen Fry

  • #5
    Lynne Sharon Schwartz
    “My head aches, my eyes burn, my arms and legs have given up, and my face in the mirror has a grayish cast. The bed, across the room, calls in its unmistakable lover's croon, Come to me, come, only I can make you truly happy, oh, how happy I'll make you, don't resist, remember how you moan with pleasure the instant we touch.....”
    Lynne Sharon Schwartz, The Fatigue Artist

  • #6
    Peggy Munson
    “Sure, society understands visible shackles-- they get the symbolism of the wheelchair, of prosthetics, of a bumper sticker reading disabled veteran, but they still struggle for comprehension of the profound, invisible shackles that an illness such as [Chronic Fatigue] puts on a person's body.”
    Peggy Munson, Stricken

  • #7
    Sonya Huber
    “I will be living with chronic pain for the rest of my life. I don’t have the mobility, energy or life options I used to have. I work hard to manage the pain, and I want the medical system to be a respectful and effective partner, not a jailer. The opioid crisis is not my doing.”
    Sonya Huber

  • #8
    Jessica Verdi
    “Listen, I wanted to say, I don't need your judgment, okay? I have enough to deal with without you contributing, so can we just get on with this so I can get out of here?

    But I couldn't form the words. Dr. Johnson viewed me as a child, and somehow, under his contemptuous gaze, I had regressed to one. I was frightened and shy, and it was all I could do to answer his questions and count the seconds until the end of the visit.”
    Jessica Verdi, My Life After Now

  • #9
    Jessica Verdi
    “I felt entirely invisible and uncomfortably obvious all at the same time, sitting there in practically nothing in front of this stranger who was ignoring me.”
    Jessica Verdi, My Life After Now

  • #10
    Sarah Hackley
    “Remember this: You are the expert of your body.”
    Sarah Hackley, Finding Happiness with Migraines: a Do It Yourself Guide, a min-e-bookTM

  • #11
    Sarah Hackley
    “No one knows our bodies or our subjective experiences like we do. This means we can rest secure in our knowledge of ourselves and what we’re going through, even when the medical profession doesn’t understand or believe us. Migraine is a weird and changing disease. It affects all of us differently, and every attack is a little different than the one before. This means that no one can understand your life, symptoms, or illness like you can. This can be incredibly empowering: you are the expert. But, it also carries great responsibility: to live as happily and as fully as possible, you must listen to your body and trust your instincts.”
    Sarah Hackley, Finding Happiness with Migraines: a Do It Yourself Guide, a min-e-bookTM

  • #12
    Porochista Khakpour
    “And the deal with so many chronic illnesses is that most people won't want to believe you. They will tell you that you look great, that it might be in your head only, that it is likely stress, that everything is okay. None of these are the right things to say to someone whose entire existence is a fairly consistent torture of the body and mind. They say it because they are well-intentioned usually, because they wish you the best, but they also say it because you make them uncomfortable. Your existence is evidence of death. . . .”
    Porochista Khakpour, Sick: A Memoir



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