Roxy Iconoclast

“We are all hostages of time. We each have the same number of minutes and hours to live within a day, yet to me it didn't feel equally doled out. My illness brought me such an abundance of time that time was nearly all I had. My friends had so little time that I often wished I could give them what time I could not use. It was perplexing how in losing health I had gained something so coveted but to so little purpose.”
― Elisabeth Tova Bailey, The Sound of a Wild Snail Eating

“Beauty is in the eye of the beholder and it may be necessary from time to time to give a stupid or misinformed beholder a black eye.”
― Jim Henson

“I was inspired to write (Life Continues) to tell people dealing with MS or any other illness that if opening your eyes, or getting out of bed, or holding a spoon, or combing your hair is the daunting Mount Everest you climb today, that is okay.”
― Carmen Ambrosio, Life Continues: Facing the Challenges of MS, Menopause & Midlife with Hope, Courage & Humor

“In the spring of 2009, I was the 217th person ever to be diagnosed with anti-NMDA-receptor autoimmune encephalitis. Just a year later, that figure had doubled. Now the number is in the thousands. Yet Dr. Bailey, considered one of the best neurologists in the country, had never heard of it. When we live in a time when the rate of misdiagnoses has shown no improvement since the 1930s, the lesson here is that it’s important to always get a second opinion.

While he may be an excellent doctor in many respects, Dr. Bailey is also, in some ways, a perfect example of what is wrong with medicine. I was just a number to him (and if he saw thirty-five patients a day, as he told me, that means I was one of a very large number). He is a by-product of a defective system that forces neurologists to spend five minutes with X number of patients a day to maintain their bottom line. It’s a bad system. Dr. Bailey is not the exception to the rule. He is the rule.”
― Susannah Cahalan, Brain on Fire: My Month of Madness