Roxy Iconoclast

“In the spring of 2009, I was the 217th person ever to be diagnosed with anti-NMDA-receptor autoimmune encephalitis. Just a year later, that figure had doubled. Now the number is in the thousands. Yet Dr. Bailey, considered one of the best neurologists in the country, had never heard of it. When we live in a time when the rate of misdiagnoses has shown no improvement since the 1930s, the lesson here is that it’s important to always get a second opinion.

While he may be an excellent doctor in many respects, Dr. Bailey is also, in some ways, a perfect example of what is wrong with medicine. I was just a number to him (and if he saw thirty-five patients a day, as he told me, that means I was one of a very large number). He is a by-product of a defective system that forces neurologists to spend five minutes with X number of patients a day to maintain their bottom line. It’s a bad system. Dr. Bailey is not the exception to the rule. He is the rule.”
― Susannah Cahalan, Brain on Fire: My Month of Madness

“So much in a relationship changes when a partner is seriously ill, helpless yet blameless, and indefatigably needy. I felt old. [p. 99]


The animal part of him in pain accepted my caring. But the part of himself watching himself in that pain didn't believe I could ever respect him again. None of this crossed my mind. I couldn't risk knowing it. No one could and continue caregiving. They'd feel so unappreciated and wronged that it would drive them away. [p. 100]”
― Diane Ackerman, One Hundred Names for Love: A Stroke, a Marriage, and the Language of Healing

“I was inspired to write (Life Continues) to tell people dealing with MS or any other illness that if opening your eyes, or getting out of bed, or holding a spoon, or combing your hair is the daunting Mount Everest you climb today, that is okay.”
― Carmen Ambrosio, Life Continues: Facing the Challenges of MS, Menopause & Midlife with Hope, Courage & Humor

“The story of the young woman whose death I witnessed in a concentration camp. It is a simple story. There is little to tell and it may sound as if I had invented it; but to me it seems like a poem. This young woman knew that she would die in the next few days. But when I talked to her she was cheerful in spite of this knowledge. "I am grateful that fate has hit me so hard," she told me. "In my former life I was spoiled and did not take spiritual accomplishments seriously." Pointing through the window of the hut, she said, "This tree here is the only friend I have in my loneliness." Through that window she could see just one branch of a chestnut tree, and on the branch were two blossoms. "I often talk to this tree," she said to me. I was startled and didn't quite know how to take her words. Was she delirious? Did she have occasional hallucinations? Anxiously I asked her if the tree replied. "Yes." What did it say to her? She answered, "It said to me, 'I am here-I am here-I am life, eternal life.”
― Viktor E. Frankl, Man's Search for Meaning