Jennifer

“Esmé Weijun Wang writes in The Collected Schizophrenias about speaking to medical professionals about her experiences with schizophrenia. A doctor approached her to thank her afterward, but what she said shows how many able-bodied people don’t treat or see disabled people as human: She said that she was grateful for this reminder that her patients are human too. She starts out with such hope, she said, every time a new patient comes—and then they relapse and return, relapse and return. The clients, or patients, exhibit their illness in ways that prevent them from seeming like people who can dream, or like people who can have others dream for them. Disabled voices like Wang’s and others are needed to change the narratives around disability—to insist on disabled people’s humanity and complexity, to resist inspiration porn, to challenge the binary that says disabled bodies and lives are less important or tragic or that they have value only if they can be fixed or be cured or be made productive.”
― Alice Wong, Disability Visibility: First-Person Stories from the Twenty-first Century

“The peculiar drama of my life has placed me in a world that by and large thinks it would be better if people like me did not exist. My fight has been for accommodation, the world to me and me to the world.”
― Alice Wong, Disability Visibility: First-Person Stories from the Twenty-first Century

“In high school, I confided in a nurse that I was trying to be sexually active, but bladder and bowel incontinence were affecting my ability to be intimate with my then-partner. Their only solution was to suggest that there would be people who would be “into that.” My dating pool was instantly reduced to people who would fetishize me.”
― Alice Wong, Disability Visibility: First-Person Stories from the Twenty-first Century

“People ask me, “Have you tried yoga? Kombucha? This special water?” And I don’t have the energy to explain that yes, I’ve tried them. I’ve tried crystals and healing drum circles and prayer and everything. What I want to try is acceptance. I want to see what happens if I can simply accept myself for who I am: battered, broken, hoping for relief, still enduring somehow. I will still take a cure if it’s presented to me, but I am so tired of trying to bargain with the universe for some kind of cure. The price is simply too high to live chasing cures, because in doing so, I’m missing living my life. I know only that in chasing to achieve the person I once was, I will miss the person I have become.”
― Alice Wong, Disability Visibility: First-Person Stories from the Twenty-first Century